Search Results

Elizabeth

On November 8, 2021, I was diagnosed with stage III multiple myeloma (MM), an incurable cancer. Prior to being diagnosed, I thought I was a healthy young woman and was just living life with my children. I would have different pains throughout my body, but I didn't think much about it and would ignore them for the most part. The pains throughout my body were getting more and more frequent, so I went to the ER in October 2021 because I was in pain and could not eat, they said I was possibly having acid reflux and gave me a prescription for nausea.

Follow-Up Care

Those who have been treated for MDS are encouraged to:

Signs and Symptoms

Essential thrombocythemia (ET) is often detected during a routine blood test before an individual has any symptoms.

The signs and symptoms of ET are linked to high platelet counts that cause the development of a thrombus (blood clot). The symptoms include:

Returning to School

Consider educating family members, friends, school personnel and healthcare providers about your child's possible long-term and late effects of treatment. In particular, talk with teachers about your child's needs before he or she returns to school, as they and other school personnel may not be aware of the potential for long-term and late effects of treatment.

Diarrhea and Constipation

Diarrhea and constipation are common side effects of cancer treatment. The severity of diarrhea or constipation varies among patients and depends on the type of treatment you receive. Sometimes side effects improve as you adjust to treatment. Most side effects go away when treatment ends.

Tell your healthcare team if you are experiencing new or worsening diarrhea or constipation. Do not take over-the-counter medications without talking to your doctor.

Follow these tips to manage diarrhea:

Chimeric Antigen Receptor (CAR) T-Cell Therapy

On this page:

Treatment

The main treatment for AML is chemotherapy given in phases.

Not every child with AML receives the same treatment. Your child’s doctor will tailor your child’s treatment based on the AML subtype and other factors, such as age, health and how the cancer responds to treatment.

Your child’s treatment may include:

Follow-Up Care

Your child will undergo frequent follow-up tests during the first year after treatment, but they will be done less often during the second and third years. Each patient has a different follow-up care schedule. How often your child has follow-up visits is based on your child’s type of AML and the treatments given. Your child’s doctor will let you know the schedule that is right for your child.

Children should visit their pediatrician or doctor at least once a year for a complete physical exam and any additional needed tests. The oncologist should also regularly examine the child.

Polycythemia Vera

• Is one of a related group of blood cancers known as “myeloproliferative neoplasms” (MPNs). Too many red blood cells are made in the bone marrow and, in many cases, the numbers of white blood cells and platelets are also elevated. 
• With careful medical supervision, PV can usually be managed effectively for many years.

Hair Loss

Drugs that damage or destroy cancer cells also affect normal cells. Rapidly dividing cells, such as hair follicle cells, are the most affected. This is why hair loss (alopecia) is a common side effect of chemotherapy. Hair loss can range from thinning to baldness. It may be sudden or slow. You may also lose hair from other areas of your body such as eyelashes and eyebrows. 

Hair usually grows back after treatment ends. The thickness, texture or color of hair may be different when it grows back. 

Resources for Survivors

Use this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.

Fertility

“Fertility” describes the ability to conceive a biological child. Human reproduction requires three elements: mature sperm, mature eggs and a person with a uterus to carry the pregnancy and give birth. Some cancers and some cancer treatments affect fertility.

Maggie

When I was 8 years old, I was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL). I shocked the doctors with how I was still alive because I had a mass the size of a grapefruit on my lungs and masses all over my other vital organs. When I was admitted to the hospital, they got chemo going everywhere they possibly could ― in my port, my arm, my foot. I was then put into a medically induced coma for about two weeks before waking up. After a while in the ICU, I was sent down to the main floor for hematology/oncology.

Blood Tests

When your doctor orders a blood test, he or she chooses from a list of chemical studies to be performed in a laboratory on your blood sample. These lab tests can provide important clues about what's going on inside your body.

If your doctor suspects you may have cancer, he or she may test your blood to:

Sue

My story begins with a routine yearly mammogram in April of 2020. I am currently a 25-year breast cancer survivor. So, regular mammograms are just a part of my yearly routine, a simple procedure that I endure yearly with no big issues to speak of ― until now. During the mammogram, they noticed enlarged lymph nodes. My doctor thought it was no big deal, and we would watch them for two weeks and then do another mammogram. I wasn’t worried. She explained that I could be fighting an infection or that I just had large lymph nodes as a normal thing.

Madeline

Being in a very close-knit family, we were devastated upon learning of our sister Madeline’s diagnosis of AML.  There were 4 of us girls and all 3 of us wanted to do anything to help our sister survive.  Our biggest challenge was staying positive and offering her and her family support. The 3 of us were tested and I was her perfect match.  I was overjoyed to be able to do this for her. Although my other sisters felt let down that they weren’t,  we were all constant support through her journey.

Jennifer

Jennifer of Hayward, CA, was diagnosed with myeloma (MM) in 2008. During this process, she endured a year of intense chemotherapy, followed by an autologous stem cell transplant where her own stem cells were harvested and reintroduced into her body on January 8, 2010.  This resulted in an extended hospital stay followed by radiation treatments.  She is currently in remission and remains under doctor’s care. After her diagnosis and treatments, she wanted to give back to others living with the disease.

Gabby

Her name is Gabriella Sarai. We call her Gabby! She is a feisty little four year old. She has been running circles around her two older brothers, her dad, and me since she was able to walk. She is the baby and the only girl. She gets away with a lot.

Nate

On Monday July 17, 2017 my world got flipped upside down. I got out of work to bring my son, Nate to the ER, he had a bad stomach ache, my thoughts were he might have appendicitis. When I got him to CCMC, he was in extreme pain and they took him in right away. Initially the docs thought the same, they did a bedside ultrasound to find the appendix and it could not be found. A few hours passed and I'm asked to step out the room. At that moment I knew that my life would never be the same... My son, my life, my everything was sick and this time a kiss and band aid wasn't going to fix it.

Art

I was living in San Jose and had gone walking with a friend in a local park that followed the stream. It was December 15, 2006. Tom noticed that I had difficulty climbing up the five-foot stream embankment that the path went through. I myself didn’t recall this. Ten days later while visiting my wife’s children in Fairfax, the children and I went on a trail as we always did on Christmas morning. I found myself badly winded and returned to their home while they continued the hike. Then I noticed that I was not attracted to the Christmas feast.

Allison

During the start of the pandemic, my boyfriend began working out from home with all the gyms being closed. While working out, he discovered a lump under his arm. We both waved it off as nothing to worry about, but he still asked his doctor about it just in case. His doctor wanted him to get it biopsied. I dropped him off for surgery, still naive that anything would actually be wrong. He wasn't showing symptoms, he was active and healthy, plus he was young. “We” were young. We were in love, talking about getting engaged, and just moved in together. What could go wrong?

Landon

My cancer journey began on June 24, 2018. A month before that day, I'd experienced chest pains, night sweats, and shortness of breath. After scheduling a doctor's appointment, my primary physician determined that it was merely an upper respiratory infection. For a week, I took the medicine prescribed by my doctor, hoping that I would soon feel well again. With little to no signs of improvement, I scheduled another appointment for Monday, June 25th. We didn't make it to that appointment, because on June 24th, I lost oxygen and passed out.

Mario

I’m a very simple guy. I’ve worked in the financial industry for almost 10 years, however, my passion is cooking. In 2019, I had just lost 225 lbs. I was preparing to go back to culinary school.

There was a family incident in March of that year, and it put a lot of stress on us. I kept developing a strong workout routine to really help me get on the right track.

Elissa

Ten years ago, my mother-in-law was diagnosed with stage 4 non-Hodgkin lymphoma (NHL). She has since been deemed cured and has had no recurrence since her successful treatment. Some of her medicines were funded by The Leukemia & Lymphoma Society (LLS). We spent years racing for Team In Training (TNT) to fundraise for LLS. 

Donna

I was shockingly diagnosed with a monoclonal spike in November 2019 (six months after the unexpected death of my mom). Treatment was started in June 2020. I went to Mt. Sinai NYC where they have a team that just deals with multiple myeloma (MM). I am grateful that a couple of people recommended I go there. They treated me with four drugs, one of which wasn’t available at my local oncologist. The regimen was Velcade, Revlimid®, daratumumab, and dexamethasone. I had this induction therapy until my stem cell transplant in March 2021.