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Supportive Care and Disease Complications

Supportive (palliative) care for myeloma helps manage the complications of the disease and the adverse side effects of the drugs used for treatment, including: 

Lori

Lori’s journey to becoming a Leukemia & Lymphoma Society (LLS) volunteer began back in 2002 through her own experience with being diagnosed with Myelofibrosis. Lori had just embarked on a new job as a real estate agent to a new home builder when she began to feel extremely tired and have pain in her hands. She chalked up her sickness to a case of the flu; however, after deciding to go to her doctor, he recommended some blood work which came back showing high white counts. Her doctor referred her to an Oncologist who did a bone marrow biopsy. The results showed she had Myelofibrosis.

Courtney

In March 2022, I began experiencing unusual symptoms of fatigue, nausea, persistent infections, and bloody noses and gums, but I didn’t think much of it. Following a lucky-timed appointment with my primary care doctor and multiple blood tests, I was diagnosed with acute lymphoblastic leukemia (ALL). Cancer isn’t something an otherwise “healthy” 27-year-old thinks will come out of a doctor’s mouth.

Lisa

As a new graduate with a master’s degree in psychology, I, among many others, am applying to jobs out in the 'real world.' Recently, one of the job applications asked me to describe myself in three words. My answer consisted of adjectives such as determined, capable and diligent. The one word that best describes me though is one I did not say, and that is survivor.

Kristen

In the fall of 2012, Kristen Comer noticed her energy level wasn't as high as it had been, but she thought nothing of it. It wasn’t until the fall of 2013 when she had unidentifiable bruises on her body and no change in her energy levels, that her general practitioner drew labs to determine a diagnosis. After three panels of blood work, Kristen was diagnosed with chronic myeloid leukemia (CML) on December 31, 2013.

Gianna

My story began nearly seven years ago on February 28 when I received the call from my doctor and heard those dreaded words, “You have cancer.” A week prior, I had gotten a lymph node biopsy for a lump that randomly grew on my neck. As a healthy 19-year-old, cancer was the furthest thing from my mind, and receiving a diagnosis of Hodgkin lymphoma (HL) was simply unbelievable to me and my family. Hearing this news began a three-week blur of diagnostic testing and meetings with oncologists, fertility specialists, and surgeons before my first chemotherapy treatment on March 23, 2015.

Trisha

In November 2019, Trisha and her husband were thrilled to have given birth to her second daughter. At this time, she went to visit her OBGYN for her 6-Week Postpartum Exam, and to her surprise, her doctor noticed she had an enlarged spleen and liver. She was immediately instructed to go to the emergency room, where she was admitted for one week. After a bone marrow biopsy, Trisha was diagnosed with plasma cell leukemia (PCL). Three days later, I went to another follow-up with my oncologist.

Essential Thrombocythemia

• Is a rare blood disease in which the bone marrow produces too many platelets. High numbers of platelets may lead to a thrombus, a blood clot that forms in a blood vessel.

Stem Cell Transplantation

Blood stem cells are produced in the marrow of the bones and can become any kind of blood cell the body needs. Stem cells are constantly dividing and maturing into different types of blood cells, replacing older and worn-out blood cells in the body. They produce billions of new blood cells every day. If the stem cells cannot make enough new blood cells, many serious health problems can occur. These problems may include infections, anemia or bleeding.

Side Effects

Cancer therapy for chronic myelomonocytic leukemia (CMML) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have any side effects.

Before you undergo treatment, talk with your doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.

Bone Marrow Tests

Your doctor uses a bone marrow test to examine the fluid and tissue in your marrow. The tests help determine whether cancer or another disease is affecting blood cells or marrow, as well as the extent of the disease. Some changes to blood cells can be detected in marrow samples before they can be seen in blood samples.

T-Cell Prolymphocytic Leukemia (T-PLL)

T-cell prolymphocytic leukemia (T-PLL) is an extremely rare and typically aggressive malignancy (cancer) that is characterized by the out of control growth of mature T-cells (T-lymphocytes). T-cells are a type of white blood cell that protects the body from infections. T-PLL affects older adults with a median age at diagnosis of 61 years, and it is more common in men than in women.

Lyra

Lyra is a confident three year old who spreads joy wherever she goes! She loves to sing, dance, draw, snuggle while reading stories and is rarely seen in anything but a princess dress. If you happen to pass Lyra at the store, she will most certainly ask you your name and probably tell you all about her favorite my little pony or what she ate for breakfast.

Stem Cell Transplantation

For some high-risk patients who are in remission, the doctor may recommend stem cell transplantation during the consolidation phase of chemotherapy.

Don

In January of 2016, my dad was diagnosed with stage 4 non-Hodgkin lymphoma (NHL). He was unresponsive to treatment. He went into remission, but it quickly came back. The clinic said they couldn’t do anything more, so he was referred to the University of Minnesota for a clinical trial. The treatment included me, as his daughter, donating my T-cells. The clinical trial was helpful but didn’t get the results he needed, and cancer came back.

Nancy

Being a lymphoma survivor means that you have lived through something very challenging. There is no doubt that cancer is one of the most challenging diseases. The treatments for this disease are very intense physically, mentally, and emotionally. As a retired oncology registered nurse, I saw the pain and desperation in the eyes and lives of my patients and their families. Never imagined that I was to become a cancer patient myself.

Todd

This cause is dear to me because my grandmother, Anne Zavorskas, passed away several years ago from Hodgkin’s disease--a form of leukemia. Also, many years ago, my mentor’s son, Ryan Hurley, had a recurrence of leukemia, which he was first diagnosed with at the age of three. He died at the age of 19. Unfortunately, leukemia at the time caused more deaths than any other cancer in children under the age of 20.  These instances led me to my desire to donate time and money to this particular charity. I have volunteered my time and fundraising expertise ever since.

Non-Hodgkin Lymphoma

• Is a type of cancer that generally develops in the lymph nodes and lymphatic tissue found in organs such as the stomach, intestines or skin. In some cases, NHL involves bone marrow and blood.
• Isn't just one disease–it's actually a diverse group of blood cancers that all arise from lymphocytes (white blood cells that are part of the immune system).
• Lymphoma cells may develop in just one place or in many sites in the body.
• NHL has many different subtypes which are either indolent (slow-growing) or aggressive (fast-grow

Are Clinical Trials Safe?

U.S. clinical trials are designed to give patients the safest, potentially most effective clinical therapies. Clinical trials are conducted once researchers have shown in the laboratory and in animal research that a particular study treatment has a good chance of offering better outcomes for people with a specific disease.

Patients enrolled in cancer clinical trials are never treated as “guinea pigs.” In fact, patients are given either

Side Effects

Cancer therapy for non-Hodgkin lymphoma (NHL) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.

Before you undergo treatment, talk with your doctor about potential side effects. In recent years, new drugs and other therapies have increased the ability to control side effects.

Reduced-Intensity Allogeneic Stem Cell Transplantation

Reduced-intensity allogeneic stem cell transplantation (sometimes called mini-transplant or nonmyeloablative transplant), like a standard allogeneic stem cell transplantation, uses stem cells from a donor, but the conditioning treatment contains lower, less toxic doses of chemotherapy and radiation. This type of SCT may be an option for certain patients who are older or who are otherwise not healthy enough or strong enough to undergo standard allogeneic SCT.

Fertility

“Fertility” describes the ability to conceive a biological child. Human reproduction requires three elements: mature sperm, mature eggs and a person with a uterus to carry the pregnancy and give birth. Some cancers and some cancer treatments affect fertility.

Diagnosis

Diagnosing hairy cell leukemia usually involves a series of tests, including blood tests and bone marrow tests.

Brenda

Hello, my name is Brenda. I am 26 years old and have been in remission for three years now. Back in the very beginning of 2015, I started getting sick. I had been working in a daycare for a few months, so I just figured it was a cold. I didn’t get better. I eventually reached the point where I couldn’t breathe, and I was burning up, so I was taken to the hospital. That was the morning I will never forget. I was diagnosed with acute myeloid leukemia (AML). Getting the news that you have cancer isn’t an easy thing to believe. At first, you’re skeptical.

Sonia

In an instant, my life changed. “You have chronic lymphocytic leukemia (CLL). There is no cure but patients can live for several years.” These were the words I received a few years ago at the age of 39 with three small children. I have been on an educational journey of self-discovery, cancer research, and patient advocacy ever since.