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Co-Pay Assistance Program

Contact Us: (877) 557-2672 | FinancialAssistance@lls.org

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Big Changes Coming to Medicare Part D in 2024-2025

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Co-pay covers more than you think, including insurance premiums. Learn MoreImage removed.

Our programs are currently experiencing higher-than-normal call volumes, claims, and application submissions. Our number one priority is to provide timely support to our patients, caregivers, pharmacies, and healthcare providers seeking financial assistance. We are working as quickly as possible to take care of all pending requests, please allow additional time for your documents to be reviewed.

LLS is committed to removing the barriers patients face in accessing care. We understand that the LLS Co-Pay Assistance Program helps to remove some of those barriers. We hear you; we know that lack of funding to cover your co-pays for medical expenses and/or insurance premiums adds to the stress and anxiety brought on by the financial burden of your diagnosis. We know you are struggling, and we are working to secure funding to help more patients and while doing so we continue to support those enrolled in our co-pay program.

We encourage you to continue to check our website for updates on available funding.

To access this page in Spanish, click here.

Funding for the Co-Pay program is provided by pharmaceutical and biotech companies and is not supported by other sources of revenue including our fundraising campaigns such as Team In Training, Light The Night, Student Series, Leukemia Cup Regatta, Man & Woman of the Year, or Student of the Year. These campaigns support LLS’ patient education, support services, advocacy, and research.

A fund that is “fully subscribed” is at maximum capacity, serving those enrolled, and is not enrolling additional patients (new or renewal patients). We do not keep a waitlist and encourage all to continue to check the website for updates.

APPLY NOW

Please note: Changes to funds are reflected on this webpage as quickly as possible. For up-to-the-minute fund status, please call (877) 557-2672. If you started an application prior to a fund becoming fully subscribed, please continue with the application.

Status Fund Covered Diagnoses

Maximum Patient Award

Fully subscribed and closed to enrollment

 Acute Lymphoblastic
 Leukemia  (ALL)

 

  • Acute lymphoblastic leukemia (ALL)
$3,500
Fully subscribed and closed to enrollment

Acute Myeloid
 Leukemia  (AML)

 

  • Acute myeloid leukemia (AML)
  • Acute promyelocytic leukemia (APL)
  • BPDCN
  • Erdheim Chester Disease
  • Mast cell leukemia
  • Mastocytosis
$4,000
Open for enrollment  Chronic Lymphocytic
 Leukemia  (CLL)*
  • Chronic lymphocytic leukemia (CLL/SLL)
  • B-cell prolymphocytic leukemia (B-PLL)
  • Hairy cell leukemia (HCL)
  • Large granular lymphocytic leukemia (LGL)
$4,500
Fully subscribed and closed to enrollment  Chronic Myeloid
 Leukemia (CML)
  • Chronic myeloid leukemia (CML)
$2,000
Fully subscribed and closed to enrollment  Lymphoma
  • Hodgkin lymphoma (HL)
  • All Non-Hodgkin lymphomas (NHL)
  • Lymphomatoid papulosis
  • Post-transplant lymphoproliferative disorder or PTLD

 

$4,000
Open for enrollment  Mantle Cell
 Lymphoma (MCL)
  • Mantle cell lymphoma (MCL)
$4,000
Open for enrollment  Myelodysplastic 
 Syndromes (MDS) 
  • Myelodysplastic syndromes (MDS)
  • Chronic myelomonocytic leukemia (CMML)
  • Juvenile myelomonocytic leukemia (JMML) (diagnosis formerly known as chronic myelomonocytic leukemia of infancy [CMML])
  • MDS/MDP overlap syndrome 
$3,500
Open for enrollment  Myeloma
  • Myeloma/multiple myeloma (MM)
  • Plasma cell leukemia or plasma cell myeloma
  • POEMS syndrome
  • MGUS
$5,000
Fully subscribed and closed to enrollment  Myeloproliferative   Neoplasms (MPN)
  • Myelofibrosis (MF)
  • Essential thrombocythemia (ET)
  • Polycythemia Vera (PV)
  • Chronic Neutrophilic Leukemia (CNL)
  • Chronic Eosinophilic Leukemia (CEL)

Philadelphia Chromosome Negative Myeloproliferative Neoplasms only.

$4,000
Fully subscribed and closed to enrollment

 Waldenström 
 Macroglobulinemia 

 (WM)

  • Waldenström 
    macroglobulinemia (WM)
$4,000

As a non-profit organization, we rely on the generosity of our sponsors. Program continuation is dependent on the availability of funds and the program could be modified or discontinued at any time if funding is limited or no longer available. Please visit our website in the future to become aware of new funding.

*Based upon historical and recent trends, we anticipate that the CLL Co-Pay fund will be open through the winter of 2024. 

The Inflation Reduction Act highlights changes in Medicare for 2024 and 2025:

  • For Medicare plan year 2024 patients will see a new limit on their cost-sharing for their Part D drugs
    • If a patient is taking exclusively brand drugs: they will reach the out-of-pocket cap at around $3,300. 
    • If a patient is taking exclusively generic drugs: they will reach the out-of-pocket cap at $8,000.
  • Starting in 2025 there will be a new $2,000 annual cap on Medicare patients’ out-of-pocket prescription drug costs

Those enrolled in the program before January 1, 2024, will keep their current award amount. Awards approved after 1/1/24 will receive the new award amounts. 

Additional Resource Links:  

https://www.cms.gov/inflation-reduction-act-and-medicare

https://www.cms.gov/files/document/10522-inflation-reduction-act-timeline.pdf
 

We can help pay for:

  • Medical insurance premiums
  • Treatment-related co-pays, deductibles, and co-insurance (for expenses covered by the program)
  • Co-pays for prescription medication related to prescribed treatment
  • Co-pays for non-diagnostic labs, scans, and tests.

LLS can pay your provider directly or reimburse you for payments already made. You have complete freedom to choose doctors, providers, suppliers, insurance companies and treatment-related medications. You can make changes to these at any time without affecting your continued eligibility.

*Updated* Click here for a list of covered and non-covered expenses.

To be eligible for Co-Pay Assistance, you must

  • Be a United States citizen or permanent resident and reside in the U.S. or a U.S. territory.
    • Members of the U.S. military, diplomats, etc. who may be serving overseas, must have a U.S. address and use it on the application.
  • Have a household income that is at or below 600 percent of the U.S. federal poverty guidelines as adjusted by the Cost of Living Index (COLI). You will be asked for your zip code to determine your COLI.
  • Have medical insurance 
  • Have a blood cancer diagnosis confirmed by a doctor
    • The patient must be in active treatment, scheduled to begin treatment, or is being monitored by their doctor.
    • For members of the U.S. military, diplomats, etc. who may be serving overseas, the healthcare provider attesting to the diagnosis must have a National Provider Identification (NPI) number and use it on the application.

You may call (877) 557-2672 to speak with an Intake Specialist who can walk you through the application process. If you prefer to apply on your own, please refer to the information below.

STEP 1: Gather the following information. 

  • The patient's demographic information (including their Social Security number and date of birth) and their contact information.
    • If the patient is a minor, you will need a guardian Social Security number as well.
  • The name of your diagnosis.
  • Estimated household financial income.
  • Insurance card, as well as Medicare/Medicaid.
  • The name of your pharmacy and its phone/fax numbers.
  • The name of treating physician and their phone/fax numbers.

This information will not be shared and is for verification purposes only.

*Healthcare Professionals (HCP) applying on behalf of a patient will be asked for their NPI and tax ID.

 

In the event that you are unable to get your doctor to sign off on the Diagnosis Verification Form for your application, we will accept a portion of your electronic medical record (EMR) or other documentation that shows the diagnosis/ICD-10 code.

 

STEP 2: Register and/or Apply

LLS offers patients, caregivers, pharmacies, and healthcare providers two easy ways to register/apply:  

By Phone: (877) 557-2672
Monday to Friday, 8:30 a.m. to 5:00 p.m.

OR

Co-Pay Online: Online portal 
24/7, Available in English only
 

If you do not have an LLS Financial Assistance Copay Portal Account:

If this is your first time visiting the LLS Financial Assistance Copay Portal, you will need to register before you can start the online application. To create a portal account :

  • Complete the registration form in the LLS Financial Assistance Copay Portal and submit.
  • Receive confirmation email (typically within 5 minutes of submitting) and click on the link provided to create a password.
  • Create password
  • Log on to the LLS Financial Assistance Copay Portal using newly created password.
  • Begin application process. All required fields must be completed.
  • Upon completing your application, submit for review.

If you already have an LLS Financial Assistance Copay Portal Account:

If you are returning to the LLS Financial Assistance Copay Portal, please log in, select Co-Pay Assistance Program, and fill out required fields.

Need Help?

For portal technical support, please call us at (877) 557-2672 or e-mail financialassistance@lls.org.

Approved patients must submit a claim for a covered expense every 90 days to keep their accounts active.

How to Submit a Claim

Click here to view our claim videos that provide step-by-step instructions on how to submit a claim

 

You may also contact the Co-Pay Assistance Program at (877) 557-2672 for instructions on how to submit a claim.

As a charity, LLS is exempt from federal income tax and individuals who receive assistance from a charity to meet their personal needs do not generally have to pay federal income tax on the value of the assistance they receive. With this being said it should not affect their ability to receive financial assistance from the government or affect their income taxes. 

The Leukemia & Lymphoma Society
Co-Pay Assistance Program 
P.O. Box 12268
Newport News, VA 23612

Email: FinancialAssistance@LLS.org
Toll Free Phone: (877) 557-2672
Fax: (877) 267-2932

We would love to hear how the financial assistance provided by LLS has helped you. Patient stories help us illustrate the impact and importance of this program in the lives of blood cancer patients.

Submit a Story 

To submit a story by mail, please send to:

The Leukemia & Lymphoma Society
Patient Financial Assistance Programs
3 International Drive, Suite 200, Rye Brook, NY 10573

Thank you for sharing!