Search Results

Keisha

In 2017, I was diagnosed with a rare and chronic form of non-Hodgkin lymphoma (NHL). I was beyond devastated as I knew there was no cure for my condition, and I also knew my life would be altered in many ways. I was also finishing my last semester in graduate school and almost gave up my dream of graduating. But with the support of my family, school, physicians, and The Leukemia & Lymphoma Society (LLS), I persisted and received my Master of Education in 2018.

Brooke

In September 2014, just shy of four months after college graduation, I was blindsided sitting in the emergency room at Duke Hospital.

Christine

My father, Alan Schwall, was diagnosed with acute myelogenous leukemia (AML) at the very start of my sophomore year in college -- in the fall of 2006 when he was only 51 years old. He always had knee issues, but the summer between my freshman and sophomore year at college, he developed a swollen leg/knee and other problems that made it hard for him to walk at times.

Lynette

It all started with a race...  I began running back in 2011 with the sole purpose of losing weight.  I joined a running group and became interested in races, specifically the Nike Women's Half Marathon.

Maria

By the end of November 2008, I started feeling an overwhelming fatigue. I developed a fever and my physician sent me urgently to the emergency room. There I was found to be depleted of blood and needed a transfusion. It seemed so unreal.

After a couple of days and a bone marrow biopsy, I was diagnosed with acute myeloid leukemia (AML). I learned that if I had not sought help in the ER, I could had died.

Beth

Shortly after Thanksgiving of 2008, I started feeling sick and extremely weak. By late January of 2009, I was diagnosed with stage IV aggressive Burkitt’s lymphoma.

Lorri

In February, 2015 I got fever that would not go away. I figured it was the flu, even though I had the flu shot earlier that year. I just assumed it wasn’t effective. I continued to keep my daily routine including work and even hiking, but I felt so tired and ill. After several visits to a variety of healthcare facilities, I still didn’t hear the “C" word yet.

Lyra

Lyra is a confident three year old who spreads joy wherever she goes! She loves to sing, dance, draw, snuggle while reading stories and is rarely seen in anything but a princess dress. If you happen to pass Lyra at the store, she will most certainly ask you your name and probably tell you all about her favorite my little pony or what she ate for breakfast.

Jack

Jack is a particularly big fan of the Leukemia & Lymphoma Society.  His is an active Patient Advocate managing a local support group for patients and caregivers interested in his rare blood cancer, he participates in LLS' First Connection program, has helped with LLS' Team in Training and Light the Night recruiting efforts.  He received LLS' appreciation award "For Outstanding Commitment and Support of Advocacy and Patient Quality of Life" in June 2104.

Melissa

I want to tell you about my hero, my wife, Melissa. She is service-focused from the time she gets out of bed until the time she returns. She's been a part of Team In Training for the past three years and has raised well into five figures to help others. That's what made her Hodgkins lymphoma diagnosis all the more ironic.

Vonshel

Hi, my name is Von, and back in 2008, I was diagnosed with breast cancer. I didn't want to die, but prayer and God sent me right to the perfect doctor: Dr. Moran from Brunswick, GA. I got through chemotherapy and radiation with a breeze, and I'm now in remission for 13 years.

Caitlin

In June 2016, I was diagnosed with a super rare form of leukemia called Blastic Plasmacytoid Dendritic Neoplasm (BPDCN).

At the time I was 12 years old, just graduated sixth grade and was looking forward to entering middle school. 

During one of my gymnastics practices, while doing a dismount off the beam, I hit my ankle really hard which caused it to bruise. The bruise formed into a lump so my mom took me to my pediatricians who then referred us to my hospital, where I received a skin biopsy and was diagnosed with cancer a week later. 

Anasia

I was diagnosed at 26 years old with T-cell lymphoblastic leukemia (T-ALL) in June 2022. I was still a newlywed having married my best friend in 2021 and was a mom of two boys (ages three and one).

I began experiencing symptoms in May 2022 and didn't think it was anything other than stress ― until they became unbearable. Losing unintentional weight, having night sweats, a swollen face, and chest pain ― my husband knew something wasn't right. We waited in the ED for hours before being seen and having several tests run.

Paul

In 2001, I described my health as excellent. I had a great job, was very physically active, and participated in a number of nonprofit activities. However, I very occasionally experienced extreme abdominal cramps that caused nausea and curling into a fetal position for approximately five hours. Doctors were perplexed, though suspected gallstones.

Liz

In December 2010, my fiancé, Darla, was diagnosed with stage 4 small B-cell lymphoma (NHL). Her doctors developed a plan to start her on chemotherapy as soon as possible. She became very sick over the next couple of weeks. When she went to her first treatment three weeks after diagnosis, they could not administer the chemotherapy due to her being so ill. They put it off for a day and began Rituxan® treatment the next morning. She began having an allergic reaction to the drug. They stopped the treatment and tried to stabilize her, but later that evening, she passed away.

Isabelle

I was diagnosed with acute lymphoblastic leukemia (ALL) on December 4, 2003, at the age of five. As a young child, I was very energetic and loved to do anything outdoors and active, and I especially loved a good competition with my older brother Harrison. My parents began noticing that something was off when I started complaining about not being able to walk up the big hills in San Francisco where we lived. This was very uncharacteristic of me as I loved to race my brother to the top.

J.J.

The first time I remember hearing of The Leukemia & Lymphoma Society (LLS) was through Team In Training (TNT), specifically from a brochure I picked up at a bike shop that invited one to train for a 109-mile bike ride with TNT. It was 2007, and I thought it sounded like a blast. I convinced my girlfriend at the time, Stacey, to join me. We used the occasion to buy some fancy new bikes. With some fundraising and committed training dates, we would be able to say we had done a Century Bike Ride! Cool!

Zariyah

Zariyah was diagnosed with acute lymphoblastic leukemia (ALL) on May 9, 2016. She had just turned three years old the previous November. She was immediately admitted to Montefiore Children's Hospital when her blood test results came back as positive for leukemia. Her blood levels were three when they were supposed to be 11. They actually almost sent us home stating that whatever was causing her illness was viral. I requested that blood be taken and tested because I just knew it had to be more than just a cold or flu.

Sara

In May 2019, I was surprised and delighted to find out that I was pregnant. Throughout the summer, I eagerly delved into extensive reading and research on pregnancy and the first-time mom experience. However, this period also brought about a challenging early pregnancy. I found myself short of breath after even short walks, relied on numerous naps, and surprisingly didn't experience intense pregnancy cravings. In fact, I wasn't gaining much weight.

Julie

March 22, 2020- 7 years since acute myeloid leukemia (AML) diagnosis, CURED!!! I am so blessed to be alive to celebrate my 7th year since diagnosis of AML! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling to cancer stats which is something I highly discourage. The first problem with AML stats specifically-the mean DX age of 68ish.

Edie

My warrior daughter Edie entered the world on July 30, 2016 with eyes wide open ready to soak it all in and leave behind her indelible mark. From early on, we knew we had our hands full. Our first months as new parents were filled with the usual sleepless nights and anxiety, but Edie had a special way of keeping us on our toes. Our wide-eyed beauty did not take kindly to naps or bedtime, fighting vigorously to have her way, but we soon realized this was Edie’s world and we were just living in it.

Hodgkin Lymphoma Subtypes

The World Health Organization (WHO) divides Hodgkin lymphoma into two main subtypes. They are:

Treatment

Every patient’s situation should be evaluated individually by a hematologist-oncologist who specializes in treating MDS and who will discuss the disease subtype, prognostic factors and treatment options with the patient. It is also important to seek treatment at a center that has experience in treating MDS. 

Doctors use several types of approaches and treatment combinations for MDS:

Stem Cell Transplantation

An allogeneic stem cell transplantation is a treatment that uses stem cells from a healthy donor to restore a patient’s bone marrow that is damaged or diseased after receiving high doses of chemotherapy and/or radiation therapy. Allogeneic stem cell transplantation remains the only potential cure for MDS. 

Managing Side Effects

Work closely with your doctor and cancer care team to prepare yourself with information about what to expect and how to cope with side effects.  For some patients, side effects may last well after treatment is completed or may be permanent. For most patients, side effects are temporary and go away when the body adjusts to therapy or once treatment ends. On the other hand, some patients suffer symptoms that may require hospitalization until they subside.

Reactions to treatment vary from patient to patient. Reactions also vary depending on: