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Diagnosis

While certain signs and symptoms may indicate that a person has ET, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to: 

  • Estimate how the disease will progress
  • Determine the appropriate treatment

Some of these tests may be repeated both during and after treatment to evaluate its effectiveness.

How to Enforce Your Legal Rights

If you suspect that you are being treated differently at work because of your cancer history, consider an informal solution before leaping into a lawsuit. You want to stand up for your legal rights without casting yourself as a troublemaker.

If you face discrimination, consider the following suggestions:

Side Effects

Both cancer therapy and acute myeloid leukemia (AML) can sometimes produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.

Talk with your child’s doctor about potential side effects. Medications and other therapies can prevent or manage many side effects.

KC

Keith

Hi! My name is Keith. I’m currently 37 years old. I was diagnosed on November 6, 2015, with diffuse large B-cell lymphoma (DLBCL). My wife, Tesia, was proudly serving in our finest Navy at the Pentagon when I received the news. She came home, and I had to deliver the news to her. It was rough; it was scary; it was a blur. I felt like I was on autopilot.

Carter

Carter

In May 2019, when Carter was just two years old. While attending his cousin’s graduation in New York City, I knew something was not right because he was not feeling well. We rushed him to New York Presbyterian Hospital where he received several blood and platelet transfusions. He was then transferred to Cornell Medical Center where many tests were performed that resulted in the diagnosis of acute lymphoblastic leukemia (ALL). When we heard those three word’s Carter has cancer, we did not expect that news!

Joan

Joan

What a beautiful wedding, a beautiful bride, and a handsome groom. Love was in the air. For 10 weeks this lovely couple lived in their honeymoon state of mind. They had been blessed with the ability to buy a small condo that they filled with dreams and aspirations of what was to come. Miranda was her name. She was physically very petite but oversized in her desire to be the best wife ever to Joe. Her long, dark hair emphasized those large, dark eyes and creamy clear skin. Ten weeks later, the diagnosis was leukemia. She took it as her personal challenge to do what she must to survive.

young white woman in a TNT shirt and race number and a sequined skirt with survivor written on her leg standing next to young white man with a black Nike hat beard and mustache

Jacqueline

After a year of misdiagnoses, I was diagnosed with stage 3 Hodgkin lymphoma (HL) on Valentine's Day 2007 when I was 22 years old. I had to take medical leave from my senior year of college to move home with my parents to undergo treatment in Albany, New York. After seven months of chemo, I was in remission and have been since!

stage 2A Hodgkin lymphoma (HL)

Virginia

Last August I was diagnosed with stage 2A Hodgkin lymphoma (HL). I was going into my senior year, but instead of going to my first day of school, I had to go to my first day of chemotherapy. In October, after two full cycles of chemo, I got to ring my cancer-free bell and begin my recovery process. Today, I am in the process of growing back all my red hair and training to play Division One soccer at George Mason University in the fall.

David stage 4 Hodgkin lymphoma (HL)

David

I am a proud, 52-year-old stage 4 Hodgkin lymphoma (HL) survivor now living in Los Angeles again (my long-time home). I was living in Cleveland to help with some family matters for a couple of years. I found a great new job in Los Angeles, and the very day I accepted the new job, I received my diagnosis (August 25, 2022). That put my life on hold.

Hodgkin lymphoma (HL)

Andrew

My son, Andrew, was diagnosed with Hodgkin lymphoma (HL) in January 2022. He had been very tired for months, and we had a frustrating few months while our primary care physician (PCP) missed his diagnosis and chalked it up to being a busy teen and perhaps needing a sleep study. When he was finally diagnosed, he was stage 4. He underwent six months of intense chemotherapy. Mid-treatment scans showed a complete response, and we were excited and relieved. His post-treatment PET scan, however, showed recurrence.

primary lymphoma of the bone (PLB)

Kate

In April 2023, I went to the doctor for an MRI for what I thought was a torn meniscus in my left knee. Unfortunately, that MRI showed that there was a growth on my left femur. After two full months of testing, surgery, and some more testing, I was officially diagnosed with primary lymphoma of the bone (PLB). This type of lymphoma is pretty rare, so I immediately turned to The Leukemia & Lymphoma Society (LLS) for resources and guidance on how to navigate the scariest time of my life. The next month of my life was a whirlwind.

maddox

Maddox

Maddox's journey began in October 2015 when he first started showing signs of being sick at just three years old.  He had a tummy ache one day and a few bruises on his arms and legs, both of which we thought we had explanations for.  It wasn't until he experienced a nose bleed at daycare and had an extraordinarily whiny day on a field trip, that I started to wonder if something else was going on.

Valerie

Valerie

I was a nurse prior to getting diagnosed with cancer. When I was working  I wondered to myself, how are my patients so strong laying in that hospital bed? Little did I know I was going to be one. At age 24, back in 2013, I was diagnosed with acute lymphoblastic leukemia (ALL). Months before I just had a small lump on my neck and thought it would go away, but I decided to check out what was going on.  

Jason T

Jason T.

My name is Jason T. Quimby and I am the proud past caregiver of my wife and ALL survivor Susana Moro. In November 2016, my wife, was diagnosed ALL leukemia ph+ and admitted to the Miami Cancer Institute South Miami Campus to start her pediatric chemo protocol. Needless to say that for a forty-something mother of three teenage girls this was a huge personal and family challenge to overcome.

eileen

Eileen

To say that I have always been daddy's little girl would be the biggest understatement. Everything from school dances to projects in the garage, I could always be found by my dad's side. In 2009, my dad was diagnosed with acute myeloid leukemia (AML).

Jim & Leslie

Jim & Leslie

Jim and Leslie Donigan have been married for almost 50 years. Currently retired with three adult children, they have both faced a cancer diagnosis, but are in remission today.

In October of 2003, Leslie was diagnosed with a stomach cancer called GIST (Gastrointestinal Stromal Tumors) and was told it was terminal. But then her doctor tried a medication intended for blood cancer—and it worked.

barrie

Barrie

My story start’s the week after Christmas, I went to my family physician for my yearly physical and blood work. All came back good. I also schedule my first colonoscopy. All was good again except I been getting out of breath doing minor activities and short walks. My family physician suggested that maybe I try more exercise and walking during my breaks.

elyssa

Elyssa

My daughter, Elyssa donated her hair for children with cancer only months before she herself was diagnosed with Hodgkins lymphoma. Upon her diagnosis, she had the rest of her hair put in ponytails and had it cut to her scalp so the rest could be donated.

Being diagnosed in her first year of college at University of Connecticut, she immediately went to the disabilities office and applied so she could continue with the semester.

Heather Banks Volunteer

Heather

Heather Banks draws her inspiration from her good friend, who has been fighting non-Hodgkin's Lymphoma for the past 10 years and her college best friend who is a survivor. She is motivated by her friends’ strength, determination, and positivity. In times of feeling helpless, she channels that energy and puts it into her sewing machine.  

GB

Gena

I am 28 years old and a two-time cancer survivor. My life has come full circle many times, and I am here to share my story to inspire and help others to heal themselves.

My story begins when I was 3½ years old. I was diagnosed with acute lymphoblastic leukemia (ALL). At the time, I was treated at Schneider's Children's Hospital, now Cohen's Children's Medical Center. This was a long and tough battle with rounds of chemotherapy. I almost did not make it. Thank God I had the most loving support system which helped me get through the battle.

little white girl in a yellow shirt and pink skit with butterflies on it wearing a hat and holding up a sign that says honk if you want a cure for cancer

Hadley

My granddaughter Hadley was three years old when she suddenly started limping in pain and was unable to bear weight on her right leg. Forty-eight hours and three medical appointments later, her bloodwork showed acute lymphocytic leukemia (ALL). It was a nightmare that came out of nowhere.

Israel

Israel

I am 39 years old, a father of two boys and one girl ― Abdias, 12 years old; Ester, 10 years old; and Ben, 9 years old ― and a husband to my wife Erin for almost 14 years.

On August 14, 2021, I suffered a serious knee injury playing basketball which inadvertently led to revealing I had a blood cancer called chronic myeloid leukemia (CML). Suddenly, instead of prepping for knee surgery, I was sent to the hospital and received an official diagnosis on September 9 after a bone marrow biopsy and what felt like a million tests.

Follow-Up Care

Those who have been treated for MDS are encouraged to:

Signs and Symptoms

Essential thrombocythemia (ET) is often detected during a routine blood test before an individual has any symptoms.

The signs and symptoms of ET are linked to high platelet counts that cause the development of a thrombus (blood clot). The symptoms include:

Resources for Survivors

Survivorship Workbook

Use this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.