Search Results

Keisha

In 2017, I was diagnosed with a rare and chronic form of non-Hodgkin lymphoma (NHL). I was beyond devastated as I knew there was no cure for my condition, and I also knew my life would be altered in many ways. I was also finishing my last semester in graduate school and almost gave up my dream of graduating. But with the support of my family, school, physicians, and The Leukemia & Lymphoma Society (LLS), I persisted and received my Master of Education in 2018.

Brooke

In September 2014, just shy of four months after college graduation, I was blindsided sitting in the emergency room at Duke Hospital.

Christine

My father, Alan Schwall, was diagnosed with acute myelogenous leukemia (AML) at the very start of my sophomore year in college -- in the fall of 2006 when he was only 51 years old. He always had knee issues, but the summer between my freshman and sophomore year at college, he developed a swollen leg/knee and other problems that made it hard for him to walk at times.

Lynette

It all started with a race...  I began running back in 2011 with the sole purpose of losing weight.  I joined a running group and became interested in races, specifically the Nike Women's Half Marathon.

Maria

By the end of November 2008, I started feeling an overwhelming fatigue. I developed a fever and my physician sent me urgently to the emergency room. There I was found to be depleted of blood and needed a transfusion. It seemed so unreal.

After a couple of days and a bone marrow biopsy, I was diagnosed with acute myeloid leukemia (AML). I learned that if I had not sought help in the ER, I could had died.

Beth

Shortly after Thanksgiving of 2008, I started feeling sick and extremely weak. By late January of 2009, I was diagnosed with stage IV aggressive Burkitt’s lymphoma.

Lorri

In February, 2015 I got fever that would not go away. I figured it was the flu, even though I had the flu shot earlier that year. I just assumed it wasn’t effective. I continued to keep my daily routine including work and even hiking, but I felt so tired and ill. After several visits to a variety of healthcare facilities, I still didn’t hear the “C" word yet.

Lyra

Lyra is a confident three year old who spreads joy wherever she goes! She loves to sing, dance, draw, snuggle while reading stories and is rarely seen in anything but a princess dress. If you happen to pass Lyra at the store, she will most certainly ask you your name and probably tell you all about her favorite my little pony or what she ate for breakfast.

Jack

Jack is a particularly big fan of the Leukemia & Lymphoma Society.  His is an active Patient Advocate managing a local support group for patients and caregivers interested in his rare blood cancer, he participates in LLS' First Connection program, has helped with LLS' Team in Training and Light the Night recruiting efforts.  He received LLS' appreciation award "For Outstanding Commitment and Support of Advocacy and Patient Quality of Life" in June 2104.

Melissa

I want to tell you about my hero, my wife, Melissa. She is service-focused from the time she gets out of bed until the time she returns. She's been a part of Team In Training for the past three years and has raised well into five figures to help others. That's what made her Hodgkins lymphoma diagnosis all the more ironic.

Vonshel

Hi, my name is Von, and back in 2008, I was diagnosed with breast cancer. I didn't want to die, but prayer and God sent me right to the perfect doctor: Dr. Moran from Brunswick, GA. I got through chemotherapy and radiation with a breeze, and I'm now in remission for 13 years.

Caitlin

In June 2016, I was diagnosed with a super rare form of leukemia called Blastic Plasmacytoid Dendritic Neoplasm (BPDCN).

At the time I was 12 years old, just graduated sixth grade and was looking forward to entering middle school. 

During one of my gymnastics practices, while doing a dismount off the beam, I hit my ankle really hard which caused it to bruise. The bruise formed into a lump so my mom took me to my pediatricians who then referred us to my hospital, where I received a skin biopsy and was diagnosed with cancer a week later. 

Anasia

I was diagnosed at 26 years old with T-cell lymphoblastic leukemia (T-ALL) in June 2022. I was still a newlywed having married my best friend in 2021 and was a mom of two boys (ages three and one).

I began experiencing symptoms in May 2022 and didn't think it was anything other than stress ― until they became unbearable. Losing unintentional weight, having night sweats, a swollen face, and chest pain ― my husband knew something wasn't right. We waited in the ED for hours before being seen and having several tests run.

Paul

In 2001, I described my health as excellent. I had a great job, was very physically active, and participated in a number of nonprofit activities. However, I very occasionally experienced extreme abdominal cramps that caused nausea and curling into a fetal position for approximately five hours. Doctors were perplexed, though suspected gallstones.

Liz

In December 2010, my fiancé, Darla, was diagnosed with stage 4 small B-cell lymphoma (NHL). Her doctors developed a plan to start her on chemotherapy as soon as possible. She became very sick over the next couple of weeks. When she went to her first treatment three weeks after diagnosis, they could not administer the chemotherapy due to her being so ill. They put it off for a day and began Rituxan® treatment the next morning. She began having an allergic reaction to the drug. They stopped the treatment and tried to stabilize her, but later that evening, she passed away.

Hodgkin Lymphoma Subtypes

The World Health Organization (WHO) divides Hodgkin lymphoma into two main subtypes. They are:

Treatment

Every patient’s situation should be evaluated individually by a hematologist-oncologist who specializes in treating MDS and who will discuss the disease subtype, prognostic factors and treatment options with the patient. It is also important to seek treatment at a center that has experience in treating MDS. 

Doctors use several types of approaches and treatment combinations for MDS:

Stem Cell Transplantation

An allogeneic stem cell transplantation is a treatment that uses stem cells from a healthy donor to restore a patient’s bone marrow that is damaged or diseased after receiving high doses of chemotherapy and/or radiation therapy. Allogeneic stem cell transplantation remains the only potential cure for MDS. 

Managing Side Effects

Work closely with your doctor and cancer care team to prepare yourself with information about what to expect and how to cope with side effects.  For some patients, side effects may last well after treatment is completed or may be permanent. For most patients, side effects are temporary and go away when the body adjusts to therapy or once treatment ends. On the other hand, some patients suffer symptoms that may require hospitalization until they subside.

Reactions to treatment vary from patient to patient. Reactions also vary depending on:

How to Find a Treatment Center

A number of resources are available to help you find a treatment center. Your primary care doctor may be able to provide a referral or you can use doctor and insurance referral services.

The National Cancer Institute (NCI) supports a national network of cancer centers. Each center must meet specific scientific, organizational and administrative criteria. See a list of NCI-approved cancer centers.

The following organizations can also help:

Survivorship

Use this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.

Talking With Members of Your Oncology Team

Ask your oncology team about the fertility effects of your treatment. By having this information before treatment begins, you can consider the options most likely to preserve your fertility. You can also ask for a referral to a fertility specialist to help you understand and explore your options. Fertility specialists include:

Pregnancy and Breastfeeding

Most people of childbearing age who have been treated for cancer and are able to conceive can go on to have low-risk pregnancies and healthy babies. Patients should be able to become pregnant if treatment did not affect their ovaries or uterus, and there are no other medical issues that may impact fertility. Before you try to become pregnant, talk with your treatment team about your medical readiness for pregnancy. You may also want to have a fertility assessment by consulting with a doctor called a “reproductive endocrinologist.”

Bereavement

Losing a child is possibly the most difficult thing a parent can experience. Grief can affect each person emotionally, physically, cognitively and behaviorally. Many people express grief in an outward way; for example, crying, a lack of energy or trouble sleeping. Others, on the surface, may not seem to be grieving. Instead, these people process grief internally. Their grief may go unrecognized and unacknowledged. Be aware that grief is personal and specific to the person. Try not to make judgments about how you, your co-parent or others process the loss of your child.

Nausea and Vomiting

Many cancer treatments can cause nausea and vomiting. Nausea, also called feeling “queasy” or “sick to your stomach,” is that unpleasant feeling you have when you are going to throw up. Vomiting is throwing up what is inside your stomach through the mouth. Nausea and vomiting can happen together, or one can occur without the other. The severity of nausea and vomiting varies among patients. Sometimes these side effects improve as you adjust to treatment, and most side effects go away after treatment ends.