Inspirational Stories
Sonia
blood cancer
I am a two-time cancer survivor, first diagnosed in 2004. Fortunately, I received treatment at Rush University Medical Center, a teaching hospital closely affiliated with The Leukemia & Lymphoma Society (LLS). During my initial treatment, I underwent CHOP chemotherapy alongside the groundbreaking drug Rituxan® discovered through LLS research. My doctor explained how Rituxan® would ensure my survival, sparking my curiosity, and leading to a meeting with a representative from LLS. The gratitude I felt during that encounter was overwhelming.
Fast forward 17 years to my second cancer diagnosis in 2021 which presented new challenges. This time the cancer was located in my brain, attached to the optic nerve. The treatment plan involved R-CHOP, intrathecal chemo delivered into my spinal fluid, and brain radiation. The success of Rituxan® was evident as it had become an integral part of the treatment protocol now known as R-CHOP.
The intrathecal chemo inserted into my spinal fluid came with intense migraines as a side effect. Treatment alternated every three weeks, combining chemo infusions, intrathecal infusions, and radiation. The radiation caused lymphedema, leading to facial swelling and a struggle with self-image. Coping with this, I sought help from my therapist and psychiatrist, crucial for maintaining a positive mental space throughout my cancer journey.
After completing chemo, I faced radiation-induced challenges including facial swelling and subsequent emotional struggles. Engaging with mental health care and establishing a weekly "fun day" with my husband helped me navigate this difficult period. Cancer affects not just the individual but also his or her family and friends, emphasizing the importance of allowing loved ones to provide support.
I encouraged my squad to be actively involved, and their unwavering support, including thoughtful gift baskets and regular check-ins, was invaluable. Recognizing the impact on caregivers, my husband and I prioritized supporting each other.
Upon completing treatment, ringing the bell of completion with my husband was a moment of sheer joy. We celebrated by attending an outdoor concert in Chicago and embarking on a recharging trip to Italy.
My advice to others facing cancer is to ask questions, prioritize mental health, seek support from organizations like LLS, and lean on your squad. You are never a burden to those who love you, and allowing them to be part of your journey brings mutual comfort and strength.