Search Results
Nick
My former student, Nick K. was a previous honoree of The Leukemia & Lymphoma Society (LLS). Diagnosed with a PNET brain tumor at age 4 and enduring two bouts of acute myeloid leukemia (AML) as a result in the years to follow, Nick was obviously a fighter!
Timothy
I am an awardee of The Leukemia & Lymphoma Society’s (LLS) Scholarship for Blood Cancer Survivors. I currently hold an associate’s degree in science and am pursuing my bachelor's degree in biology at California State University, San Bernardino, (CSUSB). I am very grateful to be granted this scholarship to help pay for my tuition. In fact, this is the first scholarship I have ever been awarded during my education. These funds are a big stress reliever as it has provided me with the ability to avoid taking out a loan for school and given me peace of mind.
Laura
I became aware of The Leukemia and Lymphoma Society (LLS) after I was diagnosed with acute lymphocytic leukemia (ALL). A social worker at the hospital where I was being treated gave my information to the LLS Patient Services Manager, and she called me. Then she gave me the contact information for a patient who had young children like mine and was two weeks ahead of me in the process, and we spoke with each other.
Matt
On February 2nd, 2019 my youngest daughter, Harper, was diagnosed with leukemia. Three and a half years later as I'm writing this I have a lump in my throat and tears in my eyes. Harper and our family are fortunate. She has great insurance, access to world class care, treatment options that are highly effective, and an amazing support network. That said she, and all cancer patients, must fight for their lives. I'll never forget spending the evening before her birthday in the emergency room with severe bone pain (a common side effect from her treatment).
CML in Children and Young Adults
Most cases of CML occur in adults. From 2012 to 2016, approximately 2 percent of all cases of CML occurred in children, adolescents and young adults less than age 20.
Side Effects
Both cancer therapy and acute myeloid leukemia (AML) can produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.
Before you undergo treatment, talk with your doctor about potential side effects. Medication and other therapies can prevent or manage many side effects.
Savanna
Savanna, age ten, was diagnosed with high risk Pre B Acute Lymphoblastic Leukemia in May 2014. She was in and out of the hospital for 114 days – close to half of a year! She endured countless chemo treatments, stays in the Pediatric ICU, intensive total body irradiation, spinal taps, blood transfusions and much more. The doctors decided her best chance to beat her cancer was a full Bone Marrow Transplant. Her match was her brave 12-year-old brother, Asher.
Marc
In 1989, Marc Smith, was diagnosed with acute myelogenous leukemia (AML). He was given a terminal prognosis and for more than two years endured numerous obstacles and setbacks, including two relapses and six extensive rounds of chemotherapy. His only chance of even short-term survival was to have a bone marrow transplant.
Kelvin
I was diagnosed with multiple myeloma in February 2014. My journey with The Leukemia & Lymphoma Society (LLS) began one year later when I signed up to participate in my first-ever Light The Night Walk and put together a fundraising team.
The event was amazing and all my family and friends were there to show support. When the blood cancer survivors moved to the middle of the survivor circle to light up their lanterns, it was one of the most powerful moments I’ve ever experienced.
Kevin
On October 30th, 2019, I was diagnosed with T-cell acute lymphoblastic leukemia (ALL) at 39 years old and having been an athlete my entire life. I was actually swimming and training to compete when I got the news. With a wife of 13 years and three kids at home, an 11 yr old boy and twin 9-year-old girls, everything changed for our family, even just going out “Trick or Treating.”
Edward
In October 2015, I was diagnosed with acute lymphoblastic leukemia (ALL). I had my first round of chemo then I was hospitalized for three months. I had various complications such as acute respiratory failure and difficulty with incubation. I also experienced a cardiopulmonary arrest for which I required resuscitation and intubation and my heart temporarily stopped for 5-10 minutes. I also developed bleeding on my left brain and septic shock.
Jessica
Two years after surviving a massive heart attack, a heart transplant and a leg amputation at age 16, Jessica found a lump on her neck and was diagnosed with non-Hodgkin lymphoma (NHL). After months of treatment, her cancer was in remission.
Six years later, Jessica found another lump which out to be a different form of NHL. She told herself she'd been through cancer once before and there was no reason she couldn't beat it again. By January 2008, she was back in remission and finished treatment that following May.
Steve
In 2015, I started having issues with being able to fight a sinus infection. Several months later, my doctor ordered me to have a bone marrow test and I was diagnosed acute myeloid leukemia (AML).
Just days after my diagnosis, I started chemotherapy. It was the worst point in my life, I lost my hair, appetite, taste buds and my strength. The doctors encouraged me to get up and walk around the floor as much as I could to build my strength back.
Layla
"Our LLS chapter has been there for us, with support and information that has helped immensely. We've formed a friends and family Ttam for the Light The Night Walk and it feels so rewarding to raise funds to help others who, like Layla, are bravely battling blood cancers." Alecia | Layla's mom
Dale
My husband, Dale, was first diagnosed with leukemia in October 2011, after we noticed a bubble under his chin. His chemo treatment lasted for four months, and in May of 2012, he was in remission. We were very excited to learn those results. He took his port out, and started living life again. Early in 2015, Dale was told his cancer was back, and the skin bubbles started to reappear. This meant another port and a different chemo treatment. It made him very sick, angry and depressed. It’s hard to watch your husband cry or shake cause he’s so cold and you just can’t keep him warm enough.
Michelle
I am 43 and will be 44 this year. I have been doing this forever, and I do it every year for everyone who's fighting, and surviving. and more. I love it, and I, too, am a six-time survivor of all cancers at different times of my life and possibly another. I am a childhood cancer survivor since I was 2½ years old. I had leukemia, and it was in the 80s so I had excruciating radiation and chemotherapy. I went through about three years of bone marrow and spinal taps and all the medications that they put me on until I was at least five years old.
Rowena
I was diagnosed in June 2022 with acute myeloid leukemia (AML) and Philadelphia chromosome +. My blood was tested in April and all was well, by the time May came around I had 50% cell blasts. I was treated in December 2022 with chemo and my bone marrow transplant. Thankfully, my younger brother was a 100% match to be able to donate his cells. I’ve had some major problems with GVHD, especially with my eyes. Sometimes I get super dehydrated and can’t eat without vomiting. Thankfully I am now on Jakavi and Prednisone to help my esophagus, stomach, and dry mouth.
Sofia
As a five-year survivor of Hodgkin lymphoma (HL), I have come to truly appreciate the value of life's opportunities and the importance of being fully present in every moment. My battle against cancer has shaped me into a determined and compassionate individual, instilling in me a deep sense of empathy for others facing similar challenges. I am grateful to have been awarded a scholarship for cancer survivors by The Leukemia & Lymphoma Society (LLS), recognizing both my journey and my aspirations.
Long-Term and Late Effects of Treatment
While treatments for ALL have led to increased survival rates, some may cause significant long-term or late effects. Long-term effects of cancer treatment are medical problems that last for months or years after treatment ends. Late effects are medical problems that do not appear until years, or even possibly decades, after treatment ends.
The long-term and late effects of childhood ALL treatment can include:
Side Effects
Therapy for CLL sometimes produces side effects. Side effects from kinase inhibitor drugs and monoclonal antibody therapy are generally milder than side effects from chemotherapy.
For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.
Stem Cell Transplantation
For certain patients with CML, allogeneic stem cell transplantation (the infusion of donor stem cells into a patient) is their best treatment option. However, this type of transplant can cause serious or even life-threatening complications and side effects. In addition, it is often not a good option for older patients or for patients who have other health problems.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Related Links- Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Related Links- Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Related Links- Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.