Search Results
Charity
In March of 2021, I was diagnosed officially with chronic myeloid leukemia (CML) after a blood test and bone marrow biopsy. I had just turned 30 and had my first child in August 2020. My OB/GYN noticed that my platelet and white blood cell counts were way out of the normal range and referred me to a hematologist. I did not go, thinking it is just the stress of my body carrying a baby. After I had my son, I began feeling really bad. I had no energy and had the feeling in the pit of my stomach that something was wrong.
Victor
Our father Victor was diagnosed in 1998 at the age of 30 with Burkitt non-Hodgkin lymphoma (BL). He was living in Los Angeles, California, at the time and had just gotten engaged to my mother, Debra. He began not feeling well and was diagnosed with a small mass in his stomach. He was told it was non-Hodgkin lymphoma (NHL). He contacted The Leukemia & Lymphoma Society (LLS), and in coordination with MD Anderson, he went to Texas, and a protocol was set in motion to fight this disease.
Lashi
Lashi, a Chesterfield native, was diagnosed with Hodgkin's Lymphoma in 2011 at 26 years old after discovering a lump under the left side of her chin. Luckily, her lymphoma was detected at an early stage. After going through painful radiation treatments and losing her hair, she received an all-clear report in March of 2012. Lashi credits her support system for helping her during that difficult time: "Throughout my treatment, I had great support and constant encouragement, which I know was important for me.
Jarvis
In the fall of 2019, life was very active for me and my 4-year-old son Jarvis. I was busy working 2-3 jobs, and Jarvis was busy just being a kid. Almost every day after school we would go to the park so he could run around and play. He was even starting to get interested in bikes and wanting to learn to ride when he started to mention his feet were hurting.
Gregg
I sailed through the first 56 years of my life...bachelor's degree, master's degree, 20 years as a physical education teacher, 15 years as a district administrator and school principal. Along the way I founded AZ Disabled Sports, the Desert Challenge Games, SkiAble and other programming for individuals with physical disabilities.
Katie
I was diagnosed with Leukemia when I was 20 months old. I endured treatment for a little over 2 years until I was declared cancer free. Since I was diagnosed so young, I do not remember the treatment. However, I do remember the support from The Leukemia and Lymphoma Society (LLS) as my family participated in the LLS’s Light The Night walk every year for the past 18 years!
Christian
In March 2017, I was diagnosed with Hodgkin's Lymphoma.
This came as a huge shock. I immediately starting thinking about how this might impact my wife and our two young daughters' lives.
I had 2.5 cycles of ABVD and ISRT radiotherapy and have been in remission since August 2017. I couldn't have down it without the support of my family, friends, LLS.org support groups and even the ice hockey team I had to stop playing with, who sported violet stick and shin guard colored tape when playing the rest of the season.
Madeline
Being in a very close-knit family, we were devastated upon learning of our sister Madeline’s diagnosis of AML. There were 4 of us girls and all 3 of us wanted to do anything to help our sister survive. Our biggest challenge was staying positive and offering her and her family support. The 3 of us were tested and I was her perfect match. I was overjoyed to be able to do this for her. Although my other sisters felt let down that they weren’t, we were all constant support through her journey.
Sherry
Last March, my husband Bruce went in for what was supposed to be a "simple" surgery. When the doctor opened him up, she found a mass the size of a honeydew melon (her description to me) wound around his intestines and colon. She essentially did cancer surgery on the spot and removed lymph nodes and the tumor.
Andreas Strasser, Ph.D., MSc, FAA
A Pioneering Researcher Developing Targeted Therapies for Leukemia, Lymphoma and Myeloma
A cancer researcher trained in cell biology, immunology and molecular oncology, Dr. Strasser has made major contributions leading to discoveries that have found that defects in cell death can cause cancer and impair responses to chemotherapy. With this knowledge, his research team is able to develop new treatments.
Monica
Monica was learning how to be a new mom to a six-month-old baby when her night sweats got worse and worse. She also seemed to have a cough that would not go away. It turns out that her symptoms were not due to the daycare bugs her daughter brought home. In April 2017, she was diagnosed with non-Hodgkins lymphoma. Her clinical care team discovered a malignant 5 inch mass in her chest near her heart.
Jessica
Last spring, I was a normal college junior. I had just returned from spring break in the Caribbean with my best friends, and my biggest problem was party planning my 21st birthday that was coming up.
I had a bump on my neck for a few months at that point. I visited several doctors who all assured me it was just a normal swollen lymph node and nothing to be concerned about. My family decided to fly me home for a weekend to get checked out by my pediatrician who we trust. My pediatrician took the lead for further testing.
Elsie
In November 2013, after experiencing several severe nose bleeds, I was diagnosed with a rare type of non-Hodgkin lymphoma cancer called Waldenstrom’s Macroglobulinemia. It was in stage IV and I started chemotherapy treatments immediately.
Julie
March 22, 2020- 7 years since acute myeloid leukemia (AML) diagnosis, CURED!!! I am so blessed to be alive to celebrate my 7th year since diagnosis of AML! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling to cancer stats which is something I highly discourage. The first problem with AML stats specifically-the mean DX age of 68ish.
Rachel
My name is Rachel. My tribal affiliation is full-blood Chickasaw/Creek/Seminole. I am 19 years old and will be entering my second year at the University of Oklahoma in Norman, Oklahoma. I attended Little Axe Schools from Kindergarten to my senior year of high school. Little Axe is a rural community school outside of Norman, Oklahoma. My parents are both full-blood Natives, and I have an older brother (25) and a younger brother (16). My older brother, Caleb, is a state trooper for the State of Oklahoma. My younger brother, Andrew, will be starting the 10th grade at Little Axe High School.
Shelley
Twenty years ago I was diagnosed with acute lymphoblastic leukemia (ALL). My husband, Remi and I were married and just moved to Virginia, where Remi was stationed in the Navy. In the short six weeks we lived there, I never felt 100% and I was at the doctor four times in six weeks. At my last appointment, I requested that they draw my blood. They told me I had mono, my counts were so low, they took me by ambulance to the nearest hospital.
Zariyah
Zariyah was diagnosed with acute lymphoblastic leukemia (ALL) on May 9, 2016. She had just turned three years old the previous November. She was immediately admitted to Montefiore Children's Hospital when her blood test results came back as positive for leukemia. Her blood levels were three when they were supposed to be 11. They actually almost sent us home stating that whatever was causing her illness was viral. I requested that blood be taken and tested because I just knew it had to be more than just a cold or flu.
Nicholas
It started with a stiff neck. Then came fatigue and a sore throat. I started feeling full after only a few bites of food. Workouts were getting more difficult to complete. My heart rate was consistently north of 100 just lying in bed. Rationalized. It's maybe strep. Could be mono. I prescribed myself antibiotics and popped ibuprofen. Nothing was working. Reluctantly went to an urgent care after weeks of feeling like this. Bloodwork was done.
Childhood and Young Adult Resources
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Resources for Children, Young Adults and ParentsOne-on-One Support
Savanna
Savanna, age ten, was diagnosed with high risk Pre B Acute Lymphoblastic Leukemia in May 2014. She was in and out of the hospital for 114 days – close to half of a year! She endured countless chemo treatments, stays in the Pediatric ICU, intensive total body irradiation, spinal taps, blood transfusions and much more. The doctors decided her best chance to beat her cancer was a full Bone Marrow Transplant. Her match was her brave 12-year-old brother, Asher.
Krisha
I started noticing some things were "off" with my body. In early August 2022, my daughters noticed several large, unexplained bruises on my legs. I just brushed them off as being clumsy or running into something. Then, while lying in bed reading to one of my daughters, my lower jaw and lip went numb, like when you have Novocaine. I got up and moved around, and it got better. This started to be a daily occurrence, and about a week or so later, I woke up and could not open my mouth. I thought I had TMJ, so I called my dentist. He had me come in and looked at my mouth/jaw.
Allie
On July 18, 2020, I rang a bell in the lobby of the Cincinnati Children's Hospital that signified the end of my chemotherapy treatments and the beginning of my remission. At age 15, I was diagnosed with acute myeloid leukemia (AML). I entered the hospital on December 1, 2019, with dangerously low red blood cell and platelet counts.
Steve
In June of 2016, I went to my primary care physician for a routine physical. Lab work revealed an abnormally low white blood cell count, triggering a bone marrow biopsy that found acute myeloid leukemia. In 48 hours, I went from feeling perfectly fine to a week-long, 24/7, chemotherapy cocktail. That was followed by four more weeks in the hospital to treat the inevitable infections and side effects of chemotherapy induced immunosuppression. I quickly learned that the rest of life doesn’t stop just because we’re sick.