In 2016, my Mom/daughter's grandma, Baba (Judith W), was diagnosed with acute myeloid leukemia (AML). After her first round of chemo, she was discharged from a one-month hospital stay on my daughter's third birthday. Best birthday present ever. She continued fighting the disease with more chemo and ultimately received a stem cell transplant from an amazing donor.
We were first sent to Children’s Mercy on January 5 with suspicion of an abscess in her neck. After multiple diagnostic tests, referrals to various medical specialists, and labs drawn, they came to a rheumatologic diagnosis of systemic juvenile idiopathic arthritis (SJIA).
It was November 2023. The doctor looked at me and said, “Mr. Reese, I’m terribly sorry to have to tell you this, but the leukemia has relapsed again. Combined with the graft-versus-host disease (GVHD) that is currently raging, we no longer have options for treatment. Our suggestion is that you start comfort care through hospice.”
Hi my name is Jessica and I am 21 years old. Two weeks before my 12th birthday I was diagnosed with acute myeloid leukemia (AML) which would completely alter the entire of my life moving forward. Due to the complexity and aggressiveness of my treatment, I was always receiving my treatment inpatient.
I was diagnosed in June 2022 with acute myeloid leukemia (AML) and Philadelphia chromosome +. My blood was tested in April and all was well, by the time May came around I had 50% cell blasts. I was treated in December 2022 with chemo and my bone marrow transplant. Thankfully, my younger brother was a 100% match to be able to donate his cells.
In April 2021, as I was just starting to emerge from the COVID-19 pandemic, I started to feel unwell. I was suddenly very tired and could not finish a soccer match. My family and I decided to reach out to our family doctor and look into my fatigue; we were not worried at all. We attributed my symptoms to adolescence and growth, and so did our doctor at first.
Siri is the most resilient, loving, inspiring, authentic, and brilliant woman I have ever met. She lives each day to the fullest and is filled with gratitude for all life and for every breath she takes. Her joy, light, and exuberance illuminate all around her.
I was diagnosed with acute myeloid leukemia (AML) in June 2021 in Puerto Rico. I was introduced by a hospital social worker to The Leukemia & Lymphoma Society (LLS) for educational resources for patients and caregivers. My stem cell transplant was performed at Auxilio Mutuo Hospital in 2022. After applying for financial help from the LLS, I received help from several programs.
At 22 years old, I was diagnosed with acute myeloid leukemia (AML). My first hospitalization was a month long which was followed by four more hospital stays for my chemotherapy treatments. In between each of those hospitalizations were home nursing visits, blood transfusions, doctor’s appointments, and even more hospitalizations to treat potentially life-threatening infections.
