Skip to main content

Myelodysplastic Syndromes

Please note that these resources are regularly reviewed to ensure that links still work correctly and that the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect, please email infocenter@lls.org.  If you would like for us to consider adding your organization to this resource, please complete and submit this form.

American Cancer Society (ACS)

Contact: 800-227-2345
Population Served:

People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States

Aplastic Anemia & MDS International Foundation

Contact: 800-747-2820 or help@aamds.org
Population Served:

Patients and families living with Aplastic Anemia, Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases

HealthTree Foundation

Contact: 800-709-1113 or email info@healthtree.org
Population Served:

Patients, caregivers, and healthcare professionals

National Cancer Institute's Cancer Information Service

Contact: 800-422-6237
Population Served:

Cancer patients, caregivers, family, friends, healthcare providers, researchers

National Organization for Rare Disorders, Inc. (NORD)

Contact: 800-999-6673
Population Served:

Patients in the U.S. with rare diseases

OncoLink

Contact: Website
Population Served:

Patients, caregivers, families, and healthcare professionals impacted by cancer

The Myelodysplastic Syndromes (MDS) Foundation, Inc.

Contact: 800-637-0839
Population Served:

Patients with MDS, caregivers, health professionals worldwide