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young woman with long brown hair wearing hosptial gown puckering her mouth and giving a peace sign lying in a hospital bed

Carly

November 25, 2022 ― the worst day of my life, the day I received my official cancer diagnosis, stage IV Hodgkin lymphoma (HL).

Leading up to this day, I was always a healthy, active young lady. I was 23 years old and eager to start this next phase in life. Exciting things were happening. We were fairly new homeowners, I had just changed jobs/occupations, and I married the love of my life in October.

Yesenia

My name is Yesenia and this is my story. I began my first semester of university in fall 2017. While I was away for college I started experiencing some symptoms. It started off with nausea, after the first couple weeks of fall semester I would experience this sensation that left me bed ridden. This led me to go back to my family home so I could be better taken care of. I knew at that point that something wasn't right, so I took a trip to Urgent Care where I was told I was Anemic, but with a better diet I would go back to normal.

Myles scholarship acute lymphoblastic T-cell leukemia (ALL)

Myles

I’ve always known that I wanted a career in sports in some capacity. My dream since I was in the third grade has been to become a professional football player, but I also was taught the reality of that dream. When you’re little of course you just want to be what you want to be, but as you get older you start to learn what can be in your reach and what the true reality is. As I grew older, I started to think about life after high school football and even college football, if I am blessed with that opportunity.

older white man with glasses and blue striped shirt holding a baby with an older woman with dark hair and a floral blouse

Bruce

I was diagnosed with stage III mantle cell lymphoma (MCL) in October 2004 following a routine physical exam. I wasn’t feeling ill, but since I quit smoking many years ago, as a precaution, my primary care physician recommended having a computed tomography (CT) scan of my lungs to see if I had any residual damage.

Cancer-Related Fatigue

Fatigue is very common in patients with blood cancers. Cancer-related fatigue (CRF) is characterized by excessive and persistent exhaustion that interferes with daily activity. CRF often begins before cancer is diagnosed, worsens during the course of treatment and may persist for months—even years—after treatment ends. 

older white man headshot smiling wearing a brown suite white shirt and brown and blue tie

Gregg

The date was May 15, 2015, in the local office of the hematologist/oncologist and I was given this message after the results of my bone marrow biopsy taken a week earlier. 

two participants at Light The Night celebrating and acknowledging their cancer experience

Stephanie and Amy

Stephanie: My journey with blood cancer began long before my diagnosis. In 2006, my world was shattered when my mom, just 52 years old, was diagnosed with acute myeloid leukemia (AML). She was quickly isolated in a specialized hospital, enduring grueling rounds of chemotherapy. I was about to start nursing school and desperately tried to educate myself on her illness, knowing deep down that the prognosis was grim. They mentioned a bone marrow transplant, but she never made it that far. A fungal pneumonia took her from us in December 2006.

caregiver support image

Caregiver Support

Am I A Caregiver?

If you’re providing regular assistance, you are a caregiver. Your loved one may only need support occasionally, or your loved one may need constant care. The kind of support needed will be different for each person and may also change over time. But if you're consistently providing care, you are a caregiver.

Here are just a few examples of caregiver tasks:

myelodysplastic syndrome (MDS)

Steven

My name is Steve. My purpose is to give others hope and the possibility of tomorrows. I am a leukemia survivor, specifically myelodysplastic syndrome (MDS). Today, one year after my bone marrow transplant, I am 100% cancer-free!

Donna John

Donna

The year 2021 was quite a year for us. It was the year of cancer. No one ever really prepares themselves for the diagnosis of cancer, and when you're told you have it, the emotional roller coaster you are about to embark on cannot ever be fully described in words. The fear, the exhaustion, the financial burden, the feeling of helplessness you experience is completely terrifying. In the year 2021, we started the fight of all fights, the fight to save my husband's life. This is our story of cancer. Our story of love, life, hope, and healing.

middle aged white man wearing glasses and a hospital gown sitting on a hospital bed with his son and two daughers

Lori

When my husband Ken was first diagnosed and treated for AML it felt like we were trapped in a fierce storm and being tossed about in a fury of wind. My husband Ken was diagnosed with AML (acute myeloid leukemia) and received intense treatment, spending a total of 120 days in the hospital in 2019, culminating in a bone marrow transplant (BMT). We are so grateful that his only sibling was a viable match as many patients struggle for years searching for a donor.

Doctor in white lab coat looking at tablet with patient

What Is Blood Cancer?

Reviewed by Gwen Nichols, MD, EVP and Chief Medical Officer at The Leukemia & Lymphoma Society

Young man in black t-shirt with leukemia in a hospital bed with a medical professional standing next to him wearing a mask

Matt

I’ve lived a mostly normal 27 years on this earth. A life filled with wonderful academics, Division 1 athletics (pole vault), financial internships, and fantastic sales roles at companies I really enjoyed.

However, my life changed drastically on February 28th, 2023.

In the middle of the night on that Tuesday, I was woken up by a call from an unknown number. I let it ring through… maybe it was spam? Then they called again.

Targeting Epigenetics in Myeloid Malignancies

We have a highly collaborative team of investigators, whose goal is to develop novel therapeutic approaches to MDS and AML as well as to improve current therapies for these diseases based on a detailed understanding of how epigenetic dysregulation contributes to myeloid neoplasia. We are focusing on the clonal MDS or AML cell and on the bone marrow microenvironment (BMME), including immune cells that could contribute to or limit the progression of these disorders.

Understanding Blood Cancers and Treatment Options

Leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDSs) and myeloproliferative neoplasms (MPNs) are types of cancer that can affect the bone marrow, blood cells, lymph nodes and other parts of the lymphatic system. See the Disease Information pages to learn more about the different types of blood cancer.

Communicating as a Caregiver

Communicating With the Patient

You and your loved one will need to be open and honest with each other from the start. Remember that you are both on the same team and hope for the best outcome. At some point, you will likely have disagreements and maybe even fight, but making it a priority to keep the lines of communication open and setting boundaries and expectations early on will make things easier.