Search Results

Halley

My story with cancer began long before I was diagnosed this year at 33. When I was 4 years old, my 18-month-old sister, Hannah, became too tired to play with me. As a child, I didn’t know what was going on, but something seemed wrong. My mom started taking her to doctor after doctor to find out what was happening. It wasn’t until we visited my grandmother in Florida that she had to go to the ER, and our family got the concerning news that she may have cancer.

Amanda

My name is Amanda, and I am a stage 4b classical multicellularity Hodgkin lymphoma (CHL) survivor. It all started after spring break of my junior year of high school. I was on a ski trip when I noticed my feet were more itchy than normal. I figured it was from the boots. After coming home and realizing it had gotten worse, we went to the pediatrician. She looked at the bruises and scratch marks on my legs and diagnosed me with scabies. I did the whole treatment for that, and obviously, it didn’t work. A week or two later. we went back and had some basic bloodwork done.

Heriberto

I was diagnosed with Burkitt lymphoma (BL) on Friday the 13th ― August 13, 2021, to be exact ― seven months after being married, three months after my wedding reception, and going on my honeymoon.

Brandi

My concerns began to rise when I noticed some spotting/bleeding between cycles that would last for 10 minutes or less. Additionally, I also started to experience slight abdominal cramps first thing in the morning. I’ve always been a deep sleeper and rarely woke up in the middle of the night to use the restroom, so nothing seemed out of the ordinary. That escalated to me waking up multiple times in the middle of the night to try to use the restroom, sometimes without cramps and other times with extreme abdominal cramps.

Kaitlin

I moved to Chicago in May 2022. I had recently finished my joint PhD in Social Work and Psychology from the University of Michigan and was offered a job as a People Analytics Researcher at Google. I loved the city and enjoyed frequent runs and cycling rides along Lake Shore Drive. In mid-July, I started noticing some symptoms that concerned me ― difficulty breathing when I was exercising, intense chest and back pain, spider veins on my chest, puffiness in my face, and fatigue.

Graham

In the fall of 2008 my wife and I got married. Shortly after returning from our honeymoon, I began developing pains and weakness in my joints. This continued through the holidays and I sought medical attention when the pain in my shoulders and hips became unbearable. After inconclusive X-rays and unsuccessful Cortisone shots, I began developing a pain in my abdomen around Christmas. The joint pains I wrote off as working out too hard and the abdomen pain I concluded was an ulcer.

Erika

I am a 36-year-old cancer survivor. In February 2014, I found a suspect lump and had become unusually tired. I was a career-driven single mother of a very active 10-year-old boy, so when I say unusually tired it was time to call the doctor. Within days I was thrown into the crazy and often times confusing world of hospital appointments and insurance company battles for various procedures and surgical biopsies. We became pros at the waiting game.

Skylar

As a parent, there are few words that can knock you on your feet. “Your child has cancer” is one of those phrases that can make you fall apart in an instant.

Renee

I was a senior in high school preparing to graduate. I had summer plans to work at my youth group camp and endless ideas for my future. That all came crashing down on May 27, 2002, when I was diagnosed with acute myeloid leukemia (AML). AML is a rare and rapidly growing cancer of the bone marrow that destroys the production of normal blood cells, red blood cells, and platelets. At the time of my diagnosis, my family was given devastating odds that only a miracle could fix. I was so dangerously sick that I needed multiple transfusions immediately, and that was just the beginning.

Carly

November 25, 2022 ― the worst day of my life, the day I received my official cancer diagnosis, stage IV Hodgkin lymphoma (HL).

Leading up to this day, I was always a healthy, active young lady. I was 23 years old and eager to start this next phase in life. Exciting things were happening. We were fairly new homeowners, I had just changed jobs/occupations, and I married the love of my life in October.

James

My story starts like everyone else’s. I was living my life, working every day, and coming home to my four children and my wife. But my wife and I started to notice how tired I was becoming. I would always sleep. I could just be waking up, and by the time I got ready for work, I was passing out in my chair. When I got a lunch break, I would sleep in my truck. I would always feel like I couldn’t get enough to drink; I was always thirsty. I barely ate anything, and I was getting fevers and the shakes. I could be hot and sweating, but I would be cold and shaking if that makes any sense.

Paul

I was first diagnosed with acute lymphoblastic leukemia (ALL) at age 25 and since then I've had two bone marrow transplants and CAR-T. For the past 8 years I have been on and off "healthy" and undergoing or actively recovering from treatment. I talked about some of the things I did during those treatments to help my motivation and morale, but there is a lot about the treatments themselves that were unique to someone like me, a mixed race, young adult with blood cancer.

NHL Staging

Once your doctor confirms an NHL diagnosis, he or she will determine the extent of your disease's progression by staging. Staging helps your doctor predict the disease's progression and develop a treatment plan.

Imaging Tests

Your doctor conducts one or more imaging tests along with a physical exam, to evaluate:

Treatment

There is not one treatment that is effective for all myelofibrosis (MF) patients. Patients have varying symptoms and circumstances that require different treatment options. Some MF patients remain symptom-free for many years and do not require immediate treatment. All MF patients, however, need to be closely monitored.

Diagnosis

While certain signs and symptoms may indicate that a person has PV, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to: 

• Estimate how the disease will progress
• Determine the appropriate treatment

Evaluation of an individual with suspected PV should start with a detailed medical history and a physical examination.

The medical history should include information about the patient’s:

Methods to Administer Drugs

Chemotherapy and other drugs are often given in combination with each other and can be given in different ways. The method of administering the drug is based on the actual disease diagnosed and the agent's effectiveness. Common methods include:

Madeleine

We were lucky. It seems strange to frame it that way, but it's true.

James

I was diagnosed with stage 3 follicular lymphoma (FL), a type of non-Hodgkin lymphoma (NHL), at the end of 2017, and our world was turned upside down. I lived a pretty healthy lifestyle, stayed active, and ate well. I never thought I would be diagnosed with cancer until I received the phone call from my hematologist/oncologist late on a Friday night. My body went numb as I listened to the diagnosis and the aggressive treatment plan around the corner.

Richard

“I have lost my hero, I have lost my friend, but for you, my darling, I would do it all again.”

I feel so blessed to have had the joy of meeting her and sharing our lives together. For so many reasons, it should have never happened. The words that start this story are from a St. Vincent song in New York because it succinctly paints a picture of what was and did happen.

David

On June 17, 2014, 12-year-old David Stim visited his pediatrician's office to have a routine school physical. During the exam, the nurse practitioner noticed an enlarged lymph node on the right side of his neck and surmised that it probably due to a reaction to something, as is almost always the case in pediatrics. Since David had been treated for strep throat the month before, there was not much cause for concern.

Yesenia

My name is Yesenia and this is my story. I began my first semester of university in fall 2017. While I was away for college I started experiencing some symptoms. It started off with nausea, after the first couple weeks of fall semester I would experience this sensation that left me bed ridden. This led me to go back to my family home so I could be better taken care of. I knew at that point that something wasn't right, so I took a trip to Urgent Care where I was told I was Anemic, but with a better diet I would go back to normal.

Lori

Lori’s journey to becoming a Leukemia & Lymphoma Society (LLS) volunteer began back in 2002 through her own experience with being diagnosed with Myelofibrosis (MF). Lori had just embarked on a new job as a real estate agent to a new home builder when she began to feel extremely tired and have pain in her hands. She chalked up her sickness to a case of the flu; however, after deciding to go to her doctor, he recommended some blood work which came back showing high white counts. Her doctor referred her to an Oncologist who did a bone marrow biopsy.

Barbara

While enjoying a 2021 spring vacation with my husband in Kentucky, I began to feel severe pain in my right arm. Over several hours, the pain increased, but I didn’t want to interrupt our vacation plans with a hospital visit. By late evening, my husband could tell that we must get to an emergency room PRONTO! But where in this large city can we find one? We finally stopped at a Home Depot store and asked for directions. After searching on darkened streets in a strange city, we found the emergency entrance to a hospital. 

Yeah! 

Kathy

I can draw a hard line between my old life and my new reality, and this was the day I was diagnosed with acute myeloid leukemia (AML) in August 2022. Looking back on that day, I realize I didn’t have any idea what was ahead and what would be required of me, but I came to a quick realization I needed some sort of routine to make it through each day.

Jessica