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Amy

My story begins on Christmas Eve 2008.  My daughter was a 8th grader and was singing her first solo during Christmas Eve mass.  I was sick!

Ava

My name is Lori Timko and my first daughter Ava is an acute myeloid leukemia (AML) survivor! It started in 2009 when she had become sick and the doctors discovered her blood counts were suppressed.

CALEB

November 2017, my life changed forever when I was diagnosed with a fatal form of blood cancer called acute myeloid leukemia (AML). I had no idea what it meant. All I knew is that I woke up one day, like any other, and this time I woke up with a cancer that was going to kill me in a few months. The hardest part of that day was having to tell my Mother that her son has cancer. But after a lot of tears she said to me “Caleb, we’ve got this.” And I just remember that word “we” so vividly. I remember thinking I’m not in this alone. This is a WE thing!

Rebecca

Everything happens for a reason and our pain is not for vain. Hi, my name is Rebecca Yanez, I am 22 years old and a 2x acute lymphoblastic leukemia survivor, as well as a sufferer of rheumatoid arthritis.

Shushan

Jim

Stay focused, stay positive, live as life as normally as you did before diagnosis, and do your best.

Ed

Like many who get diagnosed with multiple myeloma (MM), it comes out of nowhere. For me, it was mysterious aches and pains that crept up quickly. An alert doctor ordered tests, and eventually, MGUS, the precursor of MM, was first diagnosed. Within a month, MM was confirmed. MM is a blood/bone cancer that can affect the entire body.

For the next six months, I was involved in many tests, along with drug treatments including chemo. I had a stem cell transplant and have generally had a complete response.

Jessica

Last spring, I was a normal college junior. I had just returned from spring break in the Caribbean with my best friends, and my biggest problem was party planning my 21st birthday that was coming up.

I had a bump on my neck for a few months at that point. I visited several doctors who all assured me it was just a normal swollen lymph node and nothing to be concerned about. My family decided to fly me home for a weekend to get checked out by my pediatrician who we trust. My pediatrician took the lead for further testing.

Laura

I was diagnosed with stage IVB Hodgkin lymphoma (HL) about a week after my 30th birthday in 2018. I was a new mom to an 8-month-old baby and had been experiencing several symptoms of Lymphomas the months after having my son, but I assumed they were from having a child and would never thought in a million years that it was cancer. I received all of my care at The University of Michigan Cancer Center. My NP Dava and my doctor, Dr. Gitlin were top-notch in both my medical and mental treatment and care.

Paul

I have had the opportunity to know Paul since he was diagnosed with B-cell lymphoma (BL). Paul has an energy that makes it so you will like him instantly and this is exactly what happened. I have had my share of patient's lose their battle over the years so I am very cautious now of who I allow in my bubble. I am certain that even if I had not allowed Paul and his wife Carrie into mine they would have found a way in anyhow. Paul sailed thru R-Chop like a champ. I introduced The Leukemia and Lymphoma Society (LLS) and the work that you do for the Cohen's at this time.

Pauline

I was diagnosed with chronic myelomonocytic leukemia (CMML) in February 2023. I was shocked, never having heard of this disease, and having always considered myself a healthy person. At my annual physical in January 2023, I told my PCP that I seemed to be getting colds more often and they tended to linger. My PCP ordered a CBC. When she got the results, she said they didn't seem quite right and ordered another blood draw. She then called me and told me to see a hematologist oncologist.

Kara

This story is about my girlfriend of six years, Kara. I was diagnosed with Philadelphia chromosome-positive acute lymphoblastic leukemia (PH+ ALL) in May 2021 and went into the ER on Kara's actual birthday, May 22. 

Greg

Today I am a proud dad, avid skier, business owner and husband. For a moment though, let’s flash back to college. I wasn’t feeling well but I needed to take one last final just before winter break. After the final, I went to the school clinic and the next thing I knew it was January and I was in a hospital bed in Denver.

I was 19 years old and had been flown in a helicopter from my college town of Durango, CO to Denver. I had been in an induced coma for the last three and a half weeks. I woke up unable to speak or move my arms, legs - I couldn’t even lift a finger.

Lori

When my husband Ken was first diagnosed and treated for AML it felt like we were trapped in a fierce storm and being tossed about in a fury of wind. My husband Ken was diagnosed with AML (acute myeloid leukemia) and received intense treatment, spending a total of 120 days in the hospital in 2019, culminating in a bone marrow transplant (BMT). We are so grateful that his only sibling was a viable match as many patients struggle for years searching for a donor.

Vaccine Therapy

Vaccines designed to treat cancer don't prevent the disease in the same way that conventional vaccine therapy prevents conditions such as measles or polio. The therapeutic cancer vaccines are designed to treat an already-present cancer and reduce its potential to grow.

Researchers are working on vaccines that could prevent cancer from recurring. Currently, there are no licensed blood cancer vaccines. Vaccines for leukemia, lymphoma and myeloma are still in development and available only in clinical trials.

'Chemobrain'

Chemotherapy and radiation therapy can cause problems with cognitive (mental) functions, such as concentration, memory and the ability to multitask. Most chemotherapy patients experience these effects, sometimes referred to as “chemobrain” or brain fog, to some degree, although doctors are unable to predict who might be affected.

The cognitive effects of chemotherapy for some are long-lasting. A small percentage of patients have long-term effects known as "chemotherapy-induced cognitive impairment." The symptoms include a mental fogginess and effects on:

Special Considerations

Surgery. Patients with PV have increased risk for bleeding complications after surgery. Because your surgeon may not be aware of your increased risk for bleeding and blood clots, coordination between your surgeon and your hematologist-oncologist is very important. For elective surgeries, it is recommended that your platelet and red blood counts be in normal range before the surgery occurs.

Side Effects

Both cancer therapy and acute myeloid leukemia (AML) can sometimes produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.

Talk with your child’s doctor about potential side effects. Medications and other therapies can prevent or manage many side effects.

Diagnosis

While certain signs and symptoms may indicate that a person has ET, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to: 

• Estimate how the disease will progress
• Determine the appropriate treatment

Some of these tests may be repeated both during and after treatment to evaluate its effectiveness.

How to Enforce Your Legal Rights

If you suspect that you are being treated differently at work because of your cancer history, consider an informal solution before leaping into a lawsuit. You want to stand up for your legal rights without casting yourself as a troublemaker.

If you face discrimination, consider the following suggestions:

Signs and Symptoms

A person who has signs or symptoms that suggest the possibility of non-Hodgkin lymphoma (NHL) is usually referred to a blood cancer specialist called a hematologist-oncologist. The doctor will order additional tests and a tissue biopsy to make a diagnosis. The signs and symptoms of NHL are also associated with a number of other, less serious diseases.

The most common early sign of NHL is painless swelling of one or more lymph node(s). 

Stem Cell Transplantation

Stem cell transplantation is a procedure in which patients receive healthy stem cells to replace their own stem cells that have been destroyed by cancer or cancer treatments. The goal of stem cell transplantation is to cure the patient by destroying the cancer cells with high doses of chemotherapy and then to help the body start a new supply of blood cells.

Skin and Nails

Skin-related side effects from cancer treatment include:

• Dry skin
• Redness
• Itchiness
• Skin lesions

Tell your doctor about any changes to your skin. Your doctor can recommend or prescribe appropriate treatment, including topical solutions (creams, lotions or gels) to soothe your skin or relieve itching.

Tell you doctor immediately if you notice:

Juliana

Juliana is a vibrant, sweet, intelligent, and brave daughter to Judith and Jorge. She was born on May 24, 2017, in Houston, Texas. On December 30, 2021, Juliana was diagnosed with leukemia. On January 2, 2022, after three and a half days in the hospital and one full day in the ICU, her diagnosis was confirmed as B-cell acute lymphoblastic leukemia (ALL).

Supportive Care and Disease Complications

Supportive (palliative) care for myeloma helps manage the complications of the disease and the adverse side effects of the drugs used for treatment, including: