Search Results
Tammy
In February 2023, I developed a cough that would not go away. I went to the doctor twice. Both times I was told it was “long COVID,” and it would eventually go away. I continued with my life as normal and even went on a week-long trip to New York in April where I did a live Peloton Cycle class to celebrate my 400th ride (a milestone and dream come true for me). By the time I got home from New York, I was in bad shape. The cough had progressed, and daily activities were difficult.
Carlos
In 2019, I was diagnosed with stage 4 mantle cell lymphoma (MCL), a life-altering moment that set me on a challenging path. I endured rigorous chemotherapy treatments, followed by a life-saving transplant in 2020. Afterward, I underwent 18 additional rounds of maintenance therapy. Today, I am proud to say I've been in remission for nearly five years.
Patricia
I marked my 19th year of being cancer-free from non-Hodgkin lymphoma (NHL) on August 16, 2024. From February (on my 57th birthday!) to August 2005, I received seven rounds of R-CHOP, the gold treatment back then in the world and in Serbia where I live. Upon learning of my cancer diagnosis, I went through all the usual stages ― disbelief, denial, not using the C-word for months, acceptance, then defiance. I lost my hair but kept my positive outlook and sense of humor. After all, it does absolutely no good to pity oneself. At that time, I was involved in a local NHL support group.
Carol
Meet carol. hodgkin survivor. indiana. Carol was diagnosed with Hodgkin lymphoma in 2010. After being a stay-at-home mom, she went back to school to get her teaching degree and found out she had a grapefruit size tumor in her chest when she was one week away from finishing her student teaching. She put off finding a teaching job for a year while going through six months of chemotherapy. She was able to work as a learning specialist while going through her treatments as she had a very supportive principal.
Alec and Aden
Can you imagine being a single mom by circumstances out of her control, navigating uncontrollable circumstances, as her identical twins display remarkable fortitude in the face of cancer, diagnosed three years apart? Successful at a well-paying job that afforded her the ability to support the boys and four other siblings in grade school. Managing life with six children would be challenging alone! No help from the children's father or his family, and her mother passed away years ago.
Matilda
In March 2024, during my first year of college as an international student in America, I was diagnosed with lymphoma. The diagnosis came unexpectedly during a compulsory admissions check-up where they discovered a tumor in my chest that had grown extensively within just two months.
Diagnosis
An accurate diagnosis is one of the most important aspects of a person’s care. A precise diagnosis will help the doctor to
- Estimate the rate of disease progression
- Determine the appropriate treatment.
The doctor will take a comprehensive medical history and ask questions regarding either the absence or the presence of B symptoms. Physical examination will include measurement of all accessible lymph node groups, as well as the size of organs, such as the spleen and liver.
Polycythemia Vera
Polycythemia Vera (PV)- Is one of a related group of blood cancers known as “myeloproliferative neoplasms” (MPNs). Too many red blood cells are made in the bone marrow and, in many cases, the numbers of white blood cells and platelets are also elevated.
- With careful medical supervision, PV can usually be managed effectively for many years.
Hair Loss
Drugs that damage or destroy cancer cells also affect normal cells. Rapidly dividing cells, such as hair follicle cells, are the most affected. This is why hair loss (alopecia) is a common side effect of chemotherapy. Hair loss can range from thinning to baldness. It may be sudden or slow. You may also lose hair from other areas of your body such as eyelashes and eyebrows.
Hair usually grows back after treatment ends. The thickness, texture or color of hair may be different when it grows back.
Fertility
“Fertility” describes the ability to conceive a biological child. Human reproduction requires three elements: mature sperm, mature eggs and a person with a uterus to carry the pregnancy and give birth. Some cancers and some cancer treatments affect fertility.
Treatment
The main treatment for AML is chemotherapy given in phases.
Not every child with AML receives the same treatment. Your child’s doctor will tailor your child’s treatment based on the AML subtype and other factors, such as age, health and how the cancer responds to treatment.
Your child’s treatment may include:
Follow-Up Care
Your child will undergo frequent follow-up tests during the first year after treatment, but they will be done less often during the second and third years. Each patient has a different follow-up care schedule. How often your child has follow-up visits is based on your child’s type of AML and the treatments given. Your child’s doctor will let you know the schedule that is right for your child.
Children should visit their pediatrician or doctor at least once a year for a complete physical exam and any additional needed tests. The oncologist should also regularly examine the child.
Myeloma Staging
Doctors use imaging and laboratory test results and bone marrow examination findings to determine the extent of disease. This determination is called “staging.” Staging helps your doctor predict the myeloma's progression and develop a treatment plan.
Myeloma has three stages numbered from 1 to 3. Often doctors write the stage in Roman numerals. You may see stage 1 written as Stage I, stage 2 written as Stage II and stage 3 written as Stage III.
Teresa
I was diagnosed in 2009 with chronic lymphocytic leukemia (CLL). Upon diagnosis, perhaps the greatest shock was becoming aware that I knew so little about cancer, so little about the medical system, and how one needs to go about a process of self-education regarding their disease.
My diagnosis occurred at the Simon Cancer Center, a part of the Indiana University Health System. I was fortunate to have a neighbor who is a nurse practitioner at this cancer center. She intervened when she found out that a routine shoulder MRI revealed multiple enlarged lymph nodes.
Ariel
I was diagnosed with acute promyelocytic leukemia (APL) on January 24, 2019. I hadn’t been feeling well for a while. I was having very odd symptoms. For example, I was having joint pains, I kept hearing this whooshing noise, my gums were bleeding, and the biggest symptom was I would get out of breath so easily. Walking up the steps of my apartment building felt like running a marathon. I went to an urgent care clinic and described these symptoms, and the doctor gave me an antibiotic and sent me home. I’ll never forget his face before he discharged me. I could see he was unsure.
Amanda
I am now a two-time acute myeloid leukemia (AML) survivor. When I was diagnosed with AML, it was an absolute complete shock. At the time of my diagnosis, I was a stay-at-home mom to my then three-year-old son. In a matter of a few hours and three words, “You have cancer,” my life completely turned upside down.
John William
I was diagnosed with acute myeloid leukemia (AML) in December 2019. After three days of chemo, which was discontinued due to bleeding in my lungs, I spent three weeks in the hospital finding out I had a life-threatening, invasive fungal sinusitis that they could not treat with medications or surgery. The doctors sent me home to hospice. They had shot me up with white blood count (WBC) stimulators to give me as much time as they could. I wanted to get through Christmas and my youngest's birthday which was on the 29th. They gave me three days to four weeks at most.
Kendra
I first learned of The Leukemia & Lymphoma Society (LLS) when I participated in a Team in Training (TNT) event to walk a half marathon in San Francisco in October 2004. My friend in Michigan had lost her dad to lymphoma earlier that year, and she was training for the event from her home in Michigan. My training and participation were a way to support her during the loss of her dad. I never thought I could walk that far, and, through the support of the trainers and the motivation to support my friend, I had an awesome time completing that walk.
Jess
Thirteen years ago, my cousin brought me and our family into the The Leukemia & Lymphoma Society (LLS) world. Her friend's dad had lost his battle, and I had just begun mine. In November 2011, I was told I had acute lymphoblastic leukemia (ALL). After being immediately hospitalized, poked, and prodded, I started on a clinical trial following a pediatric protocol with adult doses. It worked! By March 16, 2012, I could say I was in remission. Life was great! No more nausea, vomiting, and general crap feeling. No more pulmonary embolisms from one of the treatments.
Megan
I am a 12-year-old girl who likes to play soccer and basketball, and I am in 7th grade. I was diagnosed with myelodysplastic syndromes (MDS-EB) with monosomy 7. It is a blood cancer similar to leukemia. It is extremely rare for pediatric patients to receive this diagnosis, between 1-4 children out of every million.
Chloe
At the age of 13, I became the youngest stem cell donor at Johns Hopkins Hospital. At 15, I am a Student Visionary of the Year in the 2024 Leukemia and Lymphoma Society (LLS) campaign. LLS has become an integral part of my life over the past two years. In the spring of 2022, the peaceful life of our family was shattered by my mom’s diagnosis of acute myeloid leukemia (AML). Learning that a stem cell transplant was the only cure, I volunteered to donate my bone marrow to her.
Treatment for Aggressive NHL Subtypes
Aggressive non-Hodgkin lymphoma (NHL) progresses rapidly. It makes up about 60 percent of all NHL cases in the United States. Aggressive subtypes include:
Our History
The Leukemia & Lymphoma Society (LLS) was born out of a family's grief following the death of their teenage son. Robert "Robbie" Roesler de Villiers, son of a well-to-do New York family, was only 16 when he quickly succumbed to leukemia in 1944. Five years later, frustrated by the lack of effective treatments for what was then considered a hopeless disease, parents Rudolph and Antoinette de Villiers started a fundraising and education organization in their son's name.
Hodgkin Lymphoma Staging
Doctors use physical examinations, imaging tests, blood test and, sometimes, bone marrow tests to determine the extent of the disease. This determination is called "staging." Staging provides important information for treatment planning.
Staging for Hodgkin lymphoma is based on the Lugano classification, which is derived from the Ann Arbor staging system.