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Casey

It was in May, 2014 that 24-year-old Casey Moore began experiencing her first symptoms of chronic myeloid leukemia (CML). For a week straight, Casey had been vomiting every day and was losing a significant amount of weight. This was unusual, as prior to her symptoms, she considered herself a happy, healthy woman focused on her relationship and career. At the time, she was living with her boyfriend and working full time in a chiropractic office -- with no apparent signs of an illness.

Charlene

Cancer. That is a word that is scary. So many of us have friends, family and co-workers that are impacted by some type of cancer, but you never think it will be you. The word conjures up fear. Fear of treatment, fear of death and fear of what will be expected of you to deal with and hopefully survive. 

Sasha

When five-year-old Sasha had her birthday in June, there was more to celebrate this year — she had just gotten her port removed and was officially done with blood cancer treatment.

Sasha was just 2 years old when she was diagnosed with acute lymphoblastic leukemia in October 2017.  She began intense treatment right away, which continued until right before her fifth birthday. Sasha spent countless days at the hospital fighting for her life and enduring the brutal side effects that came with treatment, but she never lost her charming personality and bright smile.

Makenzie

Makenzie

My daughter Makenzie was diagnosed with chronic myeloid leukemia (CML) in January 2013, when she was just four years old. She had no signs or symptoms of leukemia. One day, Makenzie had a sore throat and we made an appointment with her pediatrician. Turns out she did have strep throat, but an exam also revealed her spleen was very enlarged. At that point, her pediatrician did bloodwork and learned that Makenzie's white cell count was through the roof. We were sent to Texas Children’s Hospital where later that evening she was diagnosed with CML.

diana

Diana

It’s only cancer. As blasé as that may sound, I work for the Alzheimer’s Association as Walk Manager of the million-dollar Cincinnati Tri-State Walk to End Alzheimer's. Alzheimer’s disease has no effective treatment. No prevention. No cure. It’s always fatal. So, when the doctor came into the emergency room at 3:30 a.m.

Jack

Jack

Jack is a particularly big fan of the Leukemia & Lymphoma Society.  His is an active Patient Advocate managing a local support group for patients and caregivers interested in his rare blood cancer, he participates in LLS' First Connection program, has helped with LLS' Team in Training and Light the Night recruiting efforts.  He received LLS' appreciation award "For Outstanding Commitment and Support of Advocacy and Patient Quality of Life" in June 2104.

Patty

Patty

On January 19, 2012, I lost the love of my life to acute myeloid leukemia (AML). We were together for 21 years and this was not how our love story was supposed to end. Too young, too soon… still so much to do, to see, to experience – How do you go on? How do you continue life without the other half of you? How do you stop crying in the shower, before the water runs cold? How do you get dressed, put on a smile and face the world – alone? How do you believe again, when everything you believed in is gone?

Vonshel

Vonshel

Hi, my name is Von, and back in 2008, I was diagnosed with breast cancer. I didn't want to die, but prayer and God sent me right to the perfect doctor: Dr. Moran from Brunswick, GA. I got through chemotherapy and radiation with a breeze, and I'm now in remission for 13 years.

Jordana

Jordana

Jordana was busy being a mom, wife, and radio host when she began experiencing fatigue, hot flashes, and bruising in the fall of 2020.

“I've been feeling crappy for a few months, very fatigued. About two weeks ago I noticed some large bruising on my legs but didn't remember bumping myself,” Jordana wrote in her first journal entry on CaringBridge. “I went for some bloodwork. Tuesday night my doctor called and said I need to go to the ER as my platelets were low. They admitted me, did a bone marrow biopsy, and 12 hours later told me I had leukemia.”

ARB

Alayna

September 8, 2021: I didn’t know it at the time, but the mass I found in my neck the night before I started my senior year of high school would forever change my life.

primary mediastinal B-cell lymphoma (PMBCL)

Luigi

Luigi was diagnosed with primary mediastinal B-cell lymphoma (PMBCL) during his junior year of high school, at the age of 16. During that time, Luigi was preparing for college applications and getting ready to play in his varsity basketball and varsity volleyball season. But all of that came to a halt with his diagnosis. While undergoing multiple rounds of dose-adjusted chemotherapy, Luigi continued to push himself and decided to get home schooling. He also continued to support his basketball team in the sidelines as much as he could.

young black woman wearing a black dress with gold hoop earrings and necklace standing by a sign that says Paris and Company

Jania

In November 2018, I was diagnosed with acute myeloid leukemia (AML). It's a type of cancer of the blood and bone marrow that progresses very rapidly. When I was initially diagnosed, I believed my life was over. As a seventeen-year-old high school student attending school from a homeless shelter, going to bed hungry most nights, I considered dropping out to help my mother with my younger sister and brother. I couldn't fathom the financial burdens that would follow with medical treatment. I felt like the more I attempted to correct things, the worse they became.

Nino Asian man in hospital room wearing blue tshirt standing by a Kobe Bryant jersey with his wife sitting in a chair waving and wearing a blue mask and dark shirt

Nino

Five years ago, I was diagnosed with stage 4 Hodgkin lymphoma (HL). After dozens of chemo treatments, an unplanned trip to the emergency department, and a three-week stay at the hospital for a stem cell transplant, I am happy to say this guy (makes a fist with thumbs pointing to self) is "IN REMISSION." I'm cancer-free! Butttt . . . as much as I want to say "**** you, cancer" and show you how my physical body changed over the last year, I'm NOT going to make this post about me.

Acute myeloid leukemia survivor wearing a blue buttoned shirt in front of a beautiful landscape

Zac

In 2019, at 32, several symptoms culminated and, in hindsight, were red flags to the disease progression of acute myeloid leukemia (AML). I was less than 90 days into a new job in residential construction. I did not pay attention to what my body was telling me (extreme fatigue, excessively bleeding gums after a dental exam, bruising, and petechiae on my chest and upper extremities). After a busy weeknight trip to the grocery store, my body made me stop to pay attention with a 103.2° fever. With that, I drove myself to the local emergency room.

jaime WM

Jaime

My name is Jaime. I am married to my best friend, Brad, and we have three children, two daughters and a son. We also have a daughter and son in-law plus five beautiful grandchildren. I am very fortunate and count my blessings every day.

My cancer story started in April 2009.

JJ

J.J.

The first time I remember hearing of The Leukemia & Lymphoma Society (LLS) was through Team In Training (TNT), specifically from a brochure I picked up at a bike shop that invited one to train for a 109-mile bike ride with TNT. It was 2007, and I thought it sounded like a blast. I convinced my girlfriend at the time, Stacey, to join me. We used the occasion to buy some fancy new bikes. With some fundraising and committed training dates, we would be able to say we had done a Century Bike Ride! Cool!

David

On June 17, 2014, 12-year-old David Stim visited his pediatrician's office to have a routine school physical. During the exam, the nurse practitioner noticed an enlarged lymph node on the right side of his neck and surmised that it probably due to a reaction to something, as is almost always the case in pediatrics. Since David had been treated for strep throat the month before, there was not much cause for concern.

Disease Complications

As myelofibrosis (MF) progresses, complications may arise:

Hair Loss

Drugs that damage or destroy cancer cells also affect normal cells. Rapidly dividing cells, such as hair follicle cells, are the most affected. This is why hair loss (alopecia) is a common side effect of chemotherapy. Hair loss can range from thinning to baldness. It may be sudden or slow. You may also lose hair from other areas of your body such as eyelashes and eyebrows. 

Hair usually grows back after treatment ends. The thickness, texture or color of hair may be different when it grows back. 

Refractory and Relapsed Childhood ALL

Most children with ALL are cured with standard chemotherapy treatments. But about 15 percent of young patients have ALL that returns after remission. This is referred to as a “relapse” of the disease (or “relapsed ALL”). Some children are unable to achieve a remission because their cancer does not respond to treatment. In these cases, the disease is referred to as “refractory” (or “refractory ALL”).

Myeloma Staging

Doctors use imaging and laboratory test results and bone marrow examination findings to determine the extent of disease. This determination is called “staging.” Staging helps your doctor predict the myeloma's progression and develop a treatment plan.

Myeloma has three stages numbered from 1 to 3. Often doctors write the stage in Roman numerals. You may see stage 1 written as Stage I, stage 2 written as Stage II and stage 3 written as Stage III.

Chemotherapy

Because of acute lymphoblastic leukemia's (ALL's) rapid growth, most patients need to start chemotherapy soon after diagnosis.

Chemotherapy drugs kill fast-growing cells throughout the body including cancer cells and normal, healthy cells. The damage to normal, healthy cells can cause side effects. Yet, not everyone experiences side effects the same way. 

ALL treatment consists of: