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MDS Subtypes
There are several kinds (subtypes) of MDS. The subtype is determined from the results of the blood and bone marrow tests.
WHO ClassificationThe current WHO classification guidelines identify six subtypes.The current WHO classification guidelines, which were updated in 2022, groups MDS based on genetic abnormalities and morphologically defined features (the appearance and number of the cells under a microscope).
The subtypes are determined by the following:
Signs and Symptoms
Polycythemia vera (PV) develops slowly, and it may not cause symptoms for many years. The condition is often diagnosed during a routine blood test before severe symptoms occur.
Symptoms may include:
Nathaniel
Hi! Nathaniel here, but you can call me Nate. I am an 18-year-old North Carolina Scholar, 2015 graduate of Franklinton High School who graduated with high honors. I am a future student of the University of North Carolina at Charlotte, majoring in mechanical engineering. I am a son, brother, grandson, nephew, cousin, boyfriend, friend, percussionist, musician, scholarship recipient, car and truck enthusiast, minority mentor, and an all around "Renaissance Man" with a philanthropist heart. I also have cancer
Bryant
Bryant, age five, was diagnosed with Pre-B Acute Lymphoblastic Leukemia in April 2014. At the time of his diagnosis he was the typical 3-year-old, who loved to say “NO.” As an independent guy, who wants to make all decisions, he didn’t have many choices for the first few months of treatment. He began his treatment with an intense 8 month protocol. With the many ups and downs chemotherapy brings, he had to also fight a serious kidney infection. After the initial 8 months Bryant moved onto a maintenance program, which began in January of 2015.
Chelsea
Initially, I joked with my boss at work about the lymph node swelling in my neck and about taking another sick day off. I finally decided to see my primary care physician about it, who is typically very jovial. That day he wasn't joking much and referred me to a local ENT. Every test and scan from that first opinion pointed to a malignancy. I was in deep denial about being diagnosed with cancer, even after my second opinion at Dana Farber Cancer Institute in Boston when the nurse asked if I wanted a snack.
Marisa
Throughout my father’s journey, I was impressed by his care team, the advanced medicine used to treat blood cancer today, the individuals I met, people’s generosity, and the organizations I was introduced to. This journey opened my eyes to various organizations such as Be the Match and The Leukemia & Lymphoma Society (LLS).
Jade
Last year in June of 2021, I was diagnosed with acute lymphoblastic leukemia (ALL) at the age of 24. This diagnosis came as a complete shock to my family and me! My symptoms included extreme fatigue, migraines, bruising, nose bleeds, and radiating leg pains. All these symptoms came and went, and I never would've imagined it would be cancer. I attributed my symptoms to the stress from work. With sitting all day and staring at my computer screen, I never really thought much of it.
Ilustre
Just like many Filipinos, my beloved grandpa said “YES” to the U.S. Navy to provide for his poor family in the Philippines. He gave his all, and no matter the circumstances, he stayed strong. My grandpa was a warrior with a golden heart.
From open heart surgery to prostate cancer and acute myeloid leukemia (AML), he fought for his life until his very last breath.
He has instilled in me leadership, hard work, and love. There was never a time he wasn’t there for me at my pageants, birthdays, or award ceremonies.
Will
My son Will was a vibrant, active, and typical junior in high school. He was living life to the fullest with a rigorous class schedule, working, training for his upcoming senior year of football, participating in many outdoor activities, and enjoying time with family and friends. On April 24, 2024, Will went in for wisdom teeth removal, and the oral surgeon had difficulty getting his bleeding under control. In a few short hours, including an ambulance ride to the hospital, Will would be diagnosed with acute promyelocytic leukemia (APL).
Boyd
Greetings from a friend in Canada! I am a two-time blood cancer survivor and marathon runner all because of the love of friends in The Leukemia & Lymphoma Society (LLS)! I had a life saving stem cell transplant from an American Naval Serviceman named Nathan Barnes who was in Japan when he saved my life. (2011-12). My stem cell transplant was May 2012!! A year after my stem cell transplant a friend took me to Alaska and ran a marathon for me with Team in Training! (2013).
Elijah
Diagnosed with ALL in 5th grade, my hopes for a normal and healthy childhood were quickly shattered. The impact on my family began as devastation but has since metamorphosed into restoration, healing, and a closeness beyond this world (bonus, my brother and I have never fought since the day I received the news of my disease).
Julie
My twin sister, Julie was first diagnosed with leukemia when we were 25. Thankfully, she battled through and was in remission after a year of treatment. It was a rough battle for our family, but especially her. Newly married, her and her husband had just started to build a house and were hoping to start a family. Fortunately, she had great annual checkups and after 13 years, she was declared cured.
Nancy
I was diagnosed with multiple myeloma in 2008. For a year, I was in the “watch and wait” category with no treatment until the disease progressed. In April 2009 I progressed to “active disease” and began treatments followed by an autologous stem cell transplant in January 2010.
Katelin (KiNG)
In April 2017, Katelin, also known as KiNG, went to see a doctor for persistent severe headaches and dizziness. A blood test revealed that she had phase III chronic myeloid leukemia (CML). For someone Katelin’s age, a normal white blood cell count is between 5,000 to 10,000 — Katelin’s was 660,000. She was told it was a miracle she was alive and didn’t experience a stroke or any internal organ damage.
Liam
In April 2015, Liam was diagnosed with acute myeloid leukemia (AML) when he was just one-and-a-half years old. After living in the hospital for four months of intensive treatment, Liam went into remission in July 2015!
He got back to an active life and was enjoying being a normal kid. He had the honor of being LLS’s 2016 Honored Hero. He and his mother attended many LLS events to share his story. Liam was set to kick off the Light The Night walk but unfortunately, Liam relapsed right before the event and had to endure more chemo.
Ethan & Sienna
Ethan was just five years old when he was diagnosed with very high risk acute lymphoblastic leukemia (ALL). The following years involved countless hospital visits, chemotherapy, bone marrow aspirates, lumbar punctures, steroids, and blood product transfusions.
Lance
I was diagnosed with acute lymphoblastic leukemia September 2014 at age 13. I had just started 8th grade. 1st symptoms-to-diagnosis took only 4 days. I didn’t get a chance to think about things; we were busy trying to save my life.
Michelle
In 2011, I had started graduate school, had a two-year-old son, and ran a small business with my then husband. I was very fatigued and having night sweats and itchiness. I thought I was just stressed, and I was, but after several months of trying to get health insurance and then many tests, it was confirmed that I had Hodgkin lymphoma.
Rocco
Our little Roc was diagnosed with leukemia on June 30. We immediately started treatment at Joe DiMaggio Children’s Hospital on July 1 where Rocco was given a port, bone marrow biopsy, and his first intrathecal chemo treatment. After a 7-day hospital stay, we were able to come home and continue weekly treatments. Unfortunately, on August 2 we received news that Rocco’s body was not responding to treatment the way we all hoped he would.
Brielle
Brielle, a beloved daughter, sister, and aunt, was diagnosed with acute lymphoblastic leukemia (ALL) on June 8, 2022, at just 22 years old. Given her age and history of ideal health, the news was more than shocking.
Things began to move quickly after the initial diagnosis. Plans were made for her to begin chemotherapy in Augusta, Georgia, which was a four-hour commute from home. Her family pulled together to provide financial and emotional support. Following a successful round of chemo, Brielle’s brother donated bone marrow for a bone marrow transplant.
George
I am a 72-year-old retired Information Technology professional. I was diagnosed with chronic lymphocytic leukemia (CLL) in June 2002 and remain in active treatment today. Over the last 22 years, I have had more than 700 trips for doctor visits, treatments, lab test, emergency room, hospitalizations, and pharmacy. My biggest challenge over the years is managing the cost of premiums, medical treatment, drugs, travel, and medical appliances. I found multiple resources that stepped in to assist me with my financial challenges related to my CLL.
Joseph
I came down with chronic lymphocytic leukemia (CLL) in 2006 which transformed into an aggressive form of non-Hodgkin B-cell lymphoma (NHL) in 2013. In 2015, I received an umbilical cord transplant at Penn Medicine Hospital in Philadelphia which was successful. This month, I celebrate nine years post-transplant.
Carlos
I was diagnosed in September 2017 with myelodysplastic syndromes (MDS), and by May 2019, I was told of the need for a bone marrow transplant (BMT). And even though they told me about a "new life after transplant," my life has completely changed. I could not go back to work because of graft vs. host disease (GVHD) and multiple infections during and post-transplant. I’m still on immunosuppressants and chemo-brain with cognitive issues. It has been very hard not to return to practicing Family Medicine since my patients could literally kill me.
Zoie
My mom thought it was the flu, maybe mono. After I spent five days lying in bed, she took me to an Urgent Care Clinic. I knew it was something far more serious after they called an ambulance. My mom wouldn’t believe the Urgent Care doctor when he told her he suspected it was cancer. Unfortunately, he was right. I was 11 when I was diagnosed with acute lymphoblastic leukemia (ALL).