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Blood Transfusion
Blood transfusion using cells donated by healthy volunteers can help replace red cells, platelets and other blood components. Some people with leukemia, lymphoma, myeloma and other blood diseases or disorders such as hereditary anemias and aplastic anemia need periodic blood transfusions for several reasons:
NHL Subtypes
More than 60 specific NHL subtypes have been identified and assigned names by the World Health Organization (WHO). NHL subtypes are categorized by the characteristics of the lymphoma cells, including their appearance, the presence of proteins on the surface of the cells and their genetic features. It's important to know your subtype since it plays a large part in determining the type of treatment you'll receive. A hematopathologist, a doctor who specializes in the diagnosis of blood disorders and blood cancers, should review your biopsy specimens.
Coping With Cancer
When someone is diagnosed with cancer, everyone in his or her family is affected. This holds especially true when a child has cancer. Different families have different ways of coping, but there are some sound strategies that anyone can employ. For useful tools and tips that may help, see the following pages:
Clio
I lost my mom to acute lymphoblastic leukemia (ALL) in 2003. Her battle was short, just three months, which left me in shock and feeling very angry. My mom had always instilled in me the value of working hard to accomplish goals and I knew she wouldn’t want me wasting energy being angry. In late 2004, I decided to find a way to channel the anger into something productive, and just weeks later I came across a Team In Training (TNT) brochure. I started running half marathons with TNT and I’ve since completed about a dozen.
Damion
In 2020, at the age of 36, I was diagnosed with multiple myeloma (MM). To say this was out of left field would be an understatement. Historically, MM has been recognized as a blood cancer that impacts older patients. That research may be changing. Also, MM disproportionally affects African Americans. At the time of my diagnosis, I was a pretty healthy guy. I tried to eat right and even played in two basketball leagues each week. When I went to the doctor with stomach issues, I wasn't expecting to leave with a cancer diagnosis.
Diane
My journey with The Leukemia and Lymphoma Society (LLS) started in 2015 when my spouse was diagnosed with orbital lymphoma. I have been working in the oncology field for the past 20 years. Hearing the words my spouse has cancer was scary. After meeting with the oncologist he did not need treatments watch and wait approach was great news. Proudly he got to the 5 year benchmark and he is well. Then 2019 I started to have all abdominal issues. Pain, pressure in abdomen as well in my back. We did multiple scans all negative.
Dominick
My grandson, Dominick, was diagnosed with high risk pre b cell acute lymphoblastic leukemia (ALL) in November 2014. He was 2 3/4 years old and it was only 8 months after his dad unexpectedly passed away. Obviously this was a new shock for his mom, Danielle and his family. His sister Gianna, who just turned 5, still hadn't got over the loss of her dad and now had to deal with her brother's illness. Dominick had severe bruising and was diagnosed by his pediatrician.
Nathaniel
I was diagnosed with acute lymphoblastic leukemia (ALL) on October 27, 2020. I was 24 years old at the time, and my girlfriend had just given birth to our son a month before I got sick. I was first admitted to St. Mary’s Medical Hospital in Apple Valley, California, then later transferred to Loma Linda University Medical Center. The next year was the hardest for me, not being able to help my girlfriend take care of our newborn baby boy, missing holidays, birthdays, family gatherings, and events. I was constantly in and out of the hospital, so much so that it felt like I lived there.
Haley
I was diagnosed on February 21, 2020, with stage 3B nodular sclerosing Hodgkin lymphoma (NSHL). I was attending UNLV and working on finishing my prerequisites to apply to the nursing program. One month later, COVID hit the U.S. and shut everything down. I had to go to all of my appointments alone. I was able to freeze my eggs before starting treatment two days later on April 3, 2020. I felt like my entire world had been turned upside down, just for the entire world to descend into chaos. It was a very scary and stressful time.
George
I was born in the inner city of Philadelphia, PA in 1951, I currently live near Dallas, Texas. My professional career in the Information Technology Industry lasted over 40 years prior to my retirement in January 2019. In 2002 I was diagnosed with chronic lymphocytic leukemia (CLL) and many aspects of my life changed forever.
Casey
At 31, I was diagnosed with acute lymphoblastic leukemia (ALL), a rare children’s cancer. Four months into treatment, I had a stroke and seizures and went into a medically induced coma for three days. I had to relearn how to use the entire left side of my body (yes, walk, talk, and function) while still going through treatment. My treatment protocol was 18 months long. Seven weeks after I finished, I relapsed. My body was no longer responding to chemotherapy, so we tried an immunotherapy that sent me into a cytokine release storm (your body starts to attack itself).
Taylor
Hello! I am Taylor, and most people know me for being a human biology premed student at the University of California San Diego. However, what most people don’t know is I was diagnosed with a rare blood cancer in March of this year. I have systemic mastocytosis (SM) which leads to lots of anaphylactic reactions and hospital visits. I spend lots of time getting tests because my cancer is rare and infusions at the cancer center. I have had several types of chemotherapy drugs and many biopsies.
Ashen
My son, Ashen graduated from high school this year, but he was diagnosed with leukemia back in July 2015. He was devastated and depressed when he was told of his life threatening illness. Here is his story.
Ronnie
After several months of flu-like symptoms, 11-year-old All Star little leaguer Ronnie took a blood test that would determine his white blood cell count was nearly 1 million. Ronnie was immediately sent to Ann and Robert H. Lurie’s Children’s Hospital of Chicago where he was diagnosed with acute lymphoblastic leukemia (ALL).
Brianna
My name is Brianna Ciambra I live in New York and this is my story. When I was eleven, I was diagnosed with acute lymphoblastic leukemia. I went through two in a half years of chemotherapy which consisted of IV meds, spinal taps, steroids etc. I lost my hair during the chemo, which was very hard. I also developed a condition called Avascular necrosis. Avascular necrosis is bone loss in the joints, since 2009 I have had full bilateral hip and shoulder replacements. I also had my right knee fully replaced and two spinal surgeries.
Richard
People tend to think that cancer will never affect them. I know, because I was once one of those people. Growing up, I never knew of anyone that had cancer. Then, in 2005, my father-in-law contracted a brain tumor; the worst type. I remember feeling a sort of, panicky feeling in the beginning as we were told he had three to six months to live. However, since day one, he had the best outlook on life and he lived until 2008. He is just one of my hero’s.
Mackenzie
At nine years old I received the devastating news that I had leukemia. I didn’t know exactly what this meant and little did I know that it meant years of treatment, hair loss, loss of friends, and learning who I was meant to be. I was a patient at St. Jude and received treatments for two and a half years. I lost my hair, I had SVTs, I had seizures, and everything that could happen did happen. I was so sick throughout my entire treatment, and I didn’t get to do very much. I was in the hospital most of the time, and very seldom was I had home or not in patient.
Sarah
In August of 2014, after a routine medical procedure, doctors suspected that Sarah may have a lymphoma type cancer. Soon thereafter, with her husband by her side, doctors confirmed that Sarah indeed had cancer, stage 2 Hodgkin lymphoma.
Brianna
My name is Brianna Ciambra I live in New York and this is my story. When I was eleven, I was diagnosed with acute lymphoblastic leukemia. I went through two-and-a-half years of chemotherapy which consisted of IV meds, spinal taps, steroids etc. I lost my hair during the chemo, which was very hard. I also developed a condition called Avascular necrosis. Avascular necrosis is bone loss in the joints, since 2009 I have had full bilateral hip and shoulder replacements. I also had my right knee fully replaced and two spinal surgeries.
Douglas
In December 2007 my life completely changed. I had a biopsy done just four days before Christmas, and my oncologist called me on Christmas Day to tell me that I needed to come in and see him after the holidays to discuss my pathology report. I was diagnosed with Hodgkins lymphoma. I endured five surgeries in just four weeks and spent my 36th birthday in the hospital. I never once thought that cancer was going to beat me. My mindset was that I had cancer, but it did not have me.
Max
My son Max was diagnosed with B-cell lymphoma in May 2017, just 10 days before his 19th birthday. He discovered a lump under his chin a few months before, and in April he noticed it had grown. After we took him to get it checked out and learned the devastating news, we were in complete shock. He had no other signs of anything else being wrong.
Bella
Looking back at when this journey started, it kind of feels unreal. Life can change in an instant. For us, that moment was on September 2, 2016. Bella had been having fevers on and off for two months with no other symptoms and medicine was barely keeping them down. We took her to the doctor's office and were told it was probably just a virus.
Kristen
I was diagnosed with Burkitt lymphoma (BL) when I was 21 years old. It was the summer going into my senior year of college, and I had just returned home from a semester abroad. I assumed the stomachaches I was experiencing were because of the food and drinks I had while enjoying my time in Europe. I was actually told I had H. pylori and started antibiotics that were supposed to alleviate the stomach pains. But then a lump on my neck appeared, and I thought the worst.
Steve
I was diagnosed with stage 4 acute myeloid leukemia (AML) in 2015. It is not known if Humira (a drug I was prescribed) caused it or just blew up the AML. On the night of diagnosis, I was told the hospital I was in could not treat me, and I would be transferred in the morning. About the time my wife returned home, she received a call that I had taken a turn for the worse and was being transferred immediately. During this time, we decided to use humor during interactions with all medical personnel from there on out.
Katie
Twenty years ago I did two things that shaped my life.