Search Results
Amanda
"He was selfless, unbelievably selfless," said Amanda about her father, Andrew. "He did everything for everybody. He worried enough for our family plus more. And never showed it. He worked extremely hard to provide us with everything we could possibly need."
Sofia
Sofia’s story starts in November 2022. Actually, it starts on March 17, 2019, when she was born. She has been my fierce, independent, strong-willed little girl from the get-go. Once she started walking, she was an unstoppable force. Contrary to her cautious, older brother, Sofia seemed fearless. She loved to climb to the top of the playground structure meant for kids twice her age. She loved gymnastics and took after Mommy with her love of the bars, anything she could hang or climb on.
Sophia
I was diagnosed with acute myeloid leukemia (AML) one month before finishing my freshman year of high school. It was shocking and devastating to me and my whole family. I had to leave school, be hospitalized, and begin intense chemotherapy immediately.
Tristan
I live in Colorado but grew up in Massachusetts and am an elite rock climber. I've traveled worldwide to climb and was the 2015 collegiate national champion. In April 2022, I was bouldering by myself and hit my shoulder on a rock behind me. Falls happen as frequently as a baseball player may swing a bat while climbing. This fall was nothing out of the ordinary except my shoulder was bruised far worse than I would expect from how hard I hit it, growing to the size of my hand by the next day. I remember looking at it initially and thinking, "Geez, I hope that's not leukemia."
Diagnosis
An accurate diagnosis of the type of leukemia is important. The exact diagnosis helps the doctor to
- Estimate how the disease will progress
- Determine the appropriate treatment
After your doctor or clinician takes your blood, he or she sends it to a lab for a complete blood count (CBC), which shows the number of red cells, white cells and platelets in your blood.
Disease Complications
As myelofibrosis (MF) progresses, complications may arise:
Thomas
I was originally diagnosed with acute myeloid leukemia (AML) in November 2008. I went through one induction chemo and four rounds of consolidation chemo and then I was considered cancer free.
In February 2017, my worst fears were confirmed when I was diagnosed with AML for the second time. This time, it took two induction treatments of chemo to be declared in remission. I was then given a month off and went back to the hospital for more chemo and a bone marrow transplant. The last chemo nearly cost me my life. My kidneys and liver were shutting down.
Thomas
I was diagnosed with acute lymphoblastic leukemia (ALL) on February 17, 2015 and, subsequently, spent 56 nights inpatient at St. Luke's Hospital in Milwaukee being treated by a truly wonderful nursing team on the 12th floor. On July 28, to celebrate my final four-day inpatient chemotherapy treatment session, I biked 19.5 miles from our home in Brookfield, WI to St. Luke's. I felt so good to overcome the bite of ALL and continue to do one of the things I love to do ... Biking.
Armaan
In January 2014, Armaan celebrated his 5th birthday. He was tested for anemia a few days later at the urging of his pediatrician as he looked a little pale. Our world was rocked several hours later when the pediatrician called to notify us that Armaan had leukemia.
Armaan was immediately admitted into Lucile Packard Children's Hospital in Stanford where he had a PICC line inserted into his arm and started his first round of chemotherapy. He is now in remission although he faces two more years of treatment to help ensure he doesn't relapse.
Nathan
Nathan is a young, T-cell lymphoma (TCL) survivor. He just rang the “end of treatment bell” a couple of months ago. His dad, Andy, is a member of The Leukemia & Lymphoma Society’s (LLS) Minnesota/North Dakota/South Dakota board and a major donor to The LLS Children’s Initiative through their family foundation’s fundraising.
Freia
Freia was diagnosed with acute lymphoblastic leukemia (ALL) at the age of 8. She and her family had just landed in Denmark for a family vacation when her parents noticed something wasn't right. After several trips to the hospital, they drove to Sweden where Freia’s grandparents live. It was there that her family heard those awful words, “Freia has cancer.”
Victor
Our father Victor was diagnosed in 1998 at the age of 30 with Burkitt non-Hodgkin lymphoma (BL). He was living in Los Angeles, California, at the time and had just gotten engaged to my mother, Debra. He began not feeling well and was diagnosed with a small mass in his stomach. He was told it was non-Hodgkin lymphoma (NHL). He contacted The Leukemia & Lymphoma Society (LLS), and in coordination with MD Anderson, he went to Texas, and a protocol was set in motion to fight this disease.
Jeremy
Lucy was diagnosed with acute lymphoblastic leukemia (ALL) when she was 32-weeks pregnant with our son Watson. She underwent two rounds of chemo while our son was inside her. After giving birth to our healthy, 4 lb., premature baby, she immediately went back to treatment with more rounds of chemo and a bone marrow transplant. After the transplant, she had to stay in 100 days of isolation where she could only see our newborn son through a glass window and wasn’t able to touch him due to her weakened immune system.
Melody
In November 2021, at just 24, Melody was diagnosed with stage 2 Hodgkin lymphoma (HL) after experiencing severe symptoms like profuse sweating, significant weight loss, and intense itching for the previous six months. After two biopsies and CT and PET scans, a tumor the size of a baseball growing quietly was discovered in her chest. She started treatment at City of Hope, enduring eight rounds of chemotherapy and six rounds of an immunotherapy trial. Her final treatment was on June 1, 2022, and she has been in remission for two years.
Side Effects
Chronic myeloid leukemia (CML) treatment can sometimes produce side effects. Most patients can manage their side effects without stopping therapy.
Before you start treatment, talk with your doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects. Many treatment side effects go away or become less noticeable over time.
Don
Like so many individuals diagnosed with blood cancer, I had zero thought that I might be ill, much less with a disease that could take my life.
I had signs and symptoms that something wasn’t quite right in my body, annoying things like shortness of breath, lightheadedness, and fatigue. However, nothing registered in my head until after my diagnosis.
It’s September 2005, and I am pretty much invincible, bulletproof! I could, in fact, leap tall buildings in a single bound! Yes, in my mind I was Superman!
Treatment Outcomes
AML is a difficult disease to cure, but survival rates for childhood AML have improved over the past several decades. From 2012 to 2018, the 5-year relative survival rate was 69.0 percent for children and adolescents younger than 15 years. However, there is a wide range of outcomes for different subtypes of AML.
For statistics, click here.
Related Links- Download or order LLS's free booklet:
Team In Training Participant
I joined Team In Training (TNT) in 2012, when I decided I wanted to train and run my first half marathon. Some of my friends had told me about their success with the program, and while I didn't have a personal connection to The Leukemia & Lymphoma (LLS), it was obviously a worthy cause and I felt I could handle the fundraising aspect.
I loved the experience; the training cycle, the coaches, the teammates, and even the fundraising. And they got me across that first finish line.
Amber
I was diagnosed with stage 3 Hodgkin lymphoma (HL) right before my 27th birthday. I had just finished my Master’s degree and was engaged to get married the same year. I was a special education teacher and wasn’t sure what to do with the news.
Vickie
I was diagnosed in 1974 at the age of 24 with Hodgkin lymphoma (HL). I had never even heard of it. The doctors did not know if I would survive as it was very aggressive. I had exploratory surgery (CAT scans and MRIs did not exist then as far as I know) and five weeks of radiation (I still glow in the dark, saves on night lights!!). Other than a couple of "unusual lymph nodes" over the years, I have been cancer-free. I went on to have two more great careers and was happily married for the first time at 49.
Miranda
A little over a year ago, I finished a treatment that saved my life and gave me purpose. In October 2016, I was diagnosed with stage IV of Hodgkin lymphoma and was fortunate enough to receive medical care that allowed me to conquer my cancer journey.
Kathie & Dave
Dave and I have been a part of The Leukemia & Lymphoma Society (LLS) since 1998. I can’t even remember how many Team In Training events we’ve done. We have both done at least one a year if not more since Michael, our son, was diagnosed.
This picture explains it all. Michael was 5 years old when he was diagnosed and of about 10 kids going through treatment with him at the time, I think only he and another are still here today. I know the statistics should be better but that’s the reality for us.
King
King has a rare combination of a blood cancer called leukemia (high risk) and G6PD which is an incurable, lifelong blood disorder. His treatment plan is 3 1/2 years of daily chemotherapy. He is up to 75 pills per month, and this does not include intravenous or spinal chemo.
Unfortunately, as he gets older, the amount of chemo and medication he has to take will increase. He is three years into treatment, and has experienced several severe complications throughout this time.