Search Results
Addison
Florida is my happy place. It's where I've vacationed for over three decades. And when my husband and I had kids, it became our family's happy place too. Schedules are forbidden on vacation. We tell time by the sun as we sit on the beach with our feet in the sand, watching the tide roll in and out. While on vacation, we celebrate birthdays ― and they're done up big ― because that's the only way that we know how to celebrate birthdays ― BIG.
Aiden
On November 6, 2022, God spoke to me and told me to take Aiden to the hospital. He had a lingering cough and random fevers that would come and go over the month. I took my parents to Philly airport and stopped by Nemours in Wilmington. I figured they would run some tests, and I would be told he had some infection. We would get medications and be on our way. When the nurse examined him, she asked about anything else going on. I mentioned he has had a lot of bruising lately, but he does karate and is a typical boy. We looked over his whole body, and I had not realized he had so many bruises!
Watch and Wait
Not all CLL patients need to start treatment immediately. “Watch and wait” is a valid treatment approach that means your doctor will watch your condition but not give you treatment unless you have signs or symptoms that appear or change. This approach includes:
Charles
I was alone with my doctor in the hospital when she told me I had no bone marrow matches in the world. I cried a lot that day. I was admitted two weeks prior, after relapsing from acute myeloid leukemia (AML), an aggressive blood cancer. As a husband, father and criminal prosecutor, I’ve dedicated my life to caring for my loved ones and protecting my community. Now, leukemia was threatening my life and there was no one that could protect me from it.
Shameel
Telling a child that they have cancer and explaining what that means is one of the most difficult conversations you can have with your child.
Shameel was diagnosed with acute lymphoblastic leukemia (ALL) at age 7. As a mother, I couldn't imagine my young, courageous boy, who appeared happy and healthy, not being able to do stuff like tennis, ice skating, piano, and swimming, which he enjoyed and had mastered. It was very shocking to me, and I was in denial for almost a month as cancer does not run in our family.
Joseph
Feb 10, 2012 has forever changed our lives. Joseph was 6 years old and in his fifth month of kindergarten. Joe's journey actually began many months prior. Shortly after starting kindergarten there were ear infections, fevers, belly pain, joint swelling and bone pain. All this from a child who was always very healthy. Feb 10, 2012, the definitive diagnosis of pre-b cell acute lymphoblastic leukemia (ALL) was echoing through my head. Joe was admitted to the hospital immediately and taken to the pediatric hematology/oncology floor.
Kenya
I was diagnosed with two blood cancers — multiple myeloma (MM) and chronic myelomonocytic leukemia (CMML).
Cancer entered my life at five years old when I lost my father to pancreatic cancer. Then again, when my oldest sister was diagnosed with breast cancer, she is now nine years cancer-free. Then again, when my mother was diagnosed with breast cancer. Sadly, we lost my mother in May 2019 to breast cancer
Diane
Mary was diagnosed with acute myeloid leukemia (AML) in May 2016. After a few rounds of chemotherapy that were ineffective in fighting the AML, she was transferred to a hospital specializing in AML research and has been participating in a medical trial.
This involved 75 hours of high intensity chemotherapy. She then spent 54 days in the hospital attached to an IV cart.
Her latest check-up revealed a few "stragglers" that need to be eliminated before she can proceed to transplant.
Ellie
Because she did not have symptoms, Ellie's diagnosis of Acute Lymphocytic Leukemia (ALL) at age four was incredibly shocking. Just one month after diagnosis, she was discharged from the hospital, already in remission. She responded extremely well to chemotherapy and very rarely felt sick. Ellie is now a healthy, very active 11 year old and a competitive gymnast, practicing 20 hours a week. She loves to play softball, hang with her friends, and go to the beach. Ellie is thankful to everyone who participates in the Light The Night Walk and helps kids like her fight cancer.
Emma
My dad, Panos, was diagnosed with kidney cancer when I was in the fourth grade. His cancer progressed very fast, and he passed away in 2019. My mom, Tricia, was diagnosed with chronic lymphocytic leukemia (CLL) shortly after. She has had many doctor appointments during this time, and I am so excited to be able to support her through it all and help raise awareness! I’ve spent most of my life surrounded by cancer, growing up visiting my grandma and dad in the hospital at a young age, and I am hoping to make a change by raising money for research and more.
Treatment Outcomes
Treatment results and outcomes vary among patients. Newer treatment therapies, better supportive care and studies of new drugs in clinical trials are all contributing to improved outcomes and quality of life for people diagnosed with blood cancers.
Clinical Trials
Taking part in a clinical trial may be the best treatment choice for some MDS patients. Clinical trials are under way for all MDS-risk types. Today's standard treatments for cancer are based on earlier clinical trials. LLS continues to invest funds in MDS research.
Click here to read more about clinical trials.
Jonathan
I had been feeling very tired and dealing with massive headaches for about a month. Friends and family started to notice my pale skin and that all I wanted to do was sleep, and I felt cold all the time. That’s not like me, and everybody knows that I don’t usually carry sweaters when it’s cold because I love the cold weather. But during this time, I felt very, very cold.
Anubha
I experienced extreme nausea and slight shortness of breath for a week prior to being diagnosed with acute promyelocytic leukemia (APL), clots in my lungs (PE), kidneys, and a valve of the heart on April 16, 2022.
I underwent intense treatment (induction phase) for 28 days and the consolidation phase for six months at Robert Wood Johnson University Hospital in New Jersey. My leukemia was treated with non-chemo drugs, ATRA and arsenic trioxide. With due thanks to the oncology team and nursing staff at RWJ, I am currently in remission.
Blake
Blake was recently diagnosed with acute lymphoblastic leukemia (ALL), and is now in interim maintenance.
It all started with unexpected wrist and leg pain that turned into three years worth of treatments and procedures. We were told he was anemic so we took him in for iron supplements. He then got very constipated and had terrible side and tummy pains, which led us back into the ER. They gave us laxatives and sent us home.
Jania
In November 2018, I was diagnosed with acute myeloid leukemia (AML). It's a type of cancer of the blood and bone marrow that progresses very rapidly. When I was initially diagnosed, I believed my life was over. As a seventeen-year-old high school student attending school from a homeless shelter, going to bed hungry most nights, I considered dropping out to help my mother with my younger sister and brother. I couldn't fathom the financial burdens that would follow with medical treatment. I felt like the more I attempted to correct things, the worse they became.
Jaden
My name is Jaden, and I am an 18-year-old Political Science student at Penn State University. I have been deeply involved with The Leukemia & Lymphoma Society (LLS) since I was 10 years old, a journey that began with a profound personal experience.
Ashley
My name is Ashley, and I was diagnosed with acute myeloid leukemia (AML) on February 21, 2024, during my junior year at Texas Tech University. I was struggling with my health for a couple of months but brushed it off as being tired from schoolwork as well as thinking I was just dehydrated. I was student teaching at a nearby elementary school when the school nurse told me I should go to the emergency room and get looked at due to my heart rate being so high.
Dr. Ghobrial
Irene Ghobrial, M.D., is trying to identify what causes myeloma cells to become drug resistant. She is also leading research to try to understand how to treat premalignant conditions like monoclonal gammopathy of undetermined significance (MGUS) and smoldering myeloma before they become the more deadly acute myeloid leukemia and myeloma, respectively. Dr. Ghobrial, along with DFCI’s Robert Soiffer, M.D., also leads LLS and DFCI’s collaboration through LLS’s Therapy Acceleration Program to bring clinical trials to local community cancer centers. Dr.
Dr. Wu
Catherine Wu, M.D., is focused on chronic lymphocytic leukemia (CLL). One aspect of her research is to gain greater understanding of the genetic underpinnings of CLL. She and her colleagues are studying the role that a mutated gene – SF3BL - plays in the development of CLL in order to develop improved strategies to treat CLL. Another focus on her lab is to develop an immunotherapy approach to treating CLL. She is working on employing a CLL-specific antigen to develop a personalized vaccine for patients with CLL. Dr.
Hirshel
My nickname is "The Running Rabbi" for competing in the New York Marathon. I visited the 52 hostages in Iran and received the Award of Courage from President Ronald Reagan. I have survived cancer five times, and in thanks for my life, I have dedicated myself to being a prayerful friend to my fellow cancer patients and their loved ones everywhere. I welcome cancer patients to contact me for prayer and support. I am also the co-author of a book that chronicles my battle with hairy cell leukemia (HCL) and diffuse large B-cell lymphoma (DLBCL) and my spiritual triumph over despair.
Finances and Insurance Coverage
Healthcare costs are a key concern for most people with blood cancer. Many patients don't have health insurance, and for others, coverage is limited. If you have health insurance, it's essential that you know what your plan covers and how to maintain your benefits.
Where to Start
You and your family will need to decide how to pay for treatment while managing household finances. You probably also need to consider additional indirect costs, such as lost time from work, childcare and travel expenses.
End-of-Life Care
Awareness and discussion of end-of-life issues is an important aspect of care for any serious illness and helps improve quality of life. Talk to your child’s healthcare team about treatment goals and any concerns you have related to prognosis, treatment outcomes and end-of-life care.