Search Results

Lisa

I was diagnosed with non-Hodgkin follicular lymphoma in December 1995 after finding a lump in my neck. My son had just turned 7 years old and I was so afraid I would not be around to see him grow up.

Today, my son is almost 27.  I have gone though many battles with this illness throughout my 20-year fight. I've taken pills, I've had chemotherapy and last year I finished radiation. I currently have two tumors but I am on a "watch and wait" protocol. No symptoms and no treatments.

Lena

In 2018, I had what I thought was a urinary tract infection (UTI). It ended up being a tumor in my bladder the size of a lime. It turned out to be diffuse large B-cell non-Hodgkin lymphoma (DLBCL). I ended up doing six rounds of R-CHOP chemo with Neulasta® and a month of radiation afterward. I am grateful to be alive but do have lingering side effects with chemo brain/memory loss, neuropathy in my hands and right arm, loss of taste for certain foods/drinks, and weight gain from prednisone.

Brandon

I was diagnosed with acute lymphoblastic leukemia (ALL) in 2019 a week before my birthday. My mom took me to the doctor for a routine checkup because I was feeling tired, sleepy, and did not want to eat. That day I was rushed to the ER where I was admitted to Children's Hospital New Orleans. After running bloodwork, my parents were told I had cancer. Our lives changed completely after that day. I spent months in the hospital, my mom stopped working to take care of me, and my dad was the heart and soul of the family, staying strong so we all could stay positive.

Levi

After months of being sick and being in and out of the hospital, doctors placed two adult-size chest tubes in Levi’s chest to clear his lungs of fluid. While placing the tubes, his surgeon found an orange-sized tumor in his lung. Hours later, he was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL) at just four years old. He has endured countless treatments, side effects, and changes in the last two years. He has persevered and smiled all while fighting the "monster that tried to kill him." He has made an impact on others around him and has openly shared about his cancer battle.

John

I have been battling acute myeloid leukemia (AML) since October 24, 2023. I am an outpatient at Roswell Park currently. I spent over three to four months inpatient, and I had a bone marrow transplant on February 9, 2024.

Clinical Trials

When it comes to finding the right treatment for your child's cancer, a clinical trial may be an option. Your child will have access to new or improved therapies under study and not yet on the market. Discuss with your child's doctor the possibility of participating in a clinical trial, where treatment is administered in a safe, closely monitored environment.

Click here to read more about clinical trials.

Munira

I will never underestimate my parents' sacrifices to provide my siblings and me with the millions of opportunities we have due to their hard work. My parents were born and raised in Addis Ababa, Ethiopia. Both were born to families who instilled the traditional family value of grit in every walk of life. My parents both obtained a high school diploma with the intent of seeking higher education, but the obstacles of living in a developing country robbed them of the chance.

Robert

My story starts in March 1983. I was lucky to have been chosen to attend Squadron Officer School in residence at Maxwell, AFB, Alabama. I was, I thought, a healthy 28-year-old and newly married with a promotion to captain the following month. Then, a worrying symptom suddenly occurred. Everything was going dark briefly under physical exertion. I shrugged it off as heat exhaustion until just climbing one flight of stairs resulted in a blackout without unconsciousness. It was then I decided to drive home for the weekend to advise my wife and decide my course of action.

Tatijane

On February 19, 2021, I was diagnosed with acute lymphoblastic leukemia (ALL), both B and T cells, and given six to eight weeks to live. I was 24 years old. I was diagnosed alone in the ER because of COVID-19 protocols and unable to see my family and friends in person for a week or two because of testing, port placements, and biopsies. It was like an earthquake that shook up my life as well as all my loved ones’ lives, and all I wanted was to hug my mom.

Michele

I was recently diagnosed with chronic lymphocytic leukemia (CLL). My mom passed away from pulmonary fibrosis right before Thanksgiving 2022. She never smoked and had none of the risk factors that led to that type of disease. So, I thought I would get a physical to make sure I was healthy. I have a 2½-year-old daughter, and I am an older mom, so I figured I should make sure my lungs were healthy. I didn't even have a primary care physician, so I asked my good friends for a recommendation.

Anna

I’m from Hungary. I’m 34 years old and just recently moved to Durango, Colorado, to marry my husband, Joe. For two years, we worked through a long-distance relationship during COVID and thought we would never face a tougher task in life than facing an uncertain future beset by travel restrictions, an eight-hour time difference, and thousands of miles. We wed in July, settled into our house we’d moved into in March, and I had just qualified for my work permit and landed a wonderful job as the Communications Specialist at a local non-profit.

Gal

My name is Gal, and I am 21. In 2011, I moved to California from Israel. Within a few months, I was diagnosed with acute lymphoblastic leukemia (ALL). I was only eight. I was dismissed by doctors for four weeks because I was too young even though I showed clear signs of blood cancer. My bones hurt a lot. I started to get a lot of big bruises, and I had an insanely high fever. I was in treatment for two years and seven months. I survived in 2013 as I entered my teen years. When I was sick, I would go to a camp called Camp Simcha. It is a camp for cancer patients in upstate New York.

Courtney

In March 2022, I began experiencing unusual symptoms of fatigue, nausea, persistent infections, and bloody noses and gums, but I didn’t think much of it. Following a lucky-timed appointment with my primary care doctor and multiple blood tests, I was diagnosed with acute lymphoblastic leukemia (ALL). Cancer isn’t something an otherwise “healthy” 27-year-old thinks will come out of a doctor’s mouth.

Renata

The best thing and the worst thing to ever happen to me happened at the same time. On my birthday, I found out that I was pregnant. That explained (I thought) why I felt so run down and lethargic. My husband and I were over the moon as this was our first child. 

As weeks went by, what I thought was morning sickness hit me hard. I couldn’t keep food down. My doctor gave me meds; nothing helped. 

Grayton

I am Grayton Bliss and I am a survivor! I was diagnosed with acute lymphoblastic leukemia in December 2008, at four years old. Today, I am 13 years old and I have conquered the disease and am in remission. My mother and father tell my story with a full and happy heart. We look back at photos taken just a few months prior to diagnosis and we can see the physical characteristics of the disease. My face was pale, my body thin and my skin bruised. Every photo I look at show a little more of the illness as if slowly my body giving into the disease.

Jaimie Potvin

Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.

Tim

On March 10, 2015 I reached another milestone and turned 60 years young. I have been blessed with good health and the ability to swim, bike, and run. For over a decade I have been involved with The Leukemia & Lymphoma Society (LLS) as a board member and participant in more than a dozen fundraising triathlons/marathons for Team In Training events all over the world. My efforts will continue until cures for blood-related cancers are realized.

Liliana

Ciara and Liliana were born a few years apart and grew up in a happy home with their mother, Heather and father, Danny. I would describe Ciara, age 7, and Liliana, age 5, as always smiling, always playing, always pretending, always hiding and always giggling. Happiness was contagious when you were around them. Both girls had big brown eyes and long brown hair and their beauty was only matched by their genuine kindness.

Janet

My caregiver journey began in 2005, when my husband found a lump on his neck and was diagnosed with a rare form of non-Hodgkin lymphoma. After being admitted to the hospital for nine rounds of chemotherapy, he went into remission.

Danielle

I am currently on the Board of Trustees for The Leukemia & Lymphoma Society's Minnesota chapter. The reason why I decided to dedicate my time, talents and networks to this organization is because I am passionate about finding a cure for cancer. This passion runs so deep in me, it serves as a constant reminder of how fleeting life can be. And, that everyone deserves a lifetime.

Charles

In June 2018, I was diagnosed with acute lymphoblastic leukemia (ALL) while living in Italy. I was shocked. After six months of mysterious rashes and illnesses, the pieces finally came together at a walk-in clinic off Piazza di Spagna. Sounds romantic, huh? It wasn’t.

Volunteer

It all began in 2010 after my friend Cara and I ran the LA Marathon. We had already trained on our own for the 26.2 miles race. I thought, “Why not just keep running?” That’s when I found the nonprofit The Leukemia & Lymphoma Society and their fundraising program called Team In Training (TNT)! TNT was the only program you could volunteer with to get a secured race entry into the San Francisco Nike Women's Marathon. So, I registered for an informational meeting at the mall near my parents' house, listened to the staff and coaches, as well as a survivor, and I was hooked.

Kassandra

Exactly a month before my 24th birthday, I was diagnosed with acute lymphoblastic leukemia (ALL). As a young adult, hearing the words “you have cancer” come from a physician’s mouth was earth-shattering, to say the least.

Prior to my diagnosis, I had been working in clinical research and was enrolled in a Biomedical Science Master’s program with hopes of continuing to medical school and becoming a physician. However, my career aspirations were placed on hold when I received my diagnosis. Immediately, my dedicated student lifestyle turned into one of a full-time patient.

Cayden

In April 2020, three-year-old Cayden began experiencing leg pain and developed an unusual limp that alarmed his mother, Courtney. Soon, the pain progressed to a stiff neck and loss of appetite. Just two weeks later, after multiple tests and doctor appointments, Courtney and her husband would hear the words that every parent fears, "your child has cancer". Cayden was diagnosed with a high-risk form of blood cancer, Philadelphia chromosome-positive acute lymphoblastic leukemia (ALL).

Toben

Toben had entered preschool at 3½ years old, and within a few months, he was getting sick often. He started getting random fevers that would go away in a day. When he got leg and arm pains, we started to get concerned. The pains were so bad that he couldn't walk and would wince when we picked him up or moved him. At his four-year check-up, he wasn't showing any signs or symptoms, so we chalked it up to growing pains. Most of the summer he was fine, but by the end of July, the symptoms were stronger and lasted longer and longer.