Search Results
Arturo Pierre
I’m 61 years old. I was diagnosed with chronic lymphocytic leukemia (CLL) the first time at 51, unaware of any symptoms. I was told that my diagnosis at my age was unusual. After chemotherapy and remission, the disease returned during COVID while I was being treated orally. The second experience was much worse. I’m in clinical remission for the second time in 10 years. Besides CLL, I wrestle with numerous orthopedic issues. I live an active lifestyle and maintain a healthy diet, exercise regularly, and work full time.
Side Effects
Cancer therapy for non-Hodgkin lymphoma (NHL) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.
Before you undergo treatment, talk with your doctor about potential side effects. In recent years, new drugs and other therapies have increased the ability to control side effects.
Erika
I am a 36-year-old cancer survivor. In February 2014, I found a suspect lump and had become unusually tired. I was a career-driven single mother of a very active 10-year-old boy, so when I say unusually tired it was time to call the doctor. Within days I was thrown into the crazy and often times confusing world of hospital appointments and insurance company battles for various procedures and surgical biopsies. We became pros at the waiting game.
Clinical Trials
Taking part in a clinical trial may be the best treatment choice for some MDS patients. Clinical trials are under way for all MDS-risk types. Today's standard treatments for cancer are based on earlier clinical trials. LLS continues to invest funds in MDS research.
Click here to read more about clinical trials.
ALL Subtypes
Doctors classify acute lymphoblastic leukemia (ALL) into subtypes by using various tests. It's important to get an accurate diagnosis since your subtype plays a large part in deciding the type of treatment you'll receive. Depending on your ALL subtype, the doctor will determine
Finances and Insurance Coverage
Healthcare costs are a key concern for most people with blood cancer. Many patients don't have health insurance, and for others, coverage is limited. If you have health insurance, it's essential that you know what your plan covers and how to maintain your benefits.
Where to Start
You and your family will need to decide how to pay for treatment while managing household finances. You probably also need to consider additional indirect costs, such as lost time from work, childcare and travel expenses.
End-of-Life Care
Awareness and discussion of end-of-life issues is an important aspect of care for any serious illness and helps improve quality of life. Talk to your child’s healthcare team about treatment goals and any concerns you have related to prognosis, treatment outcomes and end-of-life care.
Cassie
Cassie Fetsch is a regular volunteer for The Leukemia & Lymphoma Society’s (LLS) Minnesota chapter. When school is out, staff members can count on Cassie to be in the office folding letters, stuffing and labeling envelopes, counting Team In Training brochures, cleaning out drawers or putting together pizza boxes. Since Domino's sponsors LLS's Pennies for Patients program, they donate all the boxes to ship campaign supplies. This year, Cassie assembled boxes for more than 800 schools!
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
Cary
Cary was diagnosed with Acute Lymphoblastic Leukemia in the fall of 2012. After spending more than 100 days in the hospital, undergoing intense chemo treatments, and blood transfusions Cary is now in remission. You can only imagine the struggle and heartache a cancer diagnoses was at only 33 years of age with a wife, 3 small boys, and a career.
Janel
Throughout my childhood, my grandmother instilled in me the importance of helping those in need and gave generously to various charities and organizations. Her unwavering dedication to serving others inspired me to continue her legacy and give back to my community.
Cooper
I am Cooper, and I am a leukemia survivor. I am 26 and creating businesses around the creativity space. I am a healer and author of multiple books. I was diagnosed with leukemia at the age of seven. I did treatment for 2½ years with chemotherapy. I have been in remission for 16 years. I am grateful to be here. I have donated around $100,000 to The Leukemia & Lymphoma Society (LLS). I have done Pennies for Patients (PFP), Student Of The Year (SOY), and been an Honored Hero for multiple events. My high school raised $10,000 in one week for PFP.
David
My dad, David, was diagnosed with acute lymphoblastic leukemia (ALL) on March 1, 1993, after looking at his blood under a microscope in college class. He started three years of intense chemotherapy on March 8, 1993, and finished it on January 26, 1996, while a third-year medical student. He was told that there was a 50% survival at five years and 30% survival at 10 years and that he would likely not be able to have children. During that time, he got married. Two years after finishing chemo, my oldest brother was born. I have three older brothers and an older sister.
Joe
My son Joe was 5 years old when he was diagnosed with T-cell leukemia just three days after the birth of his brother Cole – Joe was admitted to the ICU, and on Sunday, the next day, they did a spinal tap and a bone marrow biopsy. At midnight that night, he started his chemotherapy treatments.
In the first 30 days, his bone marrow had cleared to zero, and he was technically designated as a “low risk rapid responder.” All things being equal, he has done a phenomenal job through this.
He is in long-term maintenance and he finished his treatment on December 13, 2014.
Dean
In October 2015, after a trip to the ER with pain in my abdomen, I was diagnosed with stage 3, large B cell, multiple location, non-Hodgkin lymphoma.
My oncologist originally told me that the treatment plan would include 10 chemotherapy rounds, followed with radiation. I was out of work for eight weeks until my doctor decided I was in good enough health to return work.
Cancer affects everyone in your life that loves you — emotionally and financially. When you are sick, the bills do not stop coming, and in some cases, cancer can ruin people financially.
Myra
Over the course of Myra’s career in oncology nursing, she’s seen the hurdles that families face and heard from patients about the daily struggles to access the care they need to stay alive. Unfortunately, she is too familiar with patients who are forced to choose between life-saving treatment and going against a doctor’s recommended treatment plan simply because the cost is too high.
Jaden
When I was nominated to be a Student Visionary of the Year, I had no idea how it would impact my life. I was allowed to join a groundbreaking philanthropic leadership development program for high school students. Throughout my courageous seven-week journey, I had a goal of creating a world without blood cancers. It was bigger than winning; it was about making a real impact on the world around me. I learned business marketing skills, used effective communication tools, and met with fellow change-makers in my local area. By the end of the campaign, I felt like a new person.
James
In 2001, my wife and I had not been able to get pregnant after five years of marriage. We decided to look into adoption. As part of the application process, we were required to go for routine bloodwork. Soon after, I got a call at my desk at work that I needed to see an oncologist. I was informed I had chronic myelomonocytic leukemia (CMML), a rare form of leukemia.
Shelley
I went from being in the best shape of my life to battling cancer in only a few short months.
Three years ago, I made the choice to change my lifestyle, and I lost 100 lbs., which I can honestly say has saved my life. Prior to my cancer diagnosis, I was sharing my weight loss journey online to help others make positive choices. Little did I know that I was about to fight the biggest battle of my life!
Zeena
As an oblivious 14-year-old, I never imagined that I would soon go through the most difficult journey of my life. While on summer vacation with my family, we quickly realized I was not my energetic, joyous self. My favorite activities seemed like energy-draining tasks, and my large appetite had suddenly disappeared. The once quick trip up the stairs turned into a painful trek up a mountain and a walk down the street to a treacherous marathon with no end.
Seth
It was in my sophomore year at the University of Colorado Colorado Springs right around March 2021 when I first discovered the lump in my neck. I was simply doing homework at my desk, and my hand unconsciously brushed against my neck. I stopped and started to feel the unusual lump in my neck.
Soon after that, the tests started.
Eliot
It was my senior year of high school, and I was thriving: MVP of the soccer team that went to the state finals; strong academics with an offer to study Natural Sciences at Durham University, one of England’s finest; fantastic friends who were to become even more important to me. My biggest challenge was getting a date for the prom! Things that were within my control were going really well. However, things outside of my control then flexed their powerful muscles, and that high school life ended and a new one began.
Anthony
December of 2017 was a difficult time for me. It is the month that is usually filled with happiness, excitement and Christmas cheer. For me, it was the month I found out that I had Hodgkin lymphoma. It’s crazy when you think about it – we see all of these facts and figures about people who are diagnosed with cancer and we never, really, truly believe it could happen to us.