Search Results
Tim
I knew multiple myeloma (MM) was a blood cancer. After all, my mom was diagnosed with myeloma at 62 years old in 2005. It’s extremely rare that I should also be diagnosed in 2021, but it happened. There’s no strong data that shows that it’s hereditary at this point. But more doctors are seeing family members being diagnosed. It's also becoming one of the most diagnosed cancers among African Americans.
Amber
I was diagnosed with stage 3 Hodgkin lymphoma (HL) right before my 27th birthday. I had just finished my Master’s degree and was engaged to get married the same year. I was a special education teacher and wasn’t sure what to do with the news.
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
David
My dad, David, was diagnosed with acute lymphoblastic leukemia (ALL) on March 1, 1993, after looking at his blood under a microscope in college class. He started three years of intense chemotherapy on March 8, 1993, and finished it on January 26, 1996, while a third-year medical student. He was told that there was a 50% survival at five years and 30% survival at 10 years and that he would likely not be able to have children. During that time, he got married. Two years after finishing chemo, my oldest brother was born. I have three older brothers and an older sister.
Funeral Planning
A funeral or memorial service can help you cope after the loss of a loved one. In the early days of grief, navigating the practical issues that arise after death may feel overwhelming. Your loved one may have left instructions for you, or the decisions may be up to you or another family member. Many people may not be aware of the cost of funeral planning or the options available to families. Even if you do not plan to hold a traditional funeral, certain decisions still need to be made.
Why Monthly Giving Matters
Giving regularly over time = giving patients and survivors the chance for more time.
Monthly giving really deserves more credit—credit as a predictable, impactful funding force for our lifesaving and life-changing work. For The Leukemia & Lymphoma Society (LLS), the reliability of a regular gift helps to sustain cutting-edge research and to provide the free resources and support blood cancer patients and survivors need to live longer, better lives.
It’s about ongoing generosity. It’s about creating a lasting impact.
And...
Moving Forward: 4 Young Blood Cancer Survivors Look Ahead
Blood cancer survivors have a unique path ahead of them—and that can feel challenging.
Questions come up: Does treatment mean I have to pause everything? Do I tell my friends or coworkers (and how)? With my medical bills, how can I afford the education I want?
Shar
For the past nine years as a physician assistant, I have had the privilege of taking care of acute leukemia, high-risk lymphoma and bone marrow transplant patients at the Intermountain Blood and Marrow Transplant Program. Throughout my years at this job, I have seen the struggles patients and their families face once they’ve been told “you have cancer.” I've enjoyed being an important part of our patients’ medical team, helping them heal physically and emotionally, but I wanted to do more.
Dental and Oral Complications
Side effects of cancer treatment may cause a variety of problems affecting the mouth, teeth and jaw, and they impact your quality of life. The side effects you experience will depend on the type and duration of the treatment you receive. There are things you can do to decrease the risk of dental and oral problems.
A thorough oral evaluation by a dental professional is recommended prior to treatment. During and after treatment, work closely with your entire healthcare team to manage any oral complications. Proper dental hygiene on an ongoing basis is essential.
Sofia
As a five-year survivor of Hodgkin lymphoma (HL), I have come to truly appreciate the value of life's opportunities and the importance of being fully present in every moment. My battle against cancer has shaped me into a determined and compassionate individual, instilling in me a deep sense of empathy for others facing similar challenges. I am grateful to have been awarded a scholarship for cancer survivors by The Leukemia & Lymphoma Society (LLS), recognizing both my journey and my aspirations.
Anna
In 2016 I received one of the scariest calls. My 9-year-old niece had just been diagnosed with leukemia. I live on the opposite side of the country. I was by her side in under 12 hours where I spent the next month trading shifts with her mom as we watched her struggle through treatment. During her hospital stay, we learned of several children from our small community battling the same cancer. I began advocating for these kids and the situation grew bigger than we could have ever could have imagined. That story is for another time. I eventually had to come back home to Seattle.
Mendya
First, I must express appreciation to The Leukemia & Lymphoma Society (LLS) for providing educational resources, knowledge, and financial assistance to those of us affected by blood cancer. LLS spotlights blood cancer and gives a voice to so many like myself. Thank you. As a way to show my support to LLS and to raise awareness, I have raised $210 in September 2023, Blood Cancer Awareness Month (BCAM), via Facebook. This is just the beginning of my advocacy.
Bishoy
Born in Egypt, at the age of three, me and my family immigrated to the U.S. when I was diagnosed with acute lymphoblastic leukemia (ALL). I grew up in Long Island, New York, where I received treatment for 10 years. On my 13th birthday, I underwent brain surgery and remains cancer-free.
Brielle
Brielle, a beloved daughter, sister, and aunt, was diagnosed with acute lymphoblastic leukemia (ALL) on June 8, 2022, at just 22 years old. Given her age and history of ideal health, the news was more than shocking.
Things began to move quickly after the initial diagnosis. Plans were made for her to begin chemotherapy in Augusta, Georgia, which was a four-hour commute from home. Her family pulled together to provide financial and emotional support. Following a successful round of chemo, Brielle’s brother donated bone marrow for a bone marrow transplant.
George
I am a 72-year-old retired Information Technology professional. I was diagnosed with chronic lymphocytic leukemia (CLL) in June 2002 and remain in active treatment today. Over the last 22 years, I have had more than 700 trips for doctor visits, treatments, lab test, emergency room, hospitalizations, and pharmacy. My biggest challenge over the years is managing the cost of premiums, medical treatment, drugs, travel, and medical appliances. I found multiple resources that stepped in to assist me with my financial challenges related to my CLL.
Why We Love Nurses (And You Should Too!)
It makes sense that at diagnosis and throughout treatment, someone diagnosed with a blood cancer will look around them for answers or support.
Clio
I lost my mom to acute lymphoblastic leukemia (ALL) in 2003. Her battle was short, just three months, which left me in shock and feeling very angry. My mom had always instilled in me the value of working hard to accomplish goals and I knew she wouldn’t want me wasting energy being angry. In late 2004, I decided to find a way to channel the anger into something productive, and just weeks later I came across a Team In Training (TNT) brochure. I started running half marathons with TNT and I’ve since completed about a dozen.
Tasnim
What started as an internship opportunity turned into so much more for Tasnim Al-Smadi when she began working with LLS in the summer of 2021. Tasnim, who is pursuing her bachelor’s degree in Healthcare Management at the University of Texas at Dallas, was initially drawn to an internship at LLS because she is interested in working at a non-profit healthcare organization after graduation.
George
I was born in the inner city of Philadelphia, PA in 1951, I currently live near Dallas, Texas. My professional career in the Information Technology Industry lasted over 40 years prior to my retirement in January 2019. In 2002 I was diagnosed with chronic lymphocytic leukemia (CLL) and many aspects of my life changed forever.
Books for Adult Patients and Their Caregivers
Dealing with a cancer diagnosis, treatment or long-term survival issues can sometimes be overwhelming or confusing. If you're an adult patient or the caregiver of an adult patient, there are books that can help you find ways to better manage your new responsibilities. Click on one of the following topics to find books that can help you cope.
Other Helpful Organizations
In addition to our programs and services for blood cancer patients, families and caregivers, LLS is pleased to offer an extensive directory of national and international resources. These organizations can help with cancer-related issues like financial assistance, support and counseling, assistance with transportation, etc. It may be helpful for you to browse through each section to discover all that is offered.
Hunter
I would like to introduce everyone to my little warrior, Hunter. When he was just four years old, he had an enlarged stomach that just kept getting bigger and bigger with no answers as to why. Well, finally in October, his doctor sent him for more testing to hopefully finally get a diagnosis that could be treated. We were thinking appendicitis, which would be an easier cure than leukemia. On October 26, 2021, when we were referred to the Children's Hospital of Wisconsin, our worst fear became a reality.
Brian
Brian was diagnosed with a rare form of Burkett’s related, high-grade B-cell lymphoma in May 2019. He currently receives both in-patient and out-patient chemotherapy, with cycles where he receives chemo for seven days in a row 24 hours a day. Between these cycles he has anywhere from 2-3 weeks off, though he still travels to the hospital for appointments three times a week (blood transfusions, blood work, IV’s, spinal taps etc.).
Jim & Leslie
Jim and Leslie Donigan have been married for almost 50 years. Currently retired with three adult children, they have both faced a cancer diagnosis, but are in remission today.
In October of 2003, Leslie was diagnosed with a stomach cancer called GIST (Gastrointestinal Stromal Tumors) and was told it was terminal. But then her doctor tried a medication intended for blood cancer—and it worked.