Search Results
Megan
At 31, I was diagnosed with acute myeloid leukemia (AML). It all started with what I thought was a cold or maybe COVID. I kept working, brushing off the symptoms as something minor. But things got worse. I had a persistent cough and unexplained bruises, and I felt constantly out of breath. When I lost part of the vision in my right eye, I knew something was seriously wrong, but without insurance, I hesitated to seek help.
Kelly
In 2001, I was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL) at age three and survived thanks to three and a half years of intense treatment at the City of Hope Los Angeles. I am now 25 years old, a college graduate, and working for The Leukemia & Lymphoma Society (LLS), hoping to give back to those who helped save my life. I have volunteered with LLS since 2009 after being chosen as their "Girl of the Year" to inspire candidates to raise money for blood cancer research. In 2017, I became a candidate for the Student of the Year campaign raising over $60,000 in seven weeks.
Lena
In 2018, I had what I thought was a urinary tract infection (UTI). It ended up being a tumor in my bladder the size of a lime. It turned out to be diffuse large B-cell non-Hodgkin lymphoma (DLBCL). I ended up doing six rounds of R-CHOP chemo with Neulasta® and a month of radiation afterward. I am grateful to be alive but do have lingering side effects with chemo brain/memory loss, neuropathy in my hands and right arm, loss of taste for certain foods/drinks, and weight gain from prednisone.
Blaine Davis
Everything happens for a reason, even cancer. I am thrilled to say I just walked out of the hospital doors at Memorial Sloan Kettering Cancer Center after receiving the news that I have achieved a complete and total REMISSION. Leukemia pushed me to death’s door more than once, and it taught me more than I could ever dream of knowing about myself and life in general.
J.J.
The first time I remember hearing of The Leukemia & Lymphoma Society (LLS) was through Team In Training (TNT), specifically from a brochure I picked up at a bike shop that invited one to train for a 109-mile bike ride with TNT. It was 2007, and I thought it sounded like a blast. I convinced my girlfriend at the time, Stacey, to join me. We used the occasion to buy some fancy new bikes. With some fundraising and committed training dates, we would be able to say we had done a Century Bike Ride! Cool!
Sarah
In August of 2014, after a routine medical procedure, doctors suspected that Sarah may have a lymphoma type cancer. Soon thereafter, with her husband by her side, doctors confirmed that Sarah indeed had cancer, stage 2 Hodgkin lymphoma.
Anne
My story with leukemia began in July 2016 when I was diagnosed with chronic myeloid leukemia (CML). It was four months and 13 days after my wedding to my husband Eddie, and one month to the day after our vow renewal ceremony. What we didn’t realize at the time was that my body had likely been fighting for months. I thought my exhaustion was from wedding planning and running my writing business.
Layla
"Our LLS chapter has been there for us, with support and information that has helped immensely. We've formed a friends and family Ttam for the Light The Night Walk and it feels so rewarding to raise funds to help others who, like Layla, are bravely battling blood cancers." Alecia | Layla's mom
Kelvin
I was diagnosed with multiple myeloma in February 2014. My journey with The Leukemia & Lymphoma Society (LLS) began one year later when I signed up to participate in my first-ever Light The Night Walk and put together a fundraising team.
The event was amazing and all my family and friends were there to show support. When the blood cancer survivors moved to the middle of the survivor circle to light up their lanterns, it was one of the most powerful moments I’ve ever experienced.
Lori
Our daughter Britta Wolfarth was 19 when she was diagnosed with AML. We were shocked because we thought it was a blood disorder due to her lupus. The same day for the guy diagnosed she started treatment at West Penn in Pittsburgh right away.
Britta underwent months of chemo and radiation. Britta had to have a bone marrow transplant. Her first owner fell through but the transplant team at West Penn never gave up and found us another donor 2 months later from the National Registry.
Greysun
Hi! My name is Greysun! I was diagnosed with acute myeloid leukemia (AML) on March 23, 2011. I was fortunate to get outstanding medical treatment at UNC Children's Hospital and the cancer center. I have been through many rounds of chemo followed by up to six weeks of hospitalization after each one. I have had radiation to my brain followed up by my first bone marrow transplant.
Roberto
In the fall of 2014, I was living my dream. I had just finished my freshman year at NYU, where I studying musical theater. I was living in the East Village, experiencing everything that New York has to offer. Even though I was a long way from my family in Miami, I absolutely loved it. However, I soon started to feel lethargic, coupled with a lymph node that was popping out of my neck and getting bigger. Something just wasn’t right. I was downing 9 Advil a day and started seeing doctors to try and figure out what was going on.
Amanda
My name is Amanda, and I am a stage 4b classical multicellularity Hodgkin lymphoma (CHL) survivor. It all started after spring break of my junior year of high school. I was on a ski trip when I noticed my feet were more itchy than normal. I figured it was from the boots. After coming home and realizing it had gotten worse, we went to the pediatrician. She looked at the bruises and scratch marks on my legs and diagnosed me with scabies. I did the whole treatment for that, and obviously, it didn’t work. A week or two later. we went back and had some basic bloodwork done.
Allie
When I was in fourth grade, back in 2015, my older brother Nate (a freshman in high school at the time) was rushed down by ambulance to the U of M Masonic Children’s Hospital. His spleen was holding 10x the normal amount of red blood cells. This led to the discovery of his cancer. He was later diagnosed with chronic myeloid leukemia (CML).
Immunotherapy
Immunotherapy, also called biological therapy, utilizes your own immune system to fight cancer. It generally results in fewer short-term side effects than chemotherapy does.
Immunotherapies being used or studied to treat blood cancer include:
James
My symptoms began in May 2017. I was having shortness of breath while climbing stairs and jogging up even the smallest of inclines. I chalked my windedness to age; I was fifty-seven. And I told myself that I was tired after teaching a hectic school year.
Acute Myeloid Leukemia
Acute Myeloid Leukemia (AML)Acute myeloid leukemia (AML) is a cancer of the bone marrow and the blood that progresses rapidly without treatment. AML mostly affects cells that aren’t fully developed, leaving these cells unable to carry out their normal functions. It can be a difficult disease to treat; researchers are studying new approaches to AML therapy in clinical trials.
Types of Treatment
The factors that will determine your treatment regimen may include:
Marie
In early 2017 we found out my husband Miguel had non-Hodgkin's lymphoma diffuse large B-cell. It was the most frightening and overwhelming time of our lives. To this day I am amazed at how we got through it.
Ashlyn
My name is Ashlyn, and I am a leukemia survivor. At the age of 17, during my senior year of high school, I was diagnosed with acute myeloid leukemia (AML). AML is a rare cancer that affects your bone marrow and blood. My life changed on March 21, 2023, when I got this news. How could this be possible? Why me? Will I survive? These were some of the first few questions that entered my mind. I went through five rounds of chemotherapy and nine grueling months of being inpatient in the hospital. I wasn't able to go on my senior class trip to Disney World or attend senior prom.
Complications of CLL or CLL Treatment
InfectionPeople with CLL are more likely to get infections.
Kay and David LaFrance
As an 18-year breast cancer survivor, Kay was just starting to enjoy retirement in 2018 when she was diagnosed with mantle cell lymphoma. Even though she had fought cancer before, she was stricken with despair and disbelief and felt terrified of the road ahead of her. She had to travel to a different city to receive her specialized treatment, which was outside of her insurance network, so much of the costs came out of her own pocket. After a long, hard fight, she is now in remission, but lives with the everyday fear of her cancer coming back.