Search Results

Steven

I have a rare blood cancer. It is Waldenstrom macroglobulinemia (WM), a type of non-Hodgkin lymphoma (NHL), but some doctors say it has the same characteristics as POEMS syndrome.

I have very painful neuropathy, and it affects my legs and feet to the point that some days I cannot walk.

I have a spinal cord stimulator with the battery implanted in my back.

I am thankful to The Leukemia & Lymphoma Society (LLS) for my grants and all the other assistance, especially through this COVID pandemic.

Kevin

In 2011, I was given two months to live after I was diagnosed with acute myeloid leukemia (AML).

I had to stay at the Bone Marrow Transplant Center at the Salt Lake City Hospital for a very long time and undergo a very hard fight.

My aortic valve failed this year from the chemo, but I had open heart surgery in May 2017 and I am grateful to be alive!

I live in honor to all that passed in our family and those who are still fighting blood cancer. 

Mia

As Mia started her third grade year at elementary school she began complaining of pain in her legs. At first, her mom just thought it was normal growing pains. But then Mia started sleeping a lot more, lost her appetite and just didn’t have her normal level of energy. Mia’s parents, Alma and Ernesto, decided it was time to take her to the doctor.

Dylan

I was diagnosed with acute lymphoblastic leukemia (ALL) the summer of 2017, right before the start of my junior year in high school. Due to slow immune recovery after chemotherapy, I experienced many delays in treatment. By spring of the following year, I had a CNS and marrow relapse, requiring me to have a life-saving bone marrow transplant in June of 2018. Following the transplant, my body struggled to produce enough T-cells, which put me in medical isolation for the entirety of my senior year in high school.

Shelley

I went from being in the best shape of my life to battling cancer in only a few short months.

Three years ago, I made the choice to change my lifestyle, and I lost 100 lbs., which I can honestly say has saved my life. Prior to my cancer diagnosis, I was sharing my weight loss journey online to help others make positive choices. Little did I know that I was about to fight the biggest battle of my life!

Zeena

As an oblivious 14-year-old, I never imagined that I would soon go through the most difficult journey of my life. While on summer vacation with my family, we quickly realized I was not my energetic, joyous self. My favorite activities seemed like energy-draining tasks, and my large appetite had suddenly disappeared. The once quick trip up the stairs turned into a painful trek up a mountain and a walk down the street to a treacherous marathon with no end.

Cindy

Our church choir had put on a big Easter program in 2002, lots of practices and multiple performances. After the fact, several, including me, came down with an upper respiratory infection. All my friends got better, but I didn’t. Then I started having low energy to the point that I couldn’t do my daily workouts. Next came the appearance of big, ugly bruises on my legs. At that point, I thought I was anemic. When I called to get a doctor’s appointment, the only opening was with his nurse practitioner.

Disease- and Treatment-Related Pain

People with cancer can have pain caused by the cancer itself, its treatment, or both. They may also have pain caused by other health problems that are unrelated to cancer (like arthritis or diabetes).

Increased pain does not mean that the cancer is getting worse, but you should always tell your healthcare team if you have increased pain.

It’s important to remember that no matter what the cause, pain can be treated.

Lorelai

I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.

Stephanie

My journey with blood cancer began long before my diagnosis. In 2006, my world was shattered when my mom, just 52 years old, was diagnosed with acute myeloid leukemia (AML). She was quickly isolated in a specialized hospital, enduring grueling rounds of chemotherapy. I was about to start nursing school and desperately tried to educate myself on her illness, knowing deep down that the prognosis was grim. They mentioned a bone marrow transplant, but she never made it that far. A fungal pneumonia took her from us in December 2006.

Nathaniel

In 2015 at just 15 months old, Nathaniel started to get sick on a regular basis. He started running a fever and his blood count was really low and we pushed for answers when he wasn't getting better until we were told to go to the Children's Hospital. He was extremely pale, wouldn't eat, and lethargic at this point.

Myrrah

Acute lymphoblastic leukemia survivor travels from India to receive LLS-funded treatment

When Myrrah was just six years old, she was diagnosed with acute lymphoblastic leukemia. Her family lived in India at the time, where she received a year of intense treatment. When her blood work showed no signs of cancer, her family celebrated with a vacation to Europe. Then, during a routine checkup they learned that Myrrah’s cancer had returned and the doctors said there was nothing more they could do.

Jill

My world changed forever in April 2021. Life was going so well . . . I was 35 years old, my kids Henry (9), Olivia (7), and Ruby (5) were getting excited about summer break (and all the trips we had planned), my insurance business was in full swing, and all my plants and flowers were in bloom. I was doing what I loved most, working in the yard, when I noticed my right pinky finger was going numb, and I began having trouble walking. We immediately went to the ER. The doctors initially thought it was a stroke, but luckily a fantastic neurosurgeon was on call and saw the MRI.

Pilar

My name is Pilar, and I am 34 years old. I used to work for the workforce board of Philadelphia, working with youth, until I was diagnosed with acute myeloid leukemia (AML) back in October 2020. It has been a hard battle, but I am positive and blessed to have the support of my family and friends. Additionally, I was very fortunate my sister, Marcela, was a match to be my donor.

Mackenzie

I am a recipient of The Leukemia & Lymphoma Society’s (LLS) 2022-2023 Dreamers and Doers Scholarship for Blood Cancer Survivors.

I was initially diagnosed with acute lymphoblastic leukemia (ALL) at age 4, and after a successful two years of treatment, I went into remission. Unfortunately, at age 8, I relapsed. I am now 19 years old and a sophomore at McDaniel College. I am majoring in biology. I’m also a part of the honors program, and I play NCAA Division III Tennis.

Janiyah

Our beautiful Janiyah was diagnosed with acute lymphoblastic leukemia (ALL) at 14 months old.  Some will say by chance or luck, others say by the grace of God. Thirteen months earlier, Janiyah was diagnosed with hemoglobin C disease; simply defined as chronic anemia.

Gil

I was sitting alone in a stark, clean examination room on September 16, 2021, at the Dana Farber Cancer Institute (DFCI) in Brookline, Massachusetts when my oncologist walked in. I called my spouse and son on my cell phone so they could hear the results.

Loriana

In January 2014, award-winning health and fitness journalist, Loriana Hernandez-Aldama was shocked to learn that she had acute myeloid leukemia (AML). She received the diagnosis from her fertility doctor, who she had seen just days before to do a precautionary blood test for an embryo transfer. Instead of planning for a new baby, Loriana had to begin treatment for cancer.

Shortly after her diagnosis, Loriana said goodbye to her two-year-old son and boarded a plane to another state to begin chemotherapy.

Margot

I lost my father at age 53 to acute myeloid leukemia (AML) after a hard 13-month battle. I want to get involved with The Leukemia & Lymphoma Society (LLS) to spread awareness around leukemia and other blood cancers, to hopefully help other patients and loved ones going through this. My brother, Jack Austin, has run 2 marathons under the team "Running for Rob" and has fundraised over $10K for LLS. I want to get involved and fundraise to not only spread awareness and support to those dealing with this dreadful disease.

Elissa

Ten years ago, my mother-in-law was diagnosed with stage 4 non-Hodgkin lymphoma (NHL). She has since been deemed cured and has had no recurrence since her successful treatment. Some of her medicines were funded by The Leukemia & Lymphoma Society (LLS). We spent years racing for Team In Training (TNT) to fundraise for LLS. 

Jennifer

In 1985, 10-year-old Jennifer took to the stage to accept The Leukemia & Lymphoma Society’s (LLS) “Employee of the Year” award for her mother, Teresa McVay, who had lost her battle against chronic myelogenous leukemia earlier that year. That was Jennifer’s first time speaking on stage, but it would not be her last. Driven by her mother’s traumatic passing, Jennifer has been a public speaker on Adverse Childhood Events (ACEs), sharing her own experience with loss in order to bring awareness to the cause.

Auden

Eight-year-old Auden was diagnosed with T-cell acute lymphoblastic leukemia (ALL) in May 2015 – one month after him and his twin sister, Emery, celebrated their third birthday.

Immediately, Auden underwent aggressive treatment causing him to have blood stream infections, anaphylactic reactions, kidney stones and broken bones, just to name a few. But he kept a positive attitude through it all and Emery has been by his side, cheering him on at every stage of his cancer journey.

Auden’s treatment continued until August 2018, and today, he is proud to say he is cancer-free!

Eileen

To say that I have always been daddy's little girl would be the biggest understatement. Everything from school dances to projects in the garage, I could always be found by my dad's side. In 2009, my dad was diagnosed with acute myeloid leukemia (AML).

Monica

Our daughter, Monica, is a busy mother of three sweet girls, age 12 months, 3 years and 6 years. After a long winter filled with the girls’ colds, infections, and flu, Monica was exhausted.

Brittany

Brittany, a 37-year-old mother, is currently fighting leukemia for the second time. Known for her generosity and support for others, Brittany enjoys traveling, spending time with family, and above all, loving her son. Unfortunately, on August 6, 2022, Brittany received an unexpected diagnosis of acute myeloid leukemia (AML) when she was 35 weeks pregnant. This news shattered her perfect pregnancy plans and forced her into a battle against cancer.