Search Results

Mark

At the age of 18, my dad, Mark Brightbill, was diagnosed with Stage 3 Hodgkin lymphoma and underwent chemo and radiation.  The Tuesday after my now husband and I got engaged, he was diagnosed with nodular LP Hodgkin lymphoma (after 30 years in remission).

Michele

I was recently diagnosed with chronic lymphocytic leukemia (CLL). My mom passed away from pulmonary fibrosis right before Thanksgiving 2022. She never smoked and had none of the risk factors that led to that type of disease. So, I thought I would get a physical to make sure I was healthy. I have a 2½-year-old daughter, and I am an older mom, so I figured I should make sure my lungs were healthy. I didn't even have a primary care physician, so I asked my good friends for a recommendation.

Katharine

My mother, Nancy, was diagnosed with acute myeloid leukemia (AML) with a FLT3 mutation in March 2022. Over the next year and a half, she went through multiple rounds and regimens of inpatient and outpatient chemotherapy. At every step along the way, every member of my mom's care team kept mentioning how the outlook for patients like my mom was so much better now than it had been even 10 years ago thanks to advances in medicine.

Stem Cell Transplantation

The goal of stem cell transplantation is to cure the patient’s cancer by destroying the cancer cells in the bone marrow with high doses of chemotherapy and then replacing them with new, healthy blood-forming stem cells. The healthy blood stem cells will grow and multiply forming new bone marrow and blood cells. There are two main types of stem cell transplantation. They are

Rachel

My name is Rachel. My tribal affiliation is full-blood Chickasaw/Creek/Seminole. I am 19 years old and will be entering my second year at the University of Oklahoma in Norman, Oklahoma. I attended Little Axe Schools from Kindergarten to my senior year of high school. Little Axe is a rural community school outside of Norman, Oklahoma. My parents are both full-blood Natives, and I have an older brother (25) and a younger brother (16). My older brother, Caleb, is a state trooper for the State of Oklahoma. My younger brother, Andrew, will be starting the 10th grade at Little Axe High School.

Julie

March 22, 2020- 7 years since acute myeloid leukemia (AML) diagnosis, CURED!!! I am so blessed to be alive to celebrate my 7th year since diagnosis of AML! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling to cancer stats which is something I highly discourage. The first problem with AML stats specifically-the mean DX age of 68ish.

Steve

In June of 2016, I went to my primary care physician for a routine physical. Lab work revealed an abnormally low white blood cell count, triggering a bone marrow biopsy that found acute myeloid leukemia. In 48 hours, I went from feeling perfectly fine to a week-long, 24/7, chemotherapy cocktail. That was followed by four more weeks in the hospital to treat the inevitable infections and side effects of chemotherapy induced immunosuppression. I quickly learned that the rest of life doesn’t stop just because we’re sick.

Who's Who on Your Healthcare Team

A number of healthcare professionals are involved with your care. Your team may include:

Facts and Statistics Overview

Leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), and myeloproliferative neoplasms (MPNs) are types of cancer that can affect the bone marrow, the blood cells, the lymph nodes, and other parts of the lymphatic system.

Click on the links below to view statistics about each disease:

Clinical Trials

When it comes to finding the right treatment for your child's cancer, a clinical trial may be an option. Your child will have access to new or improved therapies under study and not yet on the market. Discuss with your child's doctor the possibility of participating in a clinical trial, where treatment is administered in a safe, closely monitored environment.

Click here to read more about clinical trials.

Myelodysplastic Syndromes

• Is a diagnosis of cancer
• Is a group of diseases that affect the blood and marrow, with varying degrees of severity, treatment needs and life expectancy
• May be primary or treatment-related. Primary MDS has no obvious cause. Treatment-related MDS has an obvious cause.

Click here to access MDS statistics.

Greysun

Hi! My name is Greysun! I was diagnosed with acute myeloid leukemia (AML) on March 23, 2011. I was fortunate to get outstanding medical treatment at UNC Children's Hospital and the cancer center. I have been through many rounds of chemo followed by up to six weeks of hospitalization after each one. I have had radiation to my brain followed up by my first bone marrow transplant.

Allie

On July 18, 2020, I rang a bell in the lobby of the Cincinnati Children's Hospital that signified the end of my chemotherapy treatments and the beginning of my remission. At age 15, I was diagnosed with acute myeloid leukemia (AML). I entered the hospital on December 1, 2019, with dangerously low red blood cell and platelet counts.

Myelofibrosis

• Is a rare type of blood cancer characterized by the buildup of scar tissue, called “fibrosis,” in the bone marrow.

Krisha

I started noticing some things were "off" with my body. In early August 2022, my daughters noticed several large, unexplained bruises on my legs. I just brushed them off as being clumsy or running into something. Then, while lying in bed reading to one of my daughters, my lower jaw and lip went numb, like when you have Novocaine. I got up and moved around, and it got better. This started to be a daily occurrence, and about a week or so later, I woke up and could not open my mouth. I thought I had TMJ, so I called my dentist. He had me come in and looked at my mouth/jaw.

Side Effects

Cancer treatment for Hodgkin lymphoma can produce side effects. The goal of treatment is to kill the cancer cells, but cancer treatments can damage healthy cells too which causes side effects.

Patients react to treatments in different ways. Some patients may have very mild side effects.  For other patients, side effects can be more severe, sometimes requiring hospitalization. For most patients, treatment side effects are temporary and go away once therapy ends.

Nicholas

It started with a stiff neck. Then came fatigue and a sore throat. I started feeling full after only a few bites of food. Workouts were getting more difficult to complete. My heart rate was consistently north of 100 just lying in bed. Rationalized. It's maybe strep. Could be mono. I prescribed myself antibiotics and popped ibuprofen. Nothing was working. Reluctantly went to an urgent care after weeks of feeling like this. Bloodwork was done.

Sarah

In August of 2014, after a routine medical procedure, doctors suspected that Sarah may have a lymphoma type cancer. Soon thereafter, with her husband by her side, doctors confirmed that Sarah indeed had cancer, stage 2 Hodgkin lymphoma.

Gwendolyn

Gwendolyn describes herself as a wanderlust who never likes to let the grass grow under her feet. After college, she moved from her hometown in Florida to Houston and spent the next few years moving around Texas for work. She started her new life in Texas where her son, Sterling, was born and raised. She loves traveling, but following a trip to Belize, she started to notice white spots on her skin and other strange issues happening with her health. After doing some research on her own and going to the doctors, she was told she likely had lupus.

Virginia

I have been living with chronic myelogenous leukemia (CML) since August 6, 1997. The way I see it, I’m alive today because of The Leukemia & Lymphoma Society (LLS). The pill I take each day that keeps my leukemia in remission exists today much because of research grants awarded to Brian Druker, M.D., PhD., of Oregon Health & Science University.

Lori

Our daughter Britta Wolfarth was 19 when she was diagnosed with AML. We were shocked because we thought it was a blood disorder due to her lupus. The same day for the guy diagnosed she started treatment at West Penn in Pittsburgh right away.

Britta underwent months of chemo and radiation. Britta had to have a bone marrow transplant. Her first owner fell through but the transplant team at West Penn never gave up and found us another donor 2 months later from the National Registry.

Marie

In early 2017 we found out my husband Miguel had non-Hodgkin's lymphoma diffuse large B-cell. It was the most frightening and overwhelming time of our lives. To this day I am amazed at how we got through it.

Layla

"Our LLS chapter has been there for us, with support and information that has helped immensely. We've formed a friends and family Ttam for the Light The Night Walk and it feels so rewarding to raise funds to help others who, like Layla, are bravely battling blood cancers." Alecia | Layla's mom

Ashlyn

My name is Ashlyn, and I am a leukemia survivor. At the age of 17, during my senior year of high school, I was diagnosed with acute myeloid leukemia (AML). AML is a rare cancer that affects your bone marrow and blood. My life changed on March 21, 2023, when I got this news. How could this be possible? Why me? Will I survive? These were some of the first few questions that entered my mind. I went through five rounds of chemotherapy and nine grueling months of being inpatient in the hospital. I wasn't able to go on my senior class trip to Disney World or attend senior prom.

Julian

I was a 10-year-old kid when I was diagnosed with leukemia. I was a happy, energetic kid who loved being outside and was a straight-A student. However, my whole childhood was put on hold indefinitely once I had cancer. Rather than having sleepovers at my friend’s houses, I was sleeping over at the hospital. It was hard to lose my energy, smile, confidence, and hair as treatment took over my life. It was really hard to understand as I was just a kid getting injections, procedures, chemotherapy, and surgery without truly understanding why.