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To collect information about the diagnosis and treatment of cancer in pregnancy, and to study the health of pregnant women with a history of cancer and their children.

• Gathers information about cancer found and treated during pregnancy at various hospitals into a single database.
• Designed to follow women and their children through diagnosis, treatment, delivery, childhood, adolescence and beyond.

Pregnant women with cancer, caregivers, survivors, health professionals

To advance the clinical application of newborn stem cells by partnering with leading research institutions to establish FDA-regulated clinical trials, exclusive to CBR families, for conditions that have no cure today.

• Newborn Possibilities Program® offers free cord blood and tissue processing and five years of storage to qualifying families in the U.S.
• Genetic counselors are available to discuss your family’s medical history and to answer questions about how newborn stem cells might be applicable to your family.

Patients, families, caregivers

To learn more about this rare form of blood cancer and how to treat it.

• Based at the University of Virginia Cancer Center in Charlottesville, under the direction of Thomas P. Loughran, Jr, MD
• Participation in the registry is voluntary. Patients will be studied over time to learn more about the disease.
• Patients will need to complete questionnaires and provide blood and tissue samples; these samples may be used to develop new tests or treatments.

Anyone diagnosed with Large Granulocytic Lymphocyte (LGL) Leukemia

To facilitate transplantation of volunteer, unrelated donor stem cells as curative therapy for patients around the world of all socioeconomic backgrounds battling leukemia, lymphoma, sickle cell disease and other cancers and genetic diseases. 

• Provides information on becoming a stem cell or marrow donor
• Provides information and resources about transplants
• Provides search process and case management to assist health professionals find donor matches for patients.
   

Gift of Life Marrow Registry is one of the nation’s leading public blood stem cell and bone marrow registries helping children and adults find donors for transplants.

INTO-HLH (Insight into the Natural History and Treatment Outcomes of Hemophagocytic Lymphohistiocytosis) is a disease registry aimed at advancing what is known about HLH. The insights obtained from this registry will help doctors to better diagnose and manage HLH and improve treatment outcomes for future patients.

• INTO-HLH Registry is a collaboration between Cincinnati Children's Hospital Medical Center (CCHMC), Texas Children's Hospital (TCH), and Sobi North America as the industry sponsor.
• The registry is open to all forms of HLH: Primary; Secondary (Macrophage Activation Syndrome, Cytokine Release Syndrome, Malignancy-Associated HLH).

Patients, family members, and caregivers affected by Hemophagocytic Lymphohistiocytosis and health professionals

ATSDR is directed by congressional mandate to perform specific functions concerning the effect on public health of hazardous substances in the environment. These functions include public health assessments of waste sites, health consultations concerning specific hazardous substances, health surveillance and registries, response to emergency releases of hazardous substances, applied research in support of public health assessments, information development and dissemination, and education and training concerning hazardous substances.

Serves the general public in the U.S. ATSDR is a federal public health agency of the U.S. Department of Health and Human Services