INTO-HLH: Hemophagocytic Lymphohistiocytosis Disease Registry

https://hlhregistry.org/

Website or (513) 916-7099

Patients, family members, and caregivers affected by Hemophagocytic Lymphohistiocytosis and health professionals

INTO-HLH (Insight into the Natural History and Treatment Outcomes of Hemophagocytic Lymphohistiocytosis) is a disease registry aimed at advancing what is known about HLH. The insights obtained from this registry will help doctors to better diagnose and manage HLH and improve treatment outcomes for future patients.

• INTO-HLH Registry is a collaboration between Cincinnati Children's Hospital Medical Center (CCHMC), Texas Children's Hospital (TCH), and Sobi North America as the industry sponsor.
• The registry is open to all forms of HLH: Primary; Secondary (Macrophage Activation Syndrome, Cytokine Release Syndrome, Malignancy-Associated HLH).