You never think it will happen to you until it does. Hearing the idea that you might have cancer was one of the darkest moments of my life. I was diagnosed with acute promyelocytic leukemia (APL) in February 2023 at only 27 years old. I am a mom, a wife, a sister, a daughter, and a pediatric ICU nurse.
Hello! I am Taylor, and most people know me for being a human biology premed student at the University of California San Diego. However, what most people don’t know is I was diagnosed with a rare blood cancer in March of this year. I have systemic mastocytosis (SM) which leads to lots of anaphylactic reactions and hospital visits.
I was in my second to last year of nursing school and just over one year into my marriage when the headaches became too much to bear. I was 21. I was tired all of the time, but I was working in a busy ER and going to class when I wasn't at work. I had lost some weight, but I had been exercising more and getting a lot while working in the ER.
I'm Jason, and I am 38 years old. Early last year I was very sick. I had a fever that would not go away for over three months. Every day I broke 103 degrees, and at least six times I hit 106 degrees. I was getting bloodwork after bloodwork done, seeing doctor after doctor when finally, I met my oncologist, and he did a bone marrow biopsy.
My journey began in early 2021 when I discovered some swelling in my left inguinal area. At the time, I did not think much of it but still was told by my primary to see a surgeon, which I did. I saw a surgeon who told me it was a swollen lymph node and that it would go away within a few months. After about six months, I still had the swelling, and it had started to bother me.
On October 17, 2023, my life took a turn I never saw coming. My doctor sat me down and told me, "You have leukemia." It felt like the ground had shifted beneath my feet. I was scared, couldn't believe it was happening, and had no idea what the future held.
On April 6, 2021, we heard for the first time, “We think it's leukemia.” As I watched my boy jumping on the neighbor's bounce house enjoying the first warm spring afternoon, my mind went to one simple question, “Why him?” Up until that point, our then three-year-old, Henry, had been the happiest and healthiest toddler.
When I was just under two years old, I was diagnosed with acute lymphoblastic leukemia (ALL). My brother was born just a few days later, and it became an extremely difficult time for my family. Because I was so young, I do not remember most of my treatments that lasted until I was almost five years old.
I was diagnosed at two and a half years old in December 2003 at Valley Children’s Hospital. Some early symptoms that I had were paleness, unexplained fevers, and extreme fatigue. My babysitter noticed my naps were getting longer and longer as the days passed, and I was taken to my pediatrician because of the previously mentioned symptoms.
I was diagnosed with acute myeloid leukemia (AML) one month before finishing my freshman year of high school. It was shocking and devastating to me and my whole family. I had to leave school, be hospitalized, and begin intense chemotherapy immediately.