Suggested Reading - Suggested Reading - Shelter from the Storm: Caring for a Child with a Life-Threatening Condition
Suggested Reading - Shelter from the Storm: Caring for a Child with a Life-Threatening Condition
Shelter from the Storm: Caring for a Child with a Life-Threatening Condition By Joanne Hilden, M.D., and Daniel R. Tobin, M.D.
Perseus Publishing, 2002, 240 pages
ISBN: 0738205346
Drs. Tobin and Hilden, pediatric oncologists, are two physicians who have co-authored a caring and direct guide for families and caregivers. Themes include: Helping parents make the best possible treatment decisions while preparing for the possibility that the treatments will not work Exploring what the family might have to face, what they may be asked to decide and how they might want to involve their children in the decision-making Professional expertise and practical support are given with a sensitive exploration of palliative care and peaceful dying. Throughout, there is a perspective on hope that will strengthen the family. A list of resources and an extensive bibliography are included.