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Inspirational Stories

Adelaide

acute lymphoblastic leukemia (ALL)

I was first diagnosed with acute lymphoblastic leukemia (ALL) in September 2014 when I was six years old. I relapsed three additional times between 2014 and 2021. I had a bone marrow transplant in 2020 during COVID-19 and relapsed again six months after the transplant. In July 2021, I received huCART-meso cells at the Children's Hospital of Philadelphia (CHOP). Since that time, I have remained in remission. 

I had such a strong cytokine response to the T-cells that I ended up in the ICU for three weeks. While I was in the ICU, I went into cardiac arrest twice. There is so much more to my story, and I am writing a book to help families coping with cancer. I feel that I have learned a lot through this experience and want to share what I learned with as many people as possible. 

This has been a long journey for me, and there were times that I was really scared, but I always believed my doctors at CHOP. It was also really hard on my family, but they were always there for me and got me through everything. I want to give back to all of the people who made it possible for me to be here today. 
 

white family with New Year's Eve hats on including bald girl with a pink shirt on