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Donna
I was shockingly diagnosed with a monoclonal spike in November 2019 (six months after the unexpected death of my mom). Treatment was started in June 2020. I went to Mt. Sinai NYC where they have a team that just deals with multiple myeloma (MM). I am grateful that a couple of people recommended I go there. They treated me with four drugs, one of which wasn’t available at my local oncologist. The regimen was Velcade, Revlimid®, daratumumab, and dexamethasone. I had this induction therapy until my stem cell transplant in March 2021.
Trisha
On November 15, 2019 at 29 years old, my world changed forever. I was diagnosed with Plasma Cell Leukemia. It is basically a hybrid of Multiple Myeloma and statistically only shows in men over 60. I wanted to be special but not like this! At my 6 week postpartum appointment with my second babe, my stomach had not been shrinking like it should but I assumed it was because it was my second baby or the diastasis recti. My OB did a ultrasound and saw a lot of ascites and that my liver was massive so she instructed I go to the ER as that was not normal.
Studies on clonal hematopoiesis in the 911 WTC first responders
The terrorist attacks on the World Trade Center (WTC) created an unprecedented environmental exposure to WTC aerosolized dust and gases that contained known and suspected carcinogens including polycyclic aromatic hydrocarbons, polychlorinated biphenyls, polychlorinated furans, dioxins and asbestos. Studies from Dr.
Gwendolyn
Gwendolyn describes herself as a wanderlust who never likes to let the grass grow under her feet. After college, she moved from her hometown in Florida to Houston and spent the next few years moving around Texas for work. She started her new life in Texas where her son, Sterling, was born and raised. She loves traveling, but following a trip to Belize, she started to notice white spots on her skin and other strange issues happening with her health. After doing some research on her own and going to the doctors, she was told she likely had lupus.
John Patrick
During the summers of 2020 and 2021, I remember feeling really tired, I figured it was because of the summer heat, so I didn't pay much attention to it. Every year dating back to about 2008, about twice a year, I also have had back issues where the pain was so bad that it was hard for me to straighten up, and I would walk hunched over during that time. It would last for about two weeks at a time. I also noticed that it felt like my ribs would pop in and out of place.
Brianna
"He was the king of positivity" is what Dr. McCarthy at Roswell Park said to me the day after my Dad passed away from complications of GVHD or graft-versus-host disease. My Dad was a leader, someone who was always willing to help others, and always had a smile on his face. Not only was I his co-caregiver throughout his cancer journey, but he was also my caregiver during mine.
Rick
Rick Ostroff and his family have a legacy of philanthropy with a heartfelt connection to a disease he never had. During the first three years of his life, he spent time on the leukemia floor of Children’s Hospital in Boston but eventually was found to have the critical illness of gamma globulin anemia rather than then-fatal leukemia.
Tawilhua
My name is Tee, and I am a survivor of multiple myeloma (MM), a rare blood cancer. Before my diagnosis, I was an active principal at the school where I worked, was involved in my community, and lived a life of purpose. And then I was diagnosed with the “Big C.”
Today, I still have a purpose-filled life, it simply looks different than before. Telling my cancer story is a part of living a fulfilled life after a cancer diagnosis. So here is Tee’s story.
Glenis
The body is ultimately wise. Through this most recent medical ordeal, I learned to listen to what my body was telling me. In 2018, I felt symptoms above and beyond the fibromyalgia ailments that I had been plagued with for 25 years. I had unusual inflammation despite eating healthy and walking on a regular basis. I developed an unrelenting throb of pain in my lower back. My internal medicine doctor at the time dismissed my complaints.
Pharmacological strategies to enhance T- and NK-cell-based therapies in blood cancers
Although they represent a major therapeutic progress for blood cancers, CAR-T cells and other T-cell based therapies are subject to eventual development of resistance to many patients. Natural killer (NK) cell-based therapies are highly active against many types of blood cancer cells which are resistant to T cells, but in our CRISPR studies death receptor signaling defects emerge as a common downstream mechanism of resistance to both T- and NK-cell therapies.Epigenetic Mechanisms and Targeting in Hematological Malignancy
Blood cancers can be caused by aberrant regulation of genes that control cell growth and development. The root cause of this problem may be the presence of mutant regulator proteins in the cell and abnormal switching on or off of target genes. Our SCOR studies the molecular basis of this gene deregulation using cell cultured in the laboratory, in human specimen and animal models.
Donna
The year 2021 was quite a year for us. It was the year of cancer. No one ever really prepares themselves for the diagnosis of cancer, and when you're told you have it, the emotional roller coaster you are about to embark on cannot ever be fully described in words. The fear, the exhaustion, the financial burden, the feeling of helplessness you experience is completely terrifying. In the year 2021, we started the fight of all fights, the fight to save my husband's life. This is our story of cancer. Our story of love, life, hope, and healing.
Alice
In March 2023, while visiting my daughter and son-in-law in San Francisco, I saw the Hike2Cure trip to Patagonia listed on The Leukemia & Lymphoma Society’s (LLS) website. They have always talked about their backpacking trip to Patagonia in Argentina and Chile as their favorite hiking trip ever. This event would be my 16th LLS fundraising adventure since going into remission from multiple myeloma (MM) in 1999. The year 2024 marks my 25th year of remission. I took the plunge and signed up for the 50-mile hike. It seemed like the right time to do an epic adventure.