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Diana

Diana

My introduction to The Leukemia & Lymphoma Society (LLS) began in the early 2000s. I joined a Light The Night Team to support research and programs for cancer patients. I then discovered Team In Training and ran my first marathon and my second as a Team Mentor. At the time, I knew cancer was a terrible disease, but it wasn’t until 2012 that cancer became more personal. In May 2012, my cousin Richard, who was like an older brother to me, passed away from pancreatic cancer. Just two years later, my mother was diagnosed with breast cancer.

Myles scholarship acute lymphoblastic T-cell leukemia (ALL)

Myles

I’ve always known that I wanted a career in sports in some capacity. My dream since I was in the third grade has been to become a professional football player, but I also was taught the reality of that dream. When you’re little of course you just want to be what you want to be, but as you get older you start to learn what can be in your reach and what the true reality is. As I grew older, I started to think about life after high school football and even college football, if I am blessed with that opportunity.

anaplastic large cell lymphoma (ALCL)

Naomi

My story begins when I was 11 years old, and I remember it being the summer after my sixth-grade year. I had just made the volleyball team and was so excited about that and the upcoming school year. I don't know if you remember middle school, but it was a bit of an awkward time, so I was looking forward to getting older, becoming surer of myself, and making more friends. Unfortunately, at some point during the summer, I started to feel fatigued.

LLS PedAL - A pillar of the Dare to Dream Project

Through LLS PedAL, The Leukemia & Lymphoma Society (LLS) is setting out to fundamentally change how children with pediatric acute leukemia, including acute myeloid leukemia and other high-risk leukemias, are treated.

NHL Staging

Once your doctor confirms an NHL diagnosis, he or she will determine the extent of your disease's progression by staging. Staging helps your doctor predict the disease's progression and develop a treatment plan.

Staging Tests

Imaging Tests

Your doctor conducts one or more imaging tests along with a physical exam, to evaluate:

Treatment

There is not one treatment that is effective for all myelofibrosis (MF) patients. Patients have varying symptoms and circumstances that require different treatment options. Some MF patients remain symptom-free for many years and do not require immediate treatment. All MF patients, however, need to be closely monitored.

Diagnosis

While certain signs and symptoms may indicate that a person has PV, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to: 

  • Estimate how the disease will progress
  • Determine the appropriate treatment
Medical History and Physical Examination

Evaluation of an individual with suspected PV should start with a detailed medical history and a physical examination.

The medical history should include information about the patient’s:

Methods to Administer Drugs

Chemotherapy and other drugs are often given in combination with each other and can be given in different ways. The method of administering the drug is based on the actual disease diagnosed and the agent's effectiveness. Common methods include:

Family Planning Options

Options for Having a Family After Treatment

Many patients will be able to conceive naturally after cancer treatment. Patients are generally counseled to wait at least 2 years after treatment is completed before attempting conception. Check with your doctor to find out how long after treatment you should wait. If you are not able to conceive naturally, there are a number of other ways to build a family.

Supportive Care

Treatment given to relieve the symptoms of a disease and the treatment’s side effects is known as supportive care. The goal of supportive care is to improve the patient’s quality of life and to relieve discomfort as much as possible. Supportive care is an important part of MDS treatment.

Allie AML

Allie

On July 18, 2020, I rang a bell in the lobby of the Cincinnati Children's Hospital that signified the end of my chemotherapy treatments and the beginning of my remission. At age 15, I was diagnosed with acute myeloid leukemia (AML). I entered the hospital on December 1, 2019, with dangerously low red blood cell and platelet counts.

sonny

Sonny

The last conversation I had with my daughter Sonny was one that I will never forget.  As she sat there exhausted from the leukemia and CDiff and sepsis that was ravaging her body; we talked about how much of a fight she put up.  She could only respond with a short, “I know Momma”.  To which I replied, “You don’t have to fight anymore baby.” Again, “I know Momma”. I told her that her Poppa was waiting in Heaven on his tractor to take her for a ride like she used to love when she was little.

Dave

Dave

It all started for me the day our first child turned two months old. She was extremely colicky, and we would spend hours every night trying to get her to sleep. This particular night, I bounced on our exercise ball to try to get her down, and that caused some extremely bad back pain. I could tell something was seriously wrong. When I woke up the following day, the pain was significantly worse, and there was no way that I could even work.

Tim - MM

Tim

I knew multiple myeloma (MM) was a blood cancer. After all, my mom was diagnosed with myeloma at 62 years old in 2005. It’s extremely rare that I should also be diagnosed in 2021, but it happened. There’s no strong data that shows that it’s hereditary at this point. But more doctors are seeing family members being diagnosed. It's also becoming one of the most diagnosed cancers among African Americans.

older white man with glasses and blue striped shirt holding a baby with an older woman with dark hair and a floral blouse

Bruce

I was diagnosed with stage III mantle cell lymphoma (MCL) in October 2004 following a routine physical exam. I wasn’t feeling ill, but since I quit smoking many years ago, as a precaution, my primary care physician recommended having a computed tomography (CT) scan of my lungs to see if I had any residual damage.

Clementina volunteer

Clementina

For the longest time, I sat on the edge of my bed, hoping that one day I would have the gift of being an older sister to a darling little boy. I wished for him every time I saw a shooting star or when the clock struck 11:11 - I hoped for Max.

Options for Egg Preservation

You may be able to take certain steps and precautions to preserve fertility before, during and after treatment. 

The Affordable Care Act (ACA)

The Affordable Care Act’s Patient Protections

The Affordable Care Act requires health insurance plans sold through www.healthcare.gov and its state-based marketplaces to comply with a number of requirements. Many of these – including the ones described below – are meant to ensure that patients have access to meaningful health insurance coverage. It’s important to be aware that some health plans, available today through non-governmental sites, may not include these patient protections.

Big Climb

No matter where you live, no matter what your connection to cancer may be, you can step up to take cancer down by being a part of The Leukemia & Lymphoma Society’s Big Climb.

Take on a new challenge, by climbing to the top of iconic buildings, all while raising critical funds towards The Leukemia & Lymphoma Society’s mission to cure leukemia, lymphoma, Hodgkin's disease, and myeloma, and improve the quality of life of patients and their families.

Mike

Mike

My personal story with blood cancer started in 2020 but nobody really knew how long it was brewing. A day came when back spasms started raging and my Primary Care Physician (PCP) sent me to physical therapy (PT). It didn’t take more than 1 visit to PT to know that was a bust and finally my PCP sent me to the Hematologist. This is where my blood cancer story becomes reality, in no more than 5 minutes, the Hematologist sent me directly to the Huntsman Cancer Institute.   

Childhood Non-Hodgkin Lymphoma

Because of new and better therapies, cancer survival rates for children have improved dramatically during the last several decades. Scientists continue to search for the causes of childhood lymphoma so they can develop better treatments with less toxic side effects.         

Radiation Therapy

Radiation therapy, also known as “radiotherapy,” uses high energy x-rays or other types of radiation to kill cancer cells. While most blood cancers cannot be cured with radiation therapy alone, it may be combined other treatments such as chemotherapy, immunotherapy and stem cell transplantation. Radiation therapy may also be used to relieve symptoms of blood cancer and improve quality of life. For example, radiation therapy may be used to shrink an enlarged spleen, liver or lymph nodes. It may also be used to manage bone pain caused by cancer cells growing in the bone marrow. 

Pain Treatment

Pain can be managed effectively in a number of ways, depending on the cause and type of your pain. Treatments may include:

Graft-Versus-Host Disease

Graft-versus-host disease (GVHD) is a potentially serious complication of allogeneic stem cell transplantation and reduced-intensity allogeneic stem cell transplantation. In this treatment, a patient’s own damaged or diseased blood-forming stem cells are destroyed. Then they are replaced with healthy stem cells from a donor.