Search Results
Ed
Like many who get diagnosed with multiple myeloma (MM), it comes out of nowhere. For me, it was mysterious aches and pains that crept up quickly. An alert doctor ordered tests, and eventually, MGUS, the precursor of MM, was first diagnosed. Within a month, MM was confirmed. MM is a blood/bone cancer that can affect the entire body.
For the next six months, I was involved in many tests, along with drug treatments including chemo. I had a stem cell transplant and have generally had a complete response.
Lynn
I was diagnosed on Halloween 2008 with smoldering multiple myeloma (SMM). By 2011, I needed a stem cell transplant. After about a year and a half, I started on maintenance drugs. I started out with Velcade and progressed over the years to immunotherapy drugs.
I had very few side effects from these drugs and had remained strong and active, but everything started to catch up with me in 2021. I was deemed to be a good candidate for CAR-T-cell therapy, and in February of 2022, I was admitted for treatment.
Dan
My name is Dan. I was first diagnosed with multiple myeloma (MM). After a battery of excruciating, painful biopsies and bloodwork, my doctors prescribed chemotherapy and Velcade once a week, then twice a month. My myeloma numbers were going way down, and my platelet count was diving straight to the bottom, single digits. My routine appointments with my doctor not in my city were going south. The doctor told me to stop taking all my cancer medications. What was happening to me was my MM was completely going into leukemia, a disease called myelodysplastic syndrome (MDS).
Jamie
After he was diagnosed with blood cancer in 2013, Jamie was told by doctors that he’d never walk again, let alone ride a bike. Despite those predictions, he finished a 540-mile ride in June 2019 to raise money for The Leukemia & Lymphoma Society (LLS).
Nichelle
My story starts on December 1st, 2016. I had just buried my baby brother 2 weeks before. Now I’m sitting in my oncologist's office with my mom. When the doctor said I had cancer and it’s called multiple myeloma (MM), I was completely stunned. I never heard of multiple myeloma. And of course, I get cancer that there’s no cure. The doctor continued to talk, probably for about 30 or 40 minutes or maybe just 10 minutes. I couldn’t hear anything. I was just thinking cancer=death. My ears did perk up when the doctor asked if I wanted to be in a clinical trial. I immediately said yes.
Lynn
My wife, Lynn Lancour, spent endless time and resources organizing a bicycle trip from San Diego to St. Augustine, approximately 3,000 miles, to raise funds and awareness for The Leukemia & Lymphoma Society (LLS).
Elizabeth
I was diagnosed with multiple myeloma (MM) in 2016. I had a hip replacement, and a mass was found on my hip, so I was referred to a cancer doctor. But the strangest thing was, I had no symptoms, so I went to the doctor, and I went through all kinds of tests. The doctor told me, “You have MM,” and I am like what's that? She said it was a blood cancer. I asked what do I need to do about it, and she told me I needed a stem cell transplant. But that was after so many doctor visits and labs, at one point she would tell me I had it and the next visit that I didn't.
Eliehue
One morning in June 2012, I woke up at at 3 a.m. with severe back pain and went straight to the emergency room. I was diagnosed with kidney stones, but as I read the scan report I noticed it had a footnote which said “bone lesions”. I showed this to my primary care doctor who then ordered blood work and referred me to an oncologist. Three weeks later, I was diagnosed with multiple myeloma.
Carol
I have been told that my story is rare, so I would like to see if there is anyone who has had the same experience. I was diagnosed with multiple myeloma (MM) in February 2023. I started chemo treatment in March 2023 and continued through May 2024. In February 2024, I noticed some changes happening to my body. I was losing weight, losing hair, had extremely dry skin, and had less and less energy. When I went for my PET scan in May 2024 to see if I had lesions in my spine from the MM, I was told they were completely gone, and I was most likely in remission.
SCOR in High Risk Plasma Cell Dyscrasias
Dr. Orlowski assembled an experienced, collaborative group of researchers who work in a multidisciplinary manner on projects focusing on basic, translational, and clinical aspects of smoldering multiple myeloma (SMM) and multiple myeloma (MM). Both high risk SMM and MM represent important and urgent unmet medical needs for the development of novel, more effective therapies.
Jeff & Melanie
My wife, Melanie and I had always been pretty healthy. We exercised, tried to eat right and discovered the value of meditation. But things changed in 2018.
Melanie had developed a cough that just wouldn't go away. She had it for months. And then she discovered a lump near her collarbone. Tests revealed on Sept. 6, 2018, that the lump was Hodgkin lymphoma and it was present in several other lymph nodes. She began a months-long treatment regimen of chemotherapy and radiation. It wasn't easy.
Oya
My three kids are my precious jewels, the reason I get up every morning. As a single parent, providing a good life for them is what fuels my drive to succeed. Little did I know that need to care for them would end up saving my life.
Disease- and Treatment-Related Pain
People with cancer can have pain caused by the cancer itself, its treatment, or both. They may also have pain caused by other health problems that are unrelated to cancer (like arthritis or diabetes).
Increased pain does not mean that the cancer is getting worse, but you should always tell your healthcare team if you have increased pain.
It’s important to remember that no matter what the cause, pain can be treated.
Laraine
November 21st is Family Volunteer Day. The Leukemia & Lymphoma Society (LLS) encourages you to volunteer as a family today. Whatever you choose to do, do it together. Some ideas include: take a few minutes to call a friend, neighbor or colleague; cook a meal together and drop it at the doorstep of someone in need; rake a neighbor’s yard or put a book in a neighborhood lending library.
To honor this day, we are sharing the story about a family faced with a cancer diagnosis, who banded together when the future seemed so unclear.
Melissa
We really want to be someone else’s story of hope.
My husband, Thomas, was diagnosed in February 2022 with blood cancer, specifically, multiple myeloma (MM). He was in the hospital in Mallorca, Spain, where we live, for 16 days, getting dialysis and chemotherapy. After that initial stay, he was discharged but continued to go to the hospital three days a week for four months until his kidneys started working on their own again.
Debra
In October 2011, while at work, I fell after attempting to sit on a chair, and I went to the emergency for x-rays. As soon as the technician began the process, he entered the room to ask if I had scoliosis. I replied, "no" and he proceeded with the exam.
Jeffrey
My story starts with being diagnosed with multiple myeloma (MM) in 2022. It is a terminal cancer that right now does not have a cure, but it is treatable. Life can and will take unexplained twists and turns, like without warning, your back hurts, and for me, that was from a compression fracture in my L4 – L5 vertebrae from lesions due to the MM, and that leads to learning that you have cancer. Like a lot of us, when you first hear those words, you are at a loss to explain how this came to be.
Getting a Second Opinion
Leukemia, lymphoma, myeloma and myelodysplastic syndromes are each different types of cancers. What's more, each disease has subtypes. This means that the signs of the disease, how it's diagnosed and treated and the expected outcomes vary. That's why it's essential to have the right diagnosis before you begin or continue with treatment.
Steven
In 2017, I was 52 and in pretty good shape. I was at the gym working out, and after a certain lift, I could not get off the bench by myself. After being helped up, I somehow drove myself home. The next morning, I could not get out of bed without my wife lifting me up. We went straight to the doctor and got an MRI. Then we got the news “you have cancer,” and it is eating your vertebrate in your neck. I was sent to a spine and neck specialist and also to a cancer doctor to find out what kind of cancer. Multiple Myeloma (MM) was the diagnosis.
Cheryl
When I first found out that I had multiple myeloma (MM) 4½ years ago, I was shocked. I was in the hospital for a broken leg. I had twisted my leg, and it was badly broken. While I was waiting for surgery, a doctor came into my room and began to talk to me. She explained to me that my leg had broken because I had cancerous bone lesions. As I listened to her, I felt my heart sinking, I had a broken leg, not cancer. It didn't seem possible. Cancer was the last thing I would have imagined. I went through radiation, chemo, and cell replacement therapy.
Kenya
I was diagnosed with two blood cancers — multiple myeloma (MM) and chronic myelomonocytic leukemia (CMML).
Cancer entered my life at five years old when I lost my father to pancreatic cancer. Then again, when my oldest sister was diagnosed with breast cancer, she is now nine years cancer-free. Then again, when my mother was diagnosed with breast cancer. Sadly, we lost my mother in May 2019 to breast cancer
Elizabeth
On November 8, 2021, I was diagnosed with stage III multiple myeloma (MM), an incurable cancer. Prior to being diagnosed, I thought I was a healthy young woman and was just living life with my children. I would have different pains throughout my body, but I didn't think much about it and would ignore them for the most part. The pains throughout my body were getting more and more frequent, so I went to the ER in October 2021 because I was in pain and could not eat, they said I was possibly having acid reflux and gave me a prescription for nausea.