Search Results
Bob
It has been five years since Bob had his stem cell transplant to get him remission from acute myeloid leukemia (AML), but his journey started over seven years ago when he was first diagnosed with myelodysplastic syndrome (MDS).
Jim
Stay focused, stay positive, live as life as normally as you did before diagnosis, and do your best.
Charity
In March of 2021, I was diagnosed officially with chronic myeloid leukemia (CML) after a blood test and bone marrow biopsy. I had just turned 30 and had my first child in August 2020. My OB/GYN noticed that my platelet and white blood cell counts were way out of the normal range and referred me to a hematologist. I did not go, thinking it is just the stress of my body carrying a baby. After I had my son, I began feeling really bad. I had no energy and had the feeling in the pit of my stomach that something was wrong.
Kennetha
I found out about The Leukemia & Lymphoma Society (LLS) through a peer at Brockport College where I attend the Healthcare Administration BSN program. My peer had many great things to say about LLS and was excited to be a volunteer intern. I'm grateful that I was given the opportunity to reach out to those who experience the life-changing event of having blood cancer and can provide them with the resources and support that LLS offers. I love volunteering for LLS because it helps me fulfill my passion for caring for others and making a difference in people's lives.
Paul
I have had the opportunity to know Paul since he was diagnosed with B-cell lymphoma (BL). Paul has an energy that makes it so you will like him instantly and this is exactly what happened. I have had my share of patient's lose their battle over the years so I am very cautious now of who I allow in my bubble. I am certain that even if I had not allowed Paul and his wife Carrie into mine they would have found a way in anyhow. Paul sailed thru R-Chop like a champ. I introduced The Leukemia and Lymphoma Society (LLS) and the work that you do for the Cohen's at this time.
Eva
In 2014, as a 19-year-old sophomore in college, I was diagnosed with Hodgkin lymphoma (HL). After two years of suffering from a mystery illness, I finally had answers; my itchy feet, night sweats, frequent infections, and shooting pain all snapped into place with a cancer diagnosis. I called all of my closest friends and packed my bags. I’d moved 3,000 miles for college, and traveled all the way back home — Los Angeles to Boston — for treatment. Next up would be six months of ABVD chemotherapy, known to be very effective and very unpleasant.
Carolyn
In November 2014, my daughter Valerie was born. Shortly after, I was diagnosed with an upper respiratory infection by my doctor and received 3 rounds of antibiotics because it just wasn’t going away. Life was hectic as I learned to care for my newborn and I was getting into a new routine. Some of my lymph nodes became swollen. I was having night sweats. I developed a rash and high fevers.
Robert
I was diagnosed with chronic myeloid leukemia (CML) in February 2021 after a bone marrow biopsy. Since that time, over the past 2½ years, I have had very serious side effects from my chemotherapy medication treatments. I was first prescribed Gleevec® 400 mg in March 2021, my first tyrosine kinase inhibitor (TKI). However, this medication put me in the hospital at the end of March 2021. I had an angiogram to check my heart as I had five stents in my heart in September 2018. I had very severe fatigue and very serious malaise.
Randall
I am a 36-year survivor of non-Hodgkin lymphoma (NHL). In 1987, I went through six months of chemo, had one month off, then went through 25 straight days of radiation. It is an amazing story, one which I may write about when I retire in about 12-16 months.
My son wasn't even two yet when I started treatments. Today he is 38 and has the two cutest, little girls a “Poppop” could ask for. After the chemo, they told me there was a 70% chance I'd be sterile from the treatment. We found out my wife was pregnant in December 1989. My daughter was born in August 1990.
Kristen
In the fall of 2012, Kristen Comer noticed her energy level wasn't as high as it had been, but she thought nothing of it. It wasn’t until the fall of 2013 when she had unidentifiable bruises on her body and no change in her energy levels, that her general practitioner drew labs to determine a diagnosis. After three panels of blood work, Kristen was diagnosed with chronic myeloid leukemia (CML) on December 31, 2013.
Jim
In September of 2017, my wife and I were in New Jersey with family celebrating Labor Day weekend when I passed out, fell and hit my head on a granite counter top. I received a nice shiner, and the next day we decided that it would be a good idea to go to the ER to have it looked at just in case. Weeks leading up to the fall, I was very tired and bruising pretty easy, but thought was worn down because I was helping my mom every chance I could after losing my dad that July.
Robert
Robert was like any other 16-month-old toddler back in October 2010. It was a Tuesday afternoon. He was our third child and had a spiking fever for about 36 hours that we could not get under control. We called the pediatrician's office to get him in ASAP.
The next morning he spiked another fever at 7 a.m., so I gave him a dose of Motrin to bring it down. We were in the doctor's office by 9:15 a.m. His fever was only 100.0 so the doctor checked him over and did a strep test, and said he would call us the next morning with the results.
Lisa
As a new graduate with a master’s degree in psychology, I, among many others, am applying to jobs out in the 'real world.' Recently, one of the job applications asked me to describe myself in three words. My answer consisted of adjectives such as determined, capable and diligent. The one word that best describes me though is one I did not say, and that is survivor.
Sonia
In an instant, my life changed. “You have chronic lymphocytic leukemia (CLL). There is no cure but patients can live for several years.” These were the words I received a few years ago at the age of 39 with three small children. I have been on an educational journey of self-discovery, cancer research, and patient advocacy ever since.
Cathy
I had blood cancer and for that, I’m lucky. I’m not being facetious, I really believe I’m lucky. The doctors told me that Stage 2 Hodgkin lymphoma (HL) is highly treatable and this is the cancer to have if you’re going to get cancer. But that’s not the only reason why I’m lucky. The very first philanthropic effort that I did with my BFF was when we were 17 years old and allowed to donate blood. This is one of the first times I realized I was lucky. By giving blood I could give the gift of life. It’s something I also had in common with my husband who is an avid blood donor.
Ava
My name is Lori Timko and my first daughter Ava is an acute myeloid leukemia (AML) survivor! It started in 2009 when she had become sick and the doctors discovered her blood counts were suppressed.
Jeff & Melanie
My wife, Melanie and I had always been pretty healthy. We exercised, tried to eat right and discovered the value of meditation. But things changed in 2018.
Melanie had developed a cough that just wouldn't go away. She had it for months. And then she discovered a lump near her collarbone. Tests revealed on Sept. 6, 2018, that the lump was Hodgkin lymphoma and it was present in several other lymph nodes. She began a months-long treatment regimen of chemotherapy and radiation. It wasn't easy.
Oya
My three kids are my precious jewels, the reason I get up every morning. As a single parent, providing a good life for them is what fuels my drive to succeed. Little did I know that need to care for them would end up saving my life.
Jessica
Jess began volunteering with The Leukemia & Lymphoma Society (LLS) in February 2021. Jess is currently pursuing her Patient Advocacy Certificate and found an opportunity to join LLS as a volunteer to gain more experience working with the Patient and Community Outreach Department. Although she is a newer LLS volunteer, her journey to finding her passion for patient advocacy started seven years ago. In 2014, Jess was diagnosed with myelodysplastic syndrome (MDS). MDS is more common in men than in women.
Brenda
Hello, my name is Brenda. I am 26 years old and have been in remission for three years now. Back in the very beginning of 2015, I started getting sick. I had been working in a daycare for a few months, so I just figured it was a cold. I didn’t get better. I eventually reached the point where I couldn’t breathe, and I was burning up, so I was taken to the hospital. That was the morning I will never forget. I was diagnosed with acute myeloid leukemia (AML). Getting the news that you have cancer isn’t an easy thing to believe. At first, you’re skeptical.
Shaun
On November 1, 2020, after three scary trips to the emergency room for excruciating back pain within two weeks, I was diagnosed with Philadelphia chromosome-positive acute lymphoblastic leukemia, (Ph+ ALL). Sitting in the emergency room with my fiancée, I was at a loss of words. We never anticipated my pain to turn into our worst nightmare. We never thought cancer would enter our lives at 26, but we were faced with the reality that our lives had grown drastically different.
Brenda
A scratchy throat that became a bronchial infection in May 2012 was the first sign Brenda had that anything was wrong. She tried to tough it out but collapsed while taking her long-awaited test for a black belt in karate. Later that same day she was diagnosed with acute myeloid leukemia (AML), the same disease that had taken her brother 17 years earlier.
Lawrence Paul "LP"
In July of 2017, our world was turned upside down. Our son, Larry Paul (LP), was experiencing back pain and was extremely tired. After multiple trips to doctors and ER visits over seven days, he was taken down to UMMC in Baltimore and diagnosed with T-cell acute lymphoblastic leukemia (T-ALL). After a 28-day battle of fighting ferociously, he passed away. When he was sent home from the hospital after 24 days, the doctors were convinced that he was going to beat this. The toxic chemo created a massive pulmonary embolism that went undetected.
Holly
In 2016, I joined The Leukemia & Lymphoma Society (LLS) Tennessee Chapter as a supportive member of Team Addie. I had friends who became team members the previous year, walking in Nashville’s Light The Night Walk (LTN), and they encouraged me to get involved in the cause with LLS and LTN. Nashville is a city that my friends and I have gained so much love for through the years. I must admit I was hesitant to join at first because blood cancer specifically hadn’t affected my life or the people in it.