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Lori
When my husband Ken was first diagnosed and treated for AML it felt like we were trapped in a fierce storm and being tossed about in a fury of wind. My husband Ken was diagnosed with AML (acute myeloid leukemia) and received intense treatment, spending a total of 120 days in the hospital in 2019, culminating in a bone marrow transplant (BMT). We are so grateful that his only sibling was a viable match as many patients struggle for years searching for a donor.
Side Effects
Both cancer therapy and acute myeloid leukemia (AML) can sometimes produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.
Talk with your child’s doctor about potential side effects. Medications and other therapies can prevent or manage many side effects.
Diagnosis
While certain signs and symptoms may indicate that a person has ET, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to:
- Estimate how the disease will progress
- Determine the appropriate treatment
Some of these tests may be repeated both during and after treatment to evaluate its effectiveness.
How to Enforce Your Legal Rights
If you suspect that you are being treated differently at work because of your cancer history, consider an informal solution before leaping into a lawsuit. You want to stand up for your legal rights without casting yourself as a troublemaker.
If you face discrimination, consider the following suggestions:
Signs and Symptoms
A person who has signs or symptoms that suggest the possibility of non-Hodgkin lymphoma (NHL) is usually referred to a blood cancer specialist called a hematologist-oncologist. The doctor will order additional tests and a tissue biopsy to make a diagnosis. The signs and symptoms of NHL are also associated with a number of other, less serious diseases.
The most common early sign of NHL is painless swelling of one or more lymph node(s).
Stem Cell Transplantation
Stem cell transplantation is a procedure in which patients receive healthy stem cells to replace their own stem cells that have been destroyed by cancer or cancer treatments. The goal of stem cell transplantation is to cure the patient by destroying the cancer cells with high doses of chemotherapy and then to help the body start a new supply of blood cells.
Skin and Nails
SkinSkin-related side effects from cancer treatment include:
- Dry skin
- Redness
- Itchiness
- Skin lesions
Tell your doctor about any changes to your skin. Your doctor can recommend or prescribe appropriate treatment, including topical solutions (creams, lotions or gels) to soothe your skin or relieve itching.
Tell you doctor immediately if you notice:
Supportive Care and Disease Complications
Supportive (palliative) care for myeloma helps manage the complications of the disease and the adverse side effects of the drugs used for treatment, including:
Juliana
Juliana is a vibrant, sweet, intelligent, and brave daughter to Judith and Jorge. She was born on May 24, 2017, in Houston, Texas. On December 30, 2021, Juliana was diagnosed with leukemia. On January 2, 2022, after three and a half days in the hospital and one full day in the ICU, her diagnosis was confirmed as B-cell acute lymphoblastic leukemia (ALL).
Janiyah
Our beautiful Janiyah was diagnosed with acute lymphoblastic leukemia (ALL) at 14 months old. Some will say by chance or luck, others say by the grace of God. Thirteen months earlier, Janiyah was diagnosed with hemoglobin C disease; simply defined as chronic anemia.
Treatment for Aggressive NHL Subtypes
Aggressive non-Hodgkin lymphoma (NHL) progresses rapidly. It makes up about 60 percent of all NHL cases in the United States. Aggressive subtypes include:
LLS PedAL - A pillar of the Dare to Dream Project
Through LLS PedAL, The Leukemia & Lymphoma Society (LLS) is setting out to fundamentally change how children with pediatric acute leukemia, including acute myeloid leukemia and other high-risk leukemias, are treated.
Follow-Up Care
Those who have been treated for MDS are encouraged to:
Signs and Symptoms
Essential thrombocythemia (ET) is often detected during a routine blood test before an individual has any symptoms.
The signs and symptoms of ET are linked to high platelet counts that cause the development of a thrombus (blood clot). The symptoms include:
Returning to School
Consider educating family members, friends, school personnel and healthcare providers about your child's possible long-term and late effects of treatment. In particular, talk with teachers about your child's needs before he or she returns to school, as they and other school personnel may not be aware of the potential for long-term and late effects of treatment.
Diarrhea and Constipation
Diarrhea and constipation are common side effects of cancer treatment. The severity of diarrhea or constipation varies among patients and depends on the type of treatment you receive. Sometimes side effects improve as you adjust to treatment. Most side effects go away when treatment ends.
Tell your healthcare team if you are experiencing new or worsening diarrhea or constipation. Do not take over-the-counter medications without talking to your doctor.
DiarrheaFollow these tips to manage diarrhea:
Jamie
After he was diagnosed with blood cancer in 2013, Jamie was told by doctors that he’d never walk again, let alone ride a bike. Despite those predictions, he finished a 540-mile ride in June 2019 to raise money for The Leukemia & Lymphoma Society (LLS).
Taylor
In February of 2019, I was diagnosed with stage 4 Hodgkin lymphoma (HL). What started with a simple cough quickly turned into the most challenging year of my life. When you hear the words “you have cancer,” the world stops spinning. There is no way to prepare for the cold, dark fear that takes over when there are so many unknowns. At this point, I didn't even know what lymphoma was. I was so lucky to have UCLA fighting with me and the incredible support of my entire family by my side. I owe it to all of them for pulling me through.
Shelley
I went from being in the best shape of my life to battling cancer in only a few short months.
Three years ago, I made the choice to change my lifestyle, and I lost 100 lbs., which I can honestly say has saved my life. Prior to my cancer diagnosis, I was sharing my weight loss journey online to help others make positive choices. Little did I know that I was about to fight the biggest battle of my life!
Christopher
In January 2013, I was diagnosed with PH+ acute lymphoblastic leukemia (ALL). I had just turned 19 and finished my first semester at the University of Florida. I missed the rest of my freshman year but after eight months in and out of the hospital, I achieved remission and my doctors allowed me to go back to school for the fall.
Anthony
December of 2017 was a difficult time for me. It is the month that is usually filled with happiness, excitement and Christmas cheer. For me, it was the month I found out that I had Hodgkin lymphoma. It’s crazy when you think about it – we see all of these facts and figures about people who are diagnosed with cancer and we never, really, truly believe it could happen to us.
Chris
In 2008, my primary doctor noticed that my white blood cells were high (12,000 range) and referred me to a hematologist. The hematologist decided to "wait and see" for a while. From 2008 to 2018, we watched as my white cells slowly grew from 12,000 to 207,000. The oncologist then prescribed and 8-hour infusion of Rituxan. As I sat in the recliner chair with needle in arm, I got several violent reactions from the Rituxan and they pulled out the needle. The doctor told me that I needed a drug called Imbruvica (Ibutrinib). I was
Harper
In the late summer of 2021, 8-year-old Harper returned to in-person school for the first time since March 2020 for the start of third grade. Shortly after the beginning of the school year, Harper began to complain of headaches and bone pain and would fall deeply asleep each afternoon after school. Her pediatrician chalked it up to the rigors of in-person learning, wearing a mask all day, and indicated that a lot of children were experiencing similar symptoms.