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Elisa
My story begins in 1972 as a young, two-year-old child in a third-world country in Central America known as El Salvador. As a child, I recall the sunny days running around while being surrounded by a loving family. Nine months later, this would change as I began to feel weak and struggled to walk the streets in my neighborhood. As my condition became worse, my grandmother took me to the public hospital where I was seen by the oncologist who diagnosed me with acute lymphoblastic leukemia (ALL).
Alec and Aden
Can you imagine being a single mom by circumstances out of her control, navigating uncontrollable circumstances, as her identical twins display remarkable fortitude in the face of cancer, diagnosed three years apart? Successful at a well-paying job that afforded her the ability to support the boys and four other siblings in grade school. Managing life with six children would be challenging alone! No help from the children's father or his family, and her mother passed away years ago.
Radiation Therapy
Radiation therapy, also known as “radiotherapy,” uses high-energy x-rays or other types of radiation to kill cancer cells in a small, targeted area of the body. Since radiation can also harm normal cells, whenever possible, radiation therapy is directed only at the affected lymph node areas in order to reduce the long-term side effects.
Signs and Symptoms
MF usually develops slowly. MF often does not cause early symptoms and may be found during a routine blood test. When fibrosis develops in the bone marrow, the bone marrow is unable to produce enough normal blood cells. The lack of blood cells causes many of the signs and symptoms of MF. These include:
Signs and Symptoms
Polycythemia vera (PV) develops slowly, and it may not cause symptoms for many years. The condition is often diagnosed during a routine blood test before severe symptoms occur.
Symptoms may include:
MDS Subtypes
There are several kinds (subtypes) of MDS. The subtype is determined from the results of the blood and bone marrow tests.
WHO ClassificationThe current WHO classification guidelines identify six subtypes.The current WHO classification guidelines, which were updated in 2022, groups MDS based on genetic abnormalities and morphologically defined features (the appearance and number of the cells under a microscope).
The subtypes are determined by the following:
Kari
I am writing this in 2022, but I never would have believed when acute lymphoblastic leukemia (ALL) struck my daughter in 2013, that it would feel like we were back at step 1.
Gerardo (Jerry)
I came into this world with a 65,000-mile warranty. During all my life, maybe I had a cold once in a while, some minor stuff, a bit of bursitis, but nothing that you would consider life-threatening at all. One day during a routine exam, I had blood work done. My PCP told me she didn't like my white blood cell count, and it was best to have a specialist look at it. She referred me to an oncologist. I didn’t think of it much, and since I was feeling fine, I thought it must be nothing of consequence.
Ashley
It started in September of 2020, the start of this new journey in life called acute myeloid leukemia (AML). September 13th was the day that something needed to change. Something was just not right. She just was not herself and couldn’t figure out what was wrong. She knew it was time as a doctor told her to get to the hospital to get some fluids. Fluids were not what was needed, but in hindsight, fluids were just what was needed to find out what the root cause of the problem was. After hours of tests, life changed.
Ron
This started 11 years ago when my mom was first diagnosed with lymphoma. I wanted to do more and saw the purple team always out running events I was entered into. I wanted to join and did in 2010. I have run in countless events over the years with Team In Training (TNT). Then my mom passed in May of 2017 while I was training for the Walt Disney World event. I was crushed and continued to run in her honor. My mom was supposed to be at the finish line at my 2018 Walt Disney World Marathon Weekend, and it did not happen.
Stephanie
My journey with blood cancer began long before my diagnosis. In 2006, my world was shattered when my mom, just 52 years old, was diagnosed with acute myeloid leukemia (AML). She was quickly isolated in a specialized hospital, enduring grueling rounds of chemotherapy. I was about to start nursing school and desperately tried to educate myself on her illness, knowing deep down that the prognosis was grim. They mentioned a bone marrow transplant, but she never made it that far. A fungal pneumonia took her from us in December 2006.
Allie
When I was in fourth grade in 2015, my older brother Nate (a freshman in high school at the time) was rushed by ambulance to the U of M Masonic Children’s Hospital. His spleen was holding 10 times the normal amount of red blood cells. This led to the discovery of his cancer. He was later diagnosed with chronic myeloid leukemia (CML). He missed out on the first month of high school and hockey season, but he was able to take medicines at home so that he could eventually attend the rest of the school year.
Chemotherapy and Drug Therapy
Chemotherapy is the mainstay of treatment for HL. A combination chemotherapy regimen consists of two or more chemotherapy drugs. Generally, the drugs are dissolved in fluid and usually administered via a peripheral intravenous (IV) line. If finding an accessible vein is problematic, a central line (a port, or a peripherally inserted central venous catheter (a PICC or PIC line) may be used for some HL patients.
Disease Complications
Myeloma and treatment of myeloma can lead to mild to serious health complications and side effects. Some of these symptoms can be managed with ongoing supportive (palliative) care. Others may be medical emergencies requiring immediate attention. Always tell your healthcare team if you experience new or worsening symptoms.
PainPain related to myeloma or myeloma treatment can include
Related Diseases
Myeloma shares some similar features and symptoms with other blood disorders, including:
Prognostic Factors
Prognosis is the likely outcome of a disease along with the chance of recovery or recurrence. Hodgkin lymphoma (HL) cases are generally classified into the three subgroups described below.
Follow-Up Care
Follow-up care is important with both aggressive and indolent forms of NHL because if the disease recurs, curative options are still available for many people. Follow-up care needs to be individualized and should be based on several factors, including how the disease initially manifested. Patients who are in remission should continue to be monitored by clinical assessment as determined by their doctor. In the past, computed tomography (CT) scans or other diagnostic imaging were done routinely in an attempt to detect relapse.
Relapsed and Refractory
Most patients with classical HL are cured by their initial (first-line) treatment. However, in a significant percentage of patients—especially those with advanced stage HL—the disease relapses or is refractory.
- Relapse means the disease comes back after a remission following treatment.
- Refractory means the disease has not responded to treatment.
For these patients, HL is still potentially curable.
Side Effects
The main goal of treatment for myeloma is to get rid of myeloma cells. The term side effect is used to describe how treatment affects healthy cells. Patients react to treatments in different ways. Sometimes there are very mild side effects. Other side effects may be serious and last a long time.
Myeloma patients should talk with their doctors about side effects before they begin any type of treatment. There are drugs and other therapies can prevent or manage many side effects.
Aaron
Aaron was taken to urgent care after he developed a rash that didn't seem right. The next day, he was admitted into The Children's Hospital, and 36 hours later he was diagnosed with acute lymphoblastic leukemia (ALL).
Ann
After being in remission from acute myeloid leukemia (AML) for 12 years, things were going well for me. Then a day after my 48th birthday, I was diagnosed once again! It hit me really hard, and I could not seem to get past the words from the doctor, "You have_____."
Laura
I was diagnosed with stage 4 mantle cell lymphoma (MCL) in December 2020, but at the time, it was considered to be "indolent." That quickly changed in late February 2021 when I experienced intussusception, a painful telescoping of the bowel into itself requiring hospitalization. A colonoscopy revealed a 7 cm. mass of the cecum, and the biopsy showed that it was MCL. I was discharged from the hospital with the agreement that I would come back a week later and start chemo/immunotherapy.