Search Results
Caitlin
In June 2016, I was diagnosed with a super rare form of leukemia called Blastic Plasmacytoid Dendritic Neoplasm (BPDCN).
At the time I was 12 years old, just graduated sixth grade and was looking forward to entering middle school.
During one of my gymnastics practices, while doing a dismount off the beam, I hit my ankle really hard which caused it to bruise. The bruise formed into a lump so my mom took me to my pediatricians who then referred us to my hospital, where I received a skin biopsy and was diagnosed with cancer a week later.
Keisha
In 2017, I was diagnosed with a rare and chronic form of non-Hodgkin lymphoma (NHL). I was beyond devastated as I knew there was no cure for my condition, and I also knew my life would be altered in many ways. I was also finishing my last semester in graduate school and almost gave up my dream of graduating. But with the support of my family, school, physicians, and The Leukemia & Lymphoma Society (LLS), I persisted and received my Master of Education in 2018.
Christine
My father, Alan Schwall, was diagnosed with acute myelogenous leukemia (AML) at the very start of my sophomore year in college -- in the fall of 2006 when he was only 51 years old. He always had knee issues, but the summer between my freshman and sophomore year at college, he developed a swollen leg/knee and other problems that made it hard for him to walk at times.
Beth
Shortly after Thanksgiving of 2008, I started feeling sick and extremely weak. By late January of 2009, I was diagnosed with stage IV aggressive Burkitt’s lymphoma.
Lorri
In February, 2015 I got fever that would not go away. I figured it was the flu, even though I had the flu shot earlier that year. I just assumed it wasn’t effective. I continued to keep my daily routine including work and even hiking, but I felt so tired and ill. After several visits to a variety of healthcare facilities, I still didn’t hear the “C" word yet.
Cynthia
Cynthia was on a family vacation in 2015 when she began experiencing back pain so severe that she had to be in a wheelchair for the rest of the trip. When she returned home, Cynthia went to see her doctor who referred her to an oncologist. After several tests, Cynthia was diagnosed with multiple myeloma. She was devastated. Chemotherapy and radiation soon followed, along with horrible side effects, sleepless nights and countless blood transfusions. But Cynthia was not going to let cancer defeat her.
Lyra
Lyra is a confident three year old who spreads joy wherever she goes! She loves to sing, dance, draw, snuggle while reading stories and is rarely seen in anything but a princess dress. If you happen to pass Lyra at the store, she will most certainly ask you your name and probably tell you all about her favorite my little pony or what she ate for breakfast.
Melissa
I want to tell you about my hero, my wife, Melissa. She is service-focused from the time she gets out of bed until the time she returns. She's been a part of Team In Training for the past three years and has raised well into five figures to help others. That's what made her Hodgkins lymphoma diagnosis all the more ironic.
Lynette
It all started with a race... I began running back in 2011 with the sole purpose of losing weight. I joined a running group and became interested in races, specifically the Nike Women's Half Marathon.
Whitney
I am delighted to be a new member of the Clinical Trial Support Center team at The Leukemia & Lymphoma Society (LLS)! After eight years as a clinical nurse, charge nurse, and assistant nurse manager at various oncology hospitals across the country, I am honored to now work with blood cancer patients as a Spanish-speaking, CTSC nurse navigator.
Anasia
I was diagnosed at 26 years old with T-cell lymphoblastic leukemia (T-ALL) in June 2022. I was still a newlywed having married my best friend in 2021 and was a mom of two boys (ages three and one).
I began experiencing symptoms in May 2022 and didn't think it was anything other than stress ― until they became unbearable. Losing unintentional weight, having night sweats, a swollen face, and chest pain ― my husband knew something wasn't right. We waited in the ED for hours before being seen and having several tests run.
Grace
On February 6, 2023, I was diagnosed with stage 3 Hodgkin lymphoma (HL). However, my story starts months before that. I was attending my sophomore year of college at my university when I started experiencing symptoms I did not understand or put together. I started experiencing extreme exhaustion, I was dropping weight very fast, and I was always lightheaded. I decided to come home only three weeks into my spring semester because I couldn’t keep up my course load with how bad I was feeling.
Paul
In 2001, I described my health as excellent. I had a great job, was very physically active, and participated in a number of nonprofit activities. However, I very occasionally experienced extreme abdominal cramps that caused nausea and curling into a fetal position for approximately five hours. Doctors were perplexed, though suspected gallstones.
Signs and Symptoms
The most common symptom of Hodgkin lymphoma is one or more enlarged (swollen) lymph nodes. The enlarged lymph node may be in the neck, upper chest, armpit, abdomen or groin. The swollen lymph node is usually painless.
Other signs and symptoms of Hodgkin lymphoma may include
Side Effects
Before undergoing treatment, patients should talk with their doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.
The side effects of treatment for myelofibrosis (MF) will depend on many factors, including the type of treatment and dosage, the age of the patient and coexisting medical conditions. Therapy may induce
Milliman Report
The Leukemia & Lymphoma Society (LLS) advocates for improved access to medications for patients.
Tyrosine Kinase Inhibitor (TKI) Therapy
Tyrosine kinase inhibitors (TKIs) are a type of targeted therapy. TKIs come as pills, taken orally. A targeted therapy identifies and attacks specific types of cancer cells while causing less damage to normal cells. In CML, TKIs target the abnormal BCR::ABL1 protein that causes uncontrolled CML cell growth and block its function, causing the CML cells to die.
The first therapy given for a disease is called “initial” or “first-line” treatment. The following four TKI drugs are approved as first-line treatment for chronic phase CML:
Follow-Up Care
Follow-up medical care is important for every Hodgkin lymphoma patient. Follow-up care helps the doctor monitor you to see if disease has recurred or relapsed, or to see if more treatment is needed. Talk to your doctor about how often to have follow-up visits and what laboratory tests, scans, or other imaging you need. It is important to get a record of your cancer treatment including the drugs you received so that your doctor can follow up on specific long-term effects that may be associated with your treatment.
Public Programs
Big Changes Coming to Medicare Part D in 2024-2025 Learn MoreSome cancer survivors are eligible for government-funded health insurance, disability benefits or cash payments. While the eligibility requirements and enrollment process can be complex, and patients are often unaware of these programs, financial caseworkers and social workers can advise and help you throughout the process.
Vonshel
Hi, my name is Von, and back in 2008, I was diagnosed with breast cancer. I didn't want to die, but prayer and God sent me right to the perfect doctor: Dr. Moran from Brunswick, GA. I got through chemotherapy and radiation with a breeze, and I'm now in remission for 13 years.
Jacqueline
It’s been five years since my daughter was diagnosed with stage ¾ Hodgkin lymphoma (HL). She had just graduated college, and she had a lump on her right clavicle area. We went to the doctor, and then it all started, from CT scans to biopsy to telling us that it would be six months of chemo, and that’s it.
Mark
On October 16, 2015, my dad was diagnosed with acute myeloid leukemia (AML). I remember the day as if it was yesterday. It is so crippling. Right away, my dad transferred to OHSU to start treatment with my mom by his side. With three rounds of chemo and a bone marrow transplant on the calendar, my dad's days came to an end on February 3, 2016. This strong, funny, humble, and loving man that is my dad is gone.