Search Results

Kali’a

Kali’a, at just four months old, was diagnosed with B-cell acute lymphoblastic leukemia (ALL), a high-risk condition requiring a bone marrow transplant. What began as a routine four-month check-up quickly turned into our worst nightmare. Despite having plans for a day at Disneyland, a decision to keep the appointment proved fateful as the doctor discovered her enlarged spleen. Tests followed, but we managed to enjoy a memorable day at Disneyland where Kali’a's joy and smiles were infectious. The next day, a life-altering call shattered our world.

NHL Subtypes

More than 60 specific NHL subtypes have been identified and assigned names by the World Health Organization (WHO). NHL subtypes are categorized by the characteristics of the lymphoma cells, including their appearance, the presence of proteins on the surface of the cells and their genetic features. It's important to know your subtype since it plays a large part in determining the type of treatment you'll receive. A hematopathologist, a doctor who specializes in the diagnosis of blood disorders and blood cancers, should review your biopsy specimens.

Coping With Cancer

When someone is diagnosed with cancer, everyone in his or her family is affected. This holds especially true when a child has cancer. Different families have different ways of coping, but there are some sound strategies that anyone can employ. For useful tools and tips that may help, see the following pages:

Loxley

In early September of 2020, my son started to complain of back pain. I took him to the pediatrician, where he was assessed and a multiview x-ray was ordered. It was normal. I agreed to keep a log of his back pain complaints.

Joshua

Joshua was a regular 11-year-old. He played multiple sports, was learning to play the flute in the school band, and enjoyed having fun with his friends. After a few weeks of a nagging sore throat and enlarged tonsils, we took Josh to see his primary care physician (PCP). They ran some tests and sent him home. No big deal, just a routine trip to the doctor’s office. Josh's PCP called the next day at 6:00 p.m. . . . on a Saturday. She said that she was worried about some of Josh's blood test results and recommended we go to an urgent care or emergency room for further checks.

Nora

Nora was diagnosed with acute lymphoblastic leukemia (ALL) on August 20, 2018. This is the day our lives were turned upside down and forever changed. Nora was about three weeks away from her second birthday, and we were in utter shock that she would now be fighting an unfathomable battle. After all, this was Nora, our go-hard, go-fast, ray of sunshine. Never did we imagine anything could get her down. But yet, here we were.

Vaccine Therapy

Vaccines designed to treat cancer don't prevent the disease in the same way that conventional vaccine therapy prevents conditions such as measles or polio. The therapeutic cancer vaccines are designed to treat an already-present cancer and reduce its potential to grow.

Researchers are working on vaccines that could prevent cancer from recurring. Currently, there are no licensed blood cancer vaccines. Vaccines for leukemia, lymphoma and myeloma are still in development and available only in clinical trials.

Skin and Nails

Skin-related side effects from cancer treatment include:

• Dry skin
• Redness
• Itchiness
• Skin lesions

Tell your doctor about any changes to your skin. Your doctor can recommend or prescribe appropriate treatment, including topical solutions (creams, lotions or gels) to soothe your skin or relieve itching.

Tell you doctor immediately if you notice:

Special Considerations

Surgery. Patients with PV have increased risk for bleeding complications after surgery. Because your surgeon may not be aware of your increased risk for bleeding and blood clots, coordination between your surgeon and your hematologist-oncologist is very important. For elective surgeries, it is recommended that your platelet and red blood counts be in normal range before the surgery occurs.

'Chemobrain'

Chemotherapy and radiation therapy can cause problems with cognitive (mental) functions, such as concentration, memory and the ability to multitask. Most chemotherapy patients experience these effects, sometimes referred to as “chemobrain” or brain fog, to some degree, although doctors are unable to predict who might be affected.

The cognitive effects of chemotherapy for some are long-lasting. A small percentage of patients have long-term effects known as "chemotherapy-induced cognitive impairment." The symptoms include a mental fogginess and effects on:

Chemotherapy and Drug Therapy

Chemotherapy is the mainstay of treatment for HL. A combination chemotherapy regimen consists of two or more chemotherapy drugs. Generally, the drugs are dissolved in fluid and usually administered via a peripheral intravenous (IV) line. If finding an accessible vein is problematic, a central line (a port, or a peripherally inserted central venous catheter (a PICC or PIC line) may be used for some HL patients. 

Disease Complications

Myeloma and treatment of myeloma can lead to mild to serious health complications and side effects. Some of these symptoms can be managed with ongoing supportive (palliative) care. Others may be medical emergencies requiring immediate attention. Always tell your healthcare team if you experience new or worsening symptoms. 

Pain related to myeloma or myeloma treatment can include 

Related Diseases

Myeloma shares some similar features and symptoms with other blood disorders, including:

Clio

I lost my mom to acute lymphoblastic leukemia (ALL) in 2003. Her battle was short, just three months, which left me in shock and feeling very angry. My mom had always instilled in me the value of working hard to accomplish goals and I knew she wouldn’t want me wasting energy being angry. In late 2004, I decided to find a way to channel the anger into something productive, and just weeks later I came across a Team In Training (TNT) brochure. I started running half marathons with TNT and I’ve since completed about a dozen. 

Damion

In 2020, at the age of 36, I was diagnosed with multiple myeloma (MM). To say this was out of left field would be an understatement. Historically, MM has been recognized as a blood cancer that impacts older patients. That research may be changing. Also, MM disproportionally affects African Americans. At the time of my diagnosis, I was a pretty healthy guy. I tried to eat right and even played in two basketball leagues each week. When I went to the doctor with stomach issues, I wasn't expecting to leave with a cancer diagnosis.

Diane

My journey with The Leukemia and Lymphoma Society (LLS) started in 2015 when my spouse was diagnosed with orbital lymphoma.   I have been working in the oncology field for the past 20 years. Hearing the words my spouse has cancer was scary.  After meeting with the oncologist he did not need treatments watch and wait approach was great news. Proudly he got to the 5 year benchmark and he is well.  Then 2019 I started to have all abdominal issues. Pain, pressure in abdomen as well in my back. We did multiple scans all negative.

Dominick

My grandson, Dominick, was diagnosed with high risk pre b cell acute lymphoblastic leukemia (ALL) in November 2014. He was 2 3/4 years old and it was only 8 months after his dad unexpectedly passed away. Obviously this was a new shock for his mom, Danielle and his family. His sister Gianna, who just turned 5, still hadn't got over the loss of her dad and now had to deal with her brother's illness.  Dominick had severe bruising and was diagnosed by his pediatrician.

Nathaniel

I was diagnosed with acute lymphoblastic leukemia (ALL) on October 27, 2020. I was 24 years old at the time, and my girlfriend had just given birth to our son a month before I got sick. I was first admitted to St. Mary’s Medical Hospital in Apple Valley, California, then later transferred to Loma Linda University Medical Center. The next year was the hardest for me, not being able to help my girlfriend take care of our newborn baby boy, missing holidays, birthdays, family gatherings, and events. I was constantly in and out of the hospital, so much so that it felt like I lived there.

Haley

I was diagnosed on February 21, 2020, with stage 3B nodular sclerosing Hodgkin lymphoma (NSHL). I was attending UNLV and working on finishing my prerequisites to apply to the nursing program. One month later, COVID hit the U.S. and shut everything down. I had to go to all of my appointments alone. I was able to freeze my eggs before starting treatment two days later on April 3, 2020. I felt like my entire world had been turned upside down, just for the entire world to descend into chaos. It was a very scary and stressful time.

George

I was born in the inner city of Philadelphia, PA in 1951, I currently live near Dallas, Texas. My professional career in the Information Technology Industry lasted over 40 years prior to my retirement in January 2019. In 2002 I was diagnosed with chronic lymphocytic leukemia (CLL) and many aspects of my life changed forever.

Casey

At 31, I was diagnosed with acute lymphoblastic leukemia (ALL), a rare children’s cancer. Four months into treatment, I had a stroke and seizures and went into a medically induced coma for three days. I had to relearn how to use the entire left side of my body (yes, walk, talk, and function) while still going through treatment. My treatment protocol was 18 months long. Seven weeks after I finished, I relapsed. My body was no longer responding to chemotherapy, so we tried an immunotherapy that sent me into a cytokine release storm (your body starts to attack itself).

Taylor

Hello! I am Taylor, and most people know me for being a human biology premed student at the University of California San Diego. However, what most people don’t know is I was diagnosed with a rare blood cancer in March of this year. I have systemic mastocytosis (SM) which leads to lots of anaphylactic reactions and hospital visits. I spend lots of time getting tests because my cancer is rare and infusions at the cancer center. I have had several types of chemotherapy drugs and many biopsies.

Ashen

My son, Ashen graduated from high school this year, but he was diagnosed with leukemia back in July 2015. He was devastated and depressed when he was told of his life threatening illness. Here is his story.

Ronnie

After several months of flu-like symptoms, 11-year-old All Star little leaguer Ronnie took a blood test that would determine his white blood cell count was nearly 1 million. Ronnie was immediately sent to Ann and Robert H. Lurie’s Children’s Hospital of Chicago where he was diagnosed with acute lymphoblastic leukemia (ALL).

Brianna

My name is Brianna Ciambra I live in New York and this is my story. When I was eleven, I was diagnosed with acute lymphoblastic leukemia. I went through two in a half years of chemotherapy which consisted of IV meds, spinal taps, steroids etc. I lost my hair during the chemo, which was very hard. I also developed a condition called Avascular necrosis. Avascular necrosis is bone loss in the joints, since 2009 I have had full bilateral hip and shoulder replacements. I also had my right knee fully replaced and two spinal surgeries.