Search Results
Lance
I was diagnosed with acute lymphoblastic leukemia September 2014 at age 13. I had just started 8th grade. 1st symptoms-to-diagnosis took only 4 days. I didn’t get a chance to think about things; we were busy trying to save my life.
Elijah
Diagnosed with ALL in 5th grade, my hopes for a normal and healthy childhood were quickly shattered. The impact on my family began as devastation but has since metamorphosed into restoration, healing, and a closeness beyond this world (bonus, my brother and I have never fought since the day I received the news of my disease).
Jade
Last year in June of 2021, I was diagnosed with acute lymphoblastic leukemia (ALL) at the age of 24. This diagnosis came as a complete shock to my family and me! My symptoms included extreme fatigue, migraines, bruising, nose bleeds, and radiating leg pains. All these symptoms came and went, and I never would've imagined it would be cancer. I attributed my symptoms to the stress from work. With sitting all day and staring at my computer screen, I never really thought much of it.
Marisa
Throughout my father’s journey, I was impressed by his care team, the advanced medicine used to treat blood cancer today, the individuals I met, people’s generosity, and the organizations I was introduced to. This journey opened my eyes to various organizations such as Be the Match and The Leukemia & Lymphoma Society (LLS).
Ilustre
Just like many Filipinos, my beloved grandpa said “YES” to the U.S. Navy to provide for his poor family in the Philippines. He gave his all, and no matter the circumstances, he stayed strong. My grandpa was a warrior with a golden heart.
From open heart surgery to prostate cancer and acute myeloid leukemia (AML), he fought for his life until his very last breath.
He has instilled in me leadership, hard work, and love. There was never a time he wasn’t there for me at my pageants, birthdays, or award ceremonies.
Brielle
Brielle, a beloved daughter, sister, and aunt, was diagnosed with acute lymphoblastic leukemia (ALL) on June 8, 2022, at just 22 years old. Given her age and history of ideal health, the news was more than shocking.
Things began to move quickly after the initial diagnosis. Plans were made for her to begin chemotherapy in Augusta, Georgia, which was a four-hour commute from home. Her family pulled together to provide financial and emotional support. Following a successful round of chemo, Brielle’s brother donated bone marrow for a bone marrow transplant.
George
I am a 72-year-old retired Information Technology professional. I was diagnosed with chronic lymphocytic leukemia (CLL) in June 2002 and remain in active treatment today. Over the last 22 years, I have had more than 700 trips for doctor visits, treatments, lab test, emergency room, hospitalizations, and pharmacy. My biggest challenge over the years is managing the cost of premiums, medical treatment, drugs, travel, and medical appliances. I found multiple resources that stepped in to assist me with my financial challenges related to my CLL.
Annais
My name is Annais. I am now five years old, and I will be one year in remission from acute lymphoblastic leukemia (ALL) this September 1st.
CML in Children and Young Adults
Most cases of CML occur in adults. From 2012 to 2016, approximately 2 percent of all cases of CML occurred in children, adolescents and young adults less than age 20.
Side Effects
Both cancer therapy and acute myeloid leukemia (AML) can produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.
Before you undergo treatment, talk with your doctor about potential side effects. Medication and other therapies can prevent or manage many side effects.
Laraine
November 21st is Family Volunteer Day. The Leukemia & Lymphoma Society (LLS) encourages you to volunteer as a family today. Whatever you choose to do, do it together. Some ideas include: take a few minutes to call a friend, neighbor or colleague; cook a meal together and drop it at the doorstep of someone in need; rake a neighbor’s yard or put a book in a neighborhood lending library.
To honor this day, we are sharing the story about a family faced with a cancer diagnosis, who banded together when the future seemed so unclear.
Roberto
In the fall of 2014, I was living my dream. I had just finished my freshman year at NYU, where I studying musical theater. I was living in the East Village, experiencing everything that New York has to offer. Even though I was a long way from my family in Miami, I absolutely loved it. However, I soon started to feel lethargic, coupled with a lymph node that was popping out of my neck and getting bigger. Something just wasn’t right. I was downing 9 Advil a day and started seeing doctors to try and figure out what was going on.
Trisha
On November 15, 2019 at 29 years old, my world changed forever. I was diagnosed with Plasma Cell Leukemia. It is basically a hybrid of Multiple Myeloma and statistically only shows in men over 60. I wanted to be special but not like this! At my 6 week postpartum appointment with my second babe, my stomach had not been shrinking like it should but I assumed it was because it was my second baby or the diastasis recti. My OB did a ultrasound and saw a lot of ascites and that my liver was massive so she instructed I go to the ER as that was not normal.
Gregg
I sailed through the first 56 years of my life...bachelor's degree, master's degree, 20 years as a physical education teacher, 15 years as a district administrator and school principal. Along the way I founded AZ Disabled Sports, the Desert Challenge Games, SkiAble and other programming for individuals with physical disabilities.
Jarvis
In the fall of 2019, life was very active for me and my 4-year-old son Jarvis. I was busy working 2-3 jobs, and Jarvis was busy just being a kid. Almost every day after school we would go to the park so he could run around and play. He was even starting to get interested in bikes and wanting to learn to ride when he started to mention his feet were hurting.
Jonathan
I was diagnosed with B-cell acute lymphoblastic leukemia (ALL) on July 26, 2019, and even without the involvement of a pandemic, I imagine that’s reason enough to believe that to me 2018 seems like a lifetime ago. Still, I can remember it well enough: A wide-eyed younger version of me arrived at college orientation, somehow simultaneously thrilled to begin a new chapter of his life and paralyzingly terrified of the imminent unknown.
Henry
On April 6, 2021, we heard for the first time, “We think it's leukemia.” As I watched my boy jumping on the neighbor's bounce house enjoying the first warm spring afternoon, my mind went to one simple question, “Why him?” Up until that point, our then three-year-old, Henry, had been the happiest and healthiest toddler.
Chancez
Hey, my name is Chancez (ironically, I was blessed with many chances last year). I became a part of The Leukemia & Lymphoma Society (LLS) community last year and was provided financial support. I was also presented with love, care, and daily reminders of all the support that was available to me to get me through such a rough period in my life. A friend of mine suggested that I share my story to help others in our community, especially young adults who are in the same predicament I was once in.
Paul
Thank you on behalf of the Freeman Wilner Family for this Honored Hero Award in memory of my father, Dr. Freeman Wilner, he was a hero to many.
Long-Term and Late Effects of Treatment
While treatments for ALL have led to increased survival rates, some may cause significant long-term or late effects. Long-term effects of cancer treatment are medical problems that last for months or years after treatment ends. Late effects are medical problems that do not appear until years, or even possibly decades, after treatment ends.
The long-term and late effects of childhood ALL treatment can include:
Side Effects
Therapy for CLL sometimes produces side effects. Side effects from kinase inhibitor drugs and monoclonal antibody therapy are generally milder than side effects from chemotherapy.
For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.
Stem Cell Transplantation
For certain patients with CML, allogeneic stem cell transplantation (the infusion of donor stem cells into a patient) is their best treatment option. However, this type of transplant can cause serious or even life-threatening complications and side effects. In addition, it is often not a good option for older patients or for patients who have other health problems.
Kristen
I was diagnosed with Burkitt lymphoma (BL) when I was 21 years old. It was the summer going into my senior year of college, and I had just returned home from a semester abroad. I assumed the stomachaches I was experiencing were because of the food and drinks I had while enjoying my time in Europe. I was actually told I had H. pylori and started antibiotics that were supposed to alleviate the stomach pains. But then a lump on my neck appeared, and I thought the worst.
Steve
I was diagnosed with stage 4 acute myeloid leukemia (AML) in 2015. It is not known if Humira (a drug I was prescribed) caused it or just blew up the AML. On the night of diagnosis, I was told the hospital I was in could not treat me, and I would be transferred in the morning. About the time my wife returned home, she received a call that I had taken a turn for the worse and was being transferred immediately. During this time, we decided to use humor during interactions with all medical personnel from there on out.
Katie
Twenty years ago I did two things that shaped my life.