Search Results

Kassandra

Exactly a month before my 24th birthday, I was diagnosed with acute lymphoblastic leukemia (ALL). As a young adult, hearing the words “you have cancer” come from a physician’s mouth was earth-shattering, to say the least.

Prior to my diagnosis, I had been working in clinical research and was enrolled in a Biomedical Science Master’s program with hopes of continuing to medical school and becoming a physician. However, my career aspirations were placed on hold when I received my diagnosis. Immediately, my dedicated student lifestyle turned into one of a full-time patient.

Mary Elizabeth

When Mary Elizabeth was 10 years old, she noticed a large lump on her neck. Her parents also noticed her lack of energy, but doctor after doctor couldn’t find anything wrong.

“On a family vacation, she wasn’t looking right, and we took her back to the doctor and insisted on bloodwork. The doctors were convinced it was mono,” said Mary’s mother, Mandy.

Cayden

In April 2020, three-year-old Cayden began experiencing leg pain and developed an unusual limp that alarmed his mother, Courtney. Soon, the pain progressed to a stiff neck and loss of appetite. Just two weeks later, after multiple tests and doctor appointments, Courtney and her husband would hear the words that every parent fears, "your child has cancer". Cayden was diagnosed with a high-risk form of blood cancer, Philadelphia chromosome-positive acute lymphoblastic leukemia (ALL).

Toben

Toben had entered preschool at 3½ years old, and within a few months, he was getting sick often. He started getting random fevers that would go away in a day. When he got leg and arm pains, we started to get concerned. The pains were so bad that he couldn't walk and would wince when we picked him up or moved him. At his four-year check-up, he wasn't showing any signs or symptoms, so we chalked it up to growing pains. Most of the summer he was fine, but by the end of July, the symptoms were stronger and lasted longer and longer.

Christine

Christine Attia knows first-hand how overwhelming and terrifying a blood cancer diagnosis can be. She lost her 27-year-old fiancé three years ago after a courageous six-month battle with acute myeloid leukemia (AML), a blood cancer which has seen few improvements in treatments in more than 40 years.

Tim

On March 10, 2015 I reached another milestone and turned 60 years young. I have been blessed with good health and the ability to swim, bike, and run. For over a decade I have been involved with The Leukemia & Lymphoma Society (LLS) as a board member and participant in more than a dozen fundraising triathlons/marathons for Team In Training events all over the world. My efforts will continue until cures for blood-related cancers are realized.

Grayton

I am Grayton Bliss and I am a survivor! I was diagnosed with acute lymphoblastic leukemia in December 2008, at four years old. Today, I am 13 years old and I have conquered the disease and am in remission. My mother and father tell my story with a full and happy heart. We look back at photos taken just a few months prior to diagnosis and we can see the physical characteristics of the disease. My face was pale, my body thin and my skin bruised. Every photo I look at show a little more of the illness as if slowly my body giving into the disease.

Liliana

Ciara and Liliana were born a few years apart and grew up in a happy home with their mother, Heather and father, Danny. I would describe Ciara, age 7, and Liliana, age 5, as always smiling, always playing, always pretending, always hiding and always giggling. Happiness was contagious when you were around them. Both girls had big brown eyes and long brown hair and their beauty was only matched by their genuine kindness.

Janet

My caregiver journey began in 2005, when my husband found a lump on his neck and was diagnosed with a rare form of non-Hodgkin lymphoma. After being admitted to the hospital for nine rounds of chemotherapy, he went into remission.

Danielle

I am currently on the Board of Trustees for The Leukemia & Lymphoma Society's Minnesota chapter. The reason why I decided to dedicate my time, talents and networks to this organization is because I am passionate about finding a cure for cancer. This passion runs so deep in me, it serves as a constant reminder of how fleeting life can be. And, that everyone deserves a lifetime.

Jaimie Potvin

Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.

Munira

I will never underestimate my parents' sacrifices to provide my siblings and me with the millions of opportunities we have due to their hard work. My parents were born and raised in Addis Ababa, Ethiopia. Both were born to families who instilled the traditional family value of grit in every walk of life. My parents both obtained a high school diploma with the intent of seeking higher education, but the obstacles of living in a developing country robbed them of the chance.

Michele

I was recently diagnosed with chronic lymphocytic leukemia (CLL). My mom passed away from pulmonary fibrosis right before Thanksgiving 2022. She never smoked and had none of the risk factors that led to that type of disease. So, I thought I would get a physical to make sure I was healthy. I have a 2½-year-old daughter, and I am an older mom, so I figured I should make sure my lungs were healthy. I didn't even have a primary care physician, so I asked my good friends for a recommendation.

Gal

My name is Gal, and I am 21. In 2011, I moved to California from Israel. Within a few months, I was diagnosed with acute lymphoblastic leukemia (ALL). I was only eight. I was dismissed by doctors for four weeks because I was too young even though I showed clear signs of blood cancer. My bones hurt a lot. I started to get a lot of big bruises, and I had an insanely high fever. I was in treatment for two years and seven months. I survived in 2013 as I entered my teen years. When I was sick, I would go to a camp called Camp Simcha. It is a camp for cancer patients in upstate New York.

Courtney

In March 2022, I began experiencing unusual symptoms of fatigue, nausea, persistent infections, and bloody noses and gums, but I didn’t think much of it. Following a lucky-timed appointment with my primary care doctor and multiple blood tests, I was diagnosed with acute lymphoblastic leukemia (ALL). Cancer isn’t something an otherwise “healthy” 27-year-old thinks will come out of a doctor’s mouth.

Renata

The best thing and the worst thing to ever happen to me happened at the same time. On my birthday, I found out that I was pregnant. That explained (I thought) why I felt so run down and lethargic. My husband and I were over the moon as this was our first child. 

As weeks went by, what I thought was morning sickness hit me hard. I couldn’t keep food down. My doctor gave me meds; nothing helped. 

Bryan (Hennessy)

My name is Bryan, but most know me by my stage name Hennessy Williams. I was diagnosed with stage 4 non-Hodgkin Burkitt lymphoma (BL) on July 1st, 2005. I was 20 years old.  It was the hardest battle I ever faced, I am lucky to be here, I am lucky to be alive. I am alive because I had a tremendous amount of support from my family and friends, not everyone is blessed with this option.

Annette

I had been feeling unwell for quite a while. I would come home from work and go to bed right after dinner. I would sleep for hours and still be fatigued. When we had afternoon meetings, I would fall asleep. My husband and I kept thinking it was my very stressful job. I was on airplanes three times a week and would be traveling all over the country. I wasn’t eating or sleeping well. I finally decided to take early retirement. I still did not feel well even after being retired. I finally got to the point where I was so sick, I told my husband to take me to the emergency room.

Ph-Positive ALL Therapy

In addition to chemotherapy combinations, children with Philadelphia chromosomepositive (Ph+) ALL and Philadelphia chromosome-like (Ph-like) ALL are also given a tyrosine kinase inhibitor (TKI) medication.

Tyrosine kinases are enzymes that are a part of many cell functions including cell signaling, growth and division. These enzymes may become too active in patients with an ALL subtype called Philadelphia chromosome-positive ALL (Ph+ ALL).

Amanda

I have been through quite a bit dealing with multiple health problems before hand going through traumatic changes not understanding why life ended up this way but sometimes God gives his hardest moments to a strongest people.

Being diagnosed with leukemia was one of the most hardest moments ever. It has been the most horrible thing ever dealing with uncertain symptoms almost dying multiple times continuously holding on for life hoping that I don’t die.

Jackson

Jackson was diagnosed on December 31, 2016 age eight with Philadelphia positive acute leukemia. Doctor's said he wouldn't live long and transferred him to Children's Health Care of Atlanta where he spent the next year hooked to machines, receiving platelets and a horrific chemotherapy regiment.

He was given the green light to come home with high restrictions and no contact instructions. He lost many friends as he lost his hair. It hasn't been easy by any means for him, his sister or myself.

Dawnya

This is me and my bald head on vacation in California. I was diagnosed with leukemia when I was 2 1/2.

My parents made sure that my life was as normal as possible. One of my favorite comments that my parents said was Dawnya Kaye always mind your manners. They did not tell until later the story behind that saying. I was raised to be polite and say please and thank you.

My parents informed the adult me why growing up with good manners was so important to them. What happens if I survive my cancer, they did not want to have a little monster on their hands.

Tony

I was diagnosed in 2016 with multiple myeloma (MM) and was able to get a bone marrow transplant in 2017. After I recovered, I was cancer-free for five years. Then two years ago, my cancer came back, and I am now going through with two types of therapies to keep things at bay and doing well. Besides the ups and downs of working full-time and cancer coming back, my oncologist who saw me through retired last December, and I got a new one. However I was not happy and started seeing one of his associates and really liked her, but she is now leaving the practice in two weeks.

Lucille

I was diagnosed with chronic myelomonocytic leukemia (CMML) in October 2019, at the age of 57. After experiencing months of symptoms such as severe fatigue, bruising easily, and shortness of breath.

Debbie