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Essence

Isabelle

I was diagnosed with acute lymphoblastic leukemia (ALL) on December 4, 2003, at the age of five. As a young child, I was very energetic and loved to do anything outdoors and active, and I especially loved a good competition with my older brother Harrison. My parents began noticing that something was off when I started complaining about not being able to walk up the big hills in San Francisco where we lived. This was very uncharacteristic of me as I loved to race my brother to the top.

Signs and Symptoms

A person who has signs or symptoms that suggest the possibility of non-Hodgkin lymphoma (NHL) is usually referred to a blood cancer specialist called a hematologist-oncologist. The doctor will order additional tests and a tissue biopsy to make a diagnosis. The signs and symptoms of NHL are also associated with a number of other, less serious diseases.

The most common early sign of NHL is painless swelling of one or more lymph node(s). 

Treatment of Acute Promyelocytic Leukemia

Acute promyelocytic leukemia (APL) is a unique subtype of acute myeloid leukemia (AML). APL cells have a very specific abnormality that involves chromosomes 15 and 17, leading to the formation of an abnormal fusion gene called PML/RARα. This mutated gene causes many of the features of the disease. APL accounts for about 10-15 percent of all adult AML cases diagnosed each year. 

Sarah

I was diagnosed with B-cell acute lymphoblastic leukemia (B-cell ALL) in October 2020 at the age of 38. It was a shocking diagnosis. I started feeling bad in September with extreme fatigue and some body aches, nothing terribly alarming. I'm a busy wife and mom of two young kids (ages 2 and 8 at the time of diagnosis) with a full-time job and two new puppies. I figured I was just worn out from everything. I had routine bloodwork scheduled for my annual physical. When my primary care doctor received the results, he called and asked me to go to the emergency room.

Julia

Julia is an eleven-year-old volleyball player, and when she started to experience digestive issues that we couldn't equate to anything, we were afraid that her physical symptoms would keep her off the court for a prolonged period of time.

Pain

A cancer diagnosis does not mean that you will have pain. Still, many people with cancer do have pain at some point. Good pain control is part of proper cancer care.

Managing pain may result in better treatment outcomes, so patients should talk to their healthcare team about their pain right away. Left untreated, pain can:

Josh

I was 38 years old; my three-year-old daughter was turning four in one month. My wife and I just found out that we were expecting a new little one in eight months. I had been feeling weak, tired, and just like I had had a sickness that wouldn't go away for about four weeks. I just kept pushing through and going to work without giving it much thought, and I even went to the ski hill for a snowboarding day trip. I had gone into a few different walk-in clinics at that time, and they had told me I was young, and all viral tests were clear.

ALL Subtypes

The subtypes of ALL are identified based on certain features of the leukemia cells. Determining the ALL subtype is an important factor in treatment planning. The doctor will discuss with you which drug combinations are indicated based on your child’s ALL subtype.

Leukemia cells can be classified by the unique set of proteins found on their surface. These unique sets of proteins are known as “immunophenotypes.” Based on immunophenotyping of the leukemia cell, the World Health Organization (WHO) classifies ALL into two main subtypes.

Adam

My wife left me after 33½ years of marriage (37½ including dating) and 2½ years into my remission. I read stories about a spouse, usually a male for some reason, who up and left his partner either during active treatment or when everything looked like the patient, the person, would live, but I never thought any of that would happen to me, and it sure as heck did. She fell out of love with me, with caring for me, with helping me. I may have been an ass, but I wasn't an asshole ― you know what I mean? She probably feels she didn't deserve any of this either, but . . .

Brandi

My concerns began to rise when I noticed some spotting/bleeding between cycles that would last for 10 minutes or less. Additionally, I also started to experience slight abdominal cramps first thing in the morning. I’ve always been a deep sleeper and rarely woke up in the middle of the night to use the restroom, so nothing seemed out of the ordinary. That escalated to me waking up multiple times in the middle of the night to try to use the restroom, sometimes without cramps and other times with extreme abdominal cramps.

Reese

Before we knew the world of childhood leukemia, and long before bone marrow transplant was a part of our vocabulary, we had sweet little identical twin girls, named Reese and Quinn. The twins were born in Chicago on April 10, 2014. Reese and Quinn were healthy babies who grew into healthy toddlers and then their little sister Claire joined our world in 2016. These sisters are the best of friends and the greatest supporters of each other.

Alan

Life is unpredictable. It can throw unexpected challenges at us, testing our strength, resilience, and hope. My story began in November 2020 with a dreaded phone call from my doctor’s office. The results of my bone marrow biopsy were in, and I had acute myeloid leukemia (AML). AML is a fast-growing and life-threatening cancer of the blood and bone marrow. It was so serious that I needed to get myself to the emergency room right away.

Palliative Care

Palliative care and the medical specialty of Palliative Medicine refers to specialized medical care focused on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a team of specialists, including palliative care doctors, nurses and social workers who work with a patient's other doctors to provide an extra layer of support. It is appropriate at any age and any stage in a serious illness, and it can be provided along with curative treatment.

Treatment

There is not one treatment that is effective for all myelofibrosis (MF) patients. Patients have varying symptoms and circumstances that require different treatment options. Some MF patients remain symptom-free for many years and do not require immediate treatment. All MF patients, however, need to be closely monitored.

Mark

My wife, Linda, and I celebrate and lament our first anniversary; I was diagnosed with chronic myeloid leukemia (CML) on June 5, 2023. While death is not impending, our future has radically changed. There are losses, namely a more predictable and imaginable future. Certain certainties are broken that cannot be fixed. We search for new norms that require reimagining hopes, dreams, and aspirations. Of course, we will not give up on illness-specific hope that remission comes sooner than later and that side effects subside. No proof exists that we will get what we hope for.

Gabby

Her name is Gabriella Sarai. We call her Gabby! She is a feisty little four year old. She has been running circles around her two older brothers, her dad, and me since she was able to walk. She is the baby and the only girl. She gets away with a lot.

Todd

I was diagnosed at age 33 as a result of an unrelated blood test, very young, I was told. Fluorescence in situ hybridization (FISH) showed low risk. My local oncologist sent me to a regional teaching hospital to get a second opinion, and that opinion was, "If I had to pick a cancer, this would be it." Terrible start!

Lisa

On my ex-husband's 40th birthday, I asked him to take me to the hospital. I'd had elective surgery a week prior, and I knew something was terribly wrong. I felt awful, it hurt to breathe. In emergency, we learned I had acute myeloid leukemia (AML) and bilateral pneumonia. A triple lumen was put in so I could receive antibiotics, blood transfusions, and chemo at the same time. I wasn't expected to make it through the weekend, and my entire family traveled to Dallas to be with me. Through a series of events, I was fortunate to be cared for by Dr.

Other Disease Studies

Another type of study that blood cancer patients and their relatives can participate in is a nontherapeutic study. Nontherapeutic studies aren't considered clinical trials because they don't involve the study of new diagnostics or treatments for diseases. Instead, they're developed to gain a better understanding of disease-incidence patterns or the consequences of specific treatments for a specific disease.

In all cases, you should be asked to sign a consent form that defines the study's purpose and what's expected from the participants.

Claire

In February 2019, our daughter, Claire, was diagnosed with a rare form of acute myeloid leukemia (AML) just three short months after we celebrated her second birthday. We noticed a few discolored bumps on her body and assumed it was just a reaction to a new soap I had purchased, but then they began to pop up on other parts of her body.

Lauren

To be healed by the miracles of modern medicine and prayer was the most profound experience of my life. It is difficult to articulate the gratitude my family and I feel in our hearts for the people who made it so. There is no scenario where I would be here today, writing this account, without the research made possible by The Leukemia & Lymphoma Society (LLS).

Chloe

At the age of 13, I became the youngest stem cell donor at Johns Hopkins Hospital. At 15, I am a Student Visionary of the Year in the 2024 Leukemia and Lymphoma Society (LLS) campaign. LLS has become an integral part of my life over the past two years. In the spring of 2022, the peaceful life of our family was shattered by my mom’s diagnosis of acute myeloid leukemia (AML). Learning that a stem cell transplant was the only cure, I volunteered to donate my bone marrow to her.

School

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Treatment

It's important that your doctor is experienced in treating patients with chronic myeloid leukemia (CML) or has access to a CML specialist. Doctors who specialize in treating patients with CML are called “hematologist-oncologists.”  

Click the links below to read about types of treatment for CML.