Search Results
Sofia
My name is Janaye, and I am the mother of Sofia, age 4. Her father's name is Gary. On September 1, 2023, Sofia was diagnosed with pre-B-cell acute lymphoblastic leukemia (pre-B-ALL). She was three. Today, I will share the story of her diagnosis and our journey thus far.
Jelien
Jelien started showing signs in early July of 2018. She had bruises and cuts that were taking too long to heal. In November, she kept spiking fevers with no other symptoms, and the doctor suggested giving her Motrin and switching to Tylenol. In December, during her well visit, Jelien’s bloodwork came back with slightly low counts, but her hemoglobin was too low. She was admitted to the hospital for a day for observation, and her counts were recovering. She had a follow-up and was cleared.
Lauren
To be healed by the miracles of modern medicine and prayer was the most profound experience of my life. It is difficult to articulate the gratitude my family and I feel in our hearts for the people who made it so. There is no scenario where I would be here today, writing this account, without the research made possible by The Leukemia & Lymphoma Society (LLS).
Laura
It’s hard to even know where to begin. I was 63 years old, a happily working professional in health policy and advocacy. I know the power of an organization like The Leukemia & Lymphoma Society (LLS); a daughter, wife, mom, grandma, and dog mom.
I was traveling with my husband, and I had a side pain. I thought might be a gallstone.
Dustin
December 3, 2016, was the date that I was supposed to get married to KT. It was a Saturday. We had that date set for over a year, but there was no wedding—we canceled it the Tuesday before. KT informed most of our guests with an explanatory text: “So, I have some unfortunate news. We’re going to have to call off the wedding this weekend. Dust got cold feet…and leukemia.”
Nathaniel
In 2015 at just 15 months old, Nathaniel started to get sick on a regular basis. He started running a fever and his blood count was really low and we pushed for answers when he wasn't getting better until we were told to go to the Children's Hospital. He was extremely pale, wouldn't eat, and lethargic at this point.
Anna
In 2016 I received one of the scariest calls. My 9-year-old niece had just been diagnosed with leukemia. I live on the opposite side of the country. I was by her side in under 12 hours where I spent the next month trading shifts with her mom as we watched her struggle through treatment. During her hospital stay, we learned of several children from our small community battling the same cancer. I began advocating for these kids and the situation grew bigger than we could have ever could have imagined. That story is for another time. I eventually had to come back home to Seattle.
Mendya
First, I must express appreciation to The Leukemia & Lymphoma Society (LLS) for providing educational resources, knowledge, and financial assistance to those of us affected by blood cancer. LLS spotlights blood cancer and gives a voice to so many like myself. Thank you. As a way to show my support to LLS and to raise awareness, I have raised $210 in September 2023, Blood Cancer Awareness Month (BCAM), via Facebook. This is just the beginning of my advocacy.
Pam
I was diagnosed with myelodysplastic syndrome (MDS) in December of 2020. I went through six treatments from January 2021 to June 2021. The treatments were a series of shots for seven days at the beginning of the month. In July 2021, I was approved for my stem cell transplant at The James Cancer Center, The Ohio State University in Columbus, Ohio. I had my stem cell transplant on July 29. I handled the stem cell transplant very well and was declared in complete remission from the months of September to November 2021.
Yvonne
I am 56 years old and a proud 16-year survivor of chronic myeloid leukemia (CML). The journey has been filled with struggles, instability, emotional ups and downs, coupled with chronic pain throughout the day and into the night. The things that have strengthened me the most are my faith in God, my family, dear friends, my church, and other survivors who gave me hope and extended themselves to me as advisers, also, prayer partners and sounding boards during moments of sheer frustration. I met the love of my life during my second year of chemo, something I thought could never happen!
Sadie
Diagnosed with leukemia at age 2, Sadie survived thanks to her remarkable treatment. A sunny and positive personality, Sadie today pursues her ambition as a dragster driver and is a living example of hope to other cancer patients.
Aliyah
My name is Aliyah and I'm 19 and I am an acute myeloid leukemia survivor! Please watch my seven minute video of my journey: https://youtu.be/uxJs7N51BmQ Aliyah Petrone
Sandra
I'm a survivor of multiple myeloma and MDS. Now I just want to raise awareness for the cause its seriousness.
Having both these diseases is tough, but I'm trying to take it all in and The Leukemia & Lymphoma Society offers wonderful support.
Bishoy
Born in Egypt, at the age of three, me and my family immigrated to the U.S. when I was diagnosed with acute lymphoblastic leukemia (ALL). I grew up in Long Island, New York, where I received treatment for 10 years. On my 13th birthday, I underwent brain surgery and remains cancer-free.
Alice
I was diagnosed with chronic lymphocytic leukemia (CLL). As soon as you learn that you have a form of cancer in your body, read a lot about it. Learn as much as you can about your cancer and how to talk to your doctor. It's up to you; it’s a mind situation. Don’t say, “Woe is me.” Say, “What should I do to take care of myself and enjoy life?” You are in charge, no one else can do it for you.
Jim
My brother Jim was an amazing man. He was a person for whom family was everything. He ran a plumbing business with his brothers and took pride in its success, but he was so much more than his work. We called him “The Renaissance Plumber” because he was so knowledgeable on so many topics ― history, literature, music, politics, sports. He was also a wonderful cook and a genial host. He lived life to the fullest. His leukemia diagnosis was a terrible blow, coming within months of the tragic death of our younger brother.
Joe
After being diagnosed with acute lymphoblastic leukemia (ALL) in March of 2011 when I was only 10 years old, my entire life changed and was put on hold. I went through months of treatments to slow down the cancer, looked for the best possible hospitals in my area, and was able to get a bone marrow transplant in August 2011 from my brother who was a matched donor. I wasn't even close to stopping there. Once I was feeling better, I could do home instruction school from my house so I wouldn't fall behind, and some of my friends were allowed to visit me at home.
John
I first got involved with The Leukemia & Lymphoma Society (LLS) shortly after the passing of my boyfriend, John, in 2020. John "Poochy" fought a very long and hard battle against leukemia that came to an end in August 2020. I was absolutely devastated and lost in a world without my love.
About two weeks later, a friend posted something about an event called Light The Night (LTN) for LLS, so I checked it out and immediately signed up a team of John and my friends for my local LTN event. We raised over $1,000 in less than 24 hours!
Jonathan
Jon was diagnosed with acute myeloid leukemia (AML) unexpectedly on November 4, 2023, and has been receiving inpatient treatment at Sharp Memorial Hospital in his new hometown of San Diego ever since. The care is excellent but extremely expensive.
Connor
In 2020, I was asked to join The Leukemia & Lymphoma Society’s (LLS) Student Visionaries of the Year (SVOY) by my friend, Camryn, who is now leukemia-free. Unsure of what LLS was or what I was getting myself into, I hesitated but agreed. Two years later, after my second grand finale event for SVOY Toledo, I was in love. I enjoyed the creativity of coming up with events, I loved the competition, and I loved the people and stories I heard along the way. After graduating high school, I knew that I couldn't stop.
Ashley
I grew up hearing stories about when my uncle Mark was diagnosed with leukemia. The heartache, the stress on the family, the fear and luckily for all of us – his remission. His CURE.