Search Results
Jennifer
In 1985, 10-year-old Jennifer took to the stage to accept The Leukemia & Lymphoma Society’s (LLS) “Employee of the Year” award for her mother, Teresa McVay, who had lost her battle against chronic myelogenous leukemia earlier that year. That was Jennifer’s first time speaking on stage, but it would not be her last. Driven by her mother’s traumatic passing, Jennifer has been a public speaker on Adverse Childhood Events (ACEs), sharing her own experience with loss in order to bring awareness to the cause.
Zac
In 2019, at 32, several symptoms culminated and, in hindsight, were red flags to the disease progression of acute myeloid leukemia (AML). I was less than 90 days into a new job in residential construction. I did not pay attention to what my body was telling me (extreme fatigue, excessively bleeding gums after a dental exam, bruising, and petechiae on my chest and upper extremities). After a busy weeknight trip to the grocery store, my body made me stop to pay attention with a 103.2° fever. With that, I drove myself to the local emergency room.
Lowering High White Blood Cell Counts
Some patients may have very high white blood cell (WBC) counts at the time of diagnosis. These elevated WBC counts can sometimes impair blood flow to the brain, lungs, eyes and other sites, and also cause damage in small blood vessels.
Adam
I am very blessed to be surrounded by supportive family and friends and of having persistent pressure to not ignore my health. Thank you!
Daniel
I was diagnosed with chronic lymphocytic leukemia (CLL) in March 2010 at the age of 48. The cancer advanced rapidly and I was treated with a fludarabine/cyclophosphamide/rituximab (FCR) regimen at MD Anderson in Houston and locally in my hometown of Raleigh, NC between January and July of 2011. The treatment achieved a partial remission. However, in September of the same year I was diagnosed with a large diffuse b-cell lymphoma tumor in my lung.
Karrah
I was first diagnosed with pre-B-cell acute lymphoblastic leukemia (ALL) in June of 2018. Like a whirlwind, I spent the next nine months fighting for my life, battling sepsis, liver failure, and receiving more transfusions than I could ever count. But I achieved remission for 18 months! And during those 18 months, I made every moment count. When my cancer came back in January of 2021, I was devastated, but we had a plan. If I achieved a second remission, I could have a bone marrow transplant and another chance at beating this.
John
After six months of frequent hospital and doctor visits for unexplained fever, weakness, and changes in John's activity and personality, an ultimatum to his primary care pediatrician led to a blood draw. Finally, after so much unknown, we had an answer, B-cell acute lymphoblastic leukemia (ALL). This was May 24, 2022, exactly one month prior to John's 7th birthday. The news allowed us to understand, however, it also threw the entire family into chaos. We immediately endured 11 days of inpatient treatment and multiple procedures. John was strong but very scared and confused.
Bethany
I was 28, married for two years, and my husband and I had just celebrated our one year anniversary at my business, Gigi’s Cupcakes. But on March 30, 2012, that all changed.
Christa
I was diagnosed with acute lymphoblastic leukemia (ALL) at three years old. I experienced two and a half years of chemotherapy, lumbar punctures, blood transfusions, hair loss, and surgery. Since then, I have not wasted a single day. I live each day to the fullest, remembering a time when my future was unsure. I want to make the most of my second chance by striving to achieve what may seem like a challenge. My goal is to become a psychologist and specialize in the behavioral and cognitive development of children. I want to continue to be a part of The Leukemia & Lymphoma Society (LLS).
Lauren
"I am a chronic leukemia-fighting mother of 4 boys and wife. In 2009, I was diagnosed with Essential thrombocythemia (ET). The diagnosis came after having multiple cerebellar strokes caused by a certebral artery dissection and a platelet count of 1.5 million, which is more than 3 times the normal limit. I immediately was told that I would start oral chemo called Hydrea which I would remain on indefinitely or until a cure was found.
Ethan
When I was just under two years old, I was diagnosed with acute lymphoblastic leukemia (ALL). My brother was born just a few days later, and it became an extremely difficult time for my family. Because I was so young, I do not remember most of my treatments that lasted until I was almost five years old. The closest place for treatment was Children’s Mercy Hospital in Kansas City, Missouri, which was a three-hour drive away. Weekend trips to KC became normal, which meant lots of gas money and fast food.
Cindy
On June 5, 2014, at the age of 53, I was diagnosed with acute myeloid leukemia (AML). I was admitted to the hospital the day my bloodwork came back with suspicions of leukemia. I spent the first month having weeklong bouts of chemotherapy. Following my second treatment, I crashed and was placed on a ventilator for two weeks followed by a tracheotomy that was kept in place for six months. This was a huge setback to my recovery as I was in the hospital for four continuous months. It was necessary for me to go to a rehab facility for a month to regain my strength.
Brian
Brian Shaw (a.k.a. “Little Man”) is an energetic, happy, intelligent and compassionate six-year-old boy. For nearly a year, starting when he was four, several of those characteristics seemed submerged beneath the side effects of daily chemotherapy that followed his diagnosis with acute lymphoblastic leukemia. Though his treatments continue (3-1/2 years in total), the side effects have alleviated somewhat and Brian is getting back to his normal self, attending school, etc.
Ashlyn
My name is Ashlyn, and I am a leukemia survivor. At the age of 17, during my senior year of high school, I was diagnosed with acute myeloid leukemia (AML). AML is a rare cancer that affects your bone marrow and blood. My life changed on March 21, 2023, when I got this news. How could this be possible? Why me? Will I survive? These were some of the first few questions that entered my mind. I went through five rounds of chemotherapy and nine grueling months of being inpatient in the hospital. I wasn't able to go on my senior class trip to Disney World or attend senior prom.
Stem Cell Transplantation
For some patients who are in remission and can tolerate intensive chemotherapy, the doctor may recommend stem cell transplantation during the consolidation phase of chemotherapy.
Childhood and Young Adult Resources
On this Page:
Resources for Children, Young Adults and ParentsOne-on-One Support
Long-Term and Late Effects of Treatment
Some side effects of cancer treatment, such as fatigue, can linger for months or years after therapy. Some medical conditions like heart disease and other cancers may not appear until years after treatment ends.
Giavanna
Giavanna was diagnosed with acute lymphoblastic leukemia (ALL) shortly after her fifth birthday. After two years of treatment, she continues to do great and is now 10.
Allison
Spring Break of my second year of medical school marked the beginning of an unexpected chapter in my life. What I had initially brushed off as the flu led me to the emergency room, only to discover that I had acute promyelocytic leukemia (APL). At 24, the trajectory of my life drastically shifted, steering me away from my aspirations of orthopedic surgery towards a path I could have never foreseen.
Grace
I’m 15 years old, and I’m a ballerina, Junior Zoo Keeper at Cheyenne Mountain Zoo, actress, singer, and I am a childhood leukemia survivor.
When I was five years old, my parents noticed that I was getting a lot more bruises and nose bleeds than usual (even living in New Mexico at the time). My abdomen was really swollen and I was taking frequent naps, which was also alarming to my parents. They took me to an urgent care location near my house where the doctors said that I was fine.
Courtney
My father passed away in October from leukemia, and I want to do something to help find a cure so nobody has to go through what my father did.
Mary
My daughter is now almost five years in remission after battling acute myeloid leukemia (AML) twice - once when she was four and again when she was six.
Relapsed and Refractory
Relapsed CLL is the term for disease that returns after it has been in remission for more than six months.
Refractory disease is the term for CLL that does not result in remission after initial therapy.
Immunotherapy
Immunotherapy is a drug therapy that stimulates the immune system. Interferon, a type of immunotherapy, is a substance made naturally by the immune system, but it can also be made in the laboratory. Interferon reduces the growth and division of cancer cells.