Search Results
Jaziel
Hello, my name is Jaziel, and I am a three-time leukemia survivor. My story began in 2008 when I was initially diagnosed with acute lymphoblastic leukemia (ALL). I was treated for a few years and became cancer-free (remission) in 2011. During my first battle with cancer, The Leukemia & Lymphoma Society (LLS) helped me and my family immensely by assisting us with rent, gas, and sometimes simply sharing the stories of other survivors, encouraging me to keep fighting.
Linda
My blood cancer story began in 2015 with a diagnosis of chronic myeloid leukemia (CML). It was scary, and there were so many unknowns. Today it’s 9½ years later, and I know a few more things about blood cancers.
First, today my cancer is undetectable! But as my doctors have told me, it’s chronic, so I’ll always have to be proactive and take medication.
ALL Subtypes
The subtypes of ALL are identified based on certain features of the leukemia cells. Determining the ALL subtype is an important factor in treatment planning. The doctor will discuss with you which drug combinations are indicated based on your child’s ALL subtype.
Leukemia cells can be classified by the unique set of proteins found on their surface. These unique sets of proteins are known as “immunophenotypes.” Based on immunophenotyping of the leukemia cell, the World Health Organization (WHO) classifies ALL into two main subtypes.
Clinical Trials
Taking part in a clinical trial may be the best treatment choice for some acute lymphoblastic leukemia (ALL) patients. Clinical trials are under way for patients at every treatment stage and for patients in remission. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society continues to invest funds in ALL research.
Click here to read more about clinical trials.
Clinical Trials
Taking part in a clinical trial may be the best treatment choice for some chronic lymphocytic leukemia (CLL) patients. Clinical trials are under way to improve remission rates for CLL. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society continues to invest funds in CLL research.
Click here to read more about clinical trials.
Clinical Trials
Taking part in a clinical trial may be the best option for some chronic myeloid leukemia (CML) patients. Clinical trials are designed to be accurate and very safe. There are clinical trials for newly diagnosed patients, for patients with advanced disease, and for patients who are either intolerant to or resistant to their current medications. The Leukemia & Lymphoma Society continues to invest funds in CML research.
Click here to read more about clinical trials.
Chemotherapy
If you're being treated for hairy cell leukemia, your first line of defense will likely be chemotherapy. During chemotherapy, you'll be given potent drugs that must be toxic enough to damage or kill leukemic cells. At the same time, they can take aim at normal cells and cause side effects. Yet, not everyone experiences side effects and people react differently.
The chemotherapy drug used to treat hairy cell leukemia is cladribine (Leustatin®). Cladribine is given in a vein (intravenously). You'll usually receive the treatment for seven consecutive days.
When Your Child Has Cancer
Hearing that your child has cancer is terrifying for any parent. Today, most childhood cancer patients can expect to have full and productive lives. Many childhood cancer survivors return to school, attend college, enter the workforce, marry and become parents. Nevertheless, being vigilant about follow-up care, being aware of long-term and late effects of treatment, helping your child return to school and even dealing with your emotions are all things you’ll need to manage.
Signs and Symptoms
Signs and symptoms are changes in the body that may indicate disease. A sign is a change that the doctor sees during an examination or on a laboratory test result. A symptom is a change that a patient can see and/or feel. A person who has signs or symptoms that suggest the possibility of leukemia is usually referred to a specialist. This is a hematologist-oncologist. A hematologist-oncologist is a doctor who has special training in diagnosing and treating blood cancers such as leukemia, lymphoma and myeloma.
Cassie
Cassie Fetsch is a regular volunteer for The Leukemia & Lymphoma Society’s (LLS) Minnesota chapter. When school is out, staff members can count on Cassie to be in the office folding letters, stuffing and labeling envelopes, counting Team In Training brochures, cleaning out drawers or putting together pizza boxes. Since Domino's sponsors LLS's Pennies for Patients program, they donate all the boxes to ship campaign supplies. This year, Cassie assembled boxes for more than 800 schools!
Cary
Cary was diagnosed with Acute Lymphoblastic Leukemia in the fall of 2012. After spending more than 100 days in the hospital, undergoing intense chemo treatments, and blood transfusions Cary is now in remission. You can only imagine the struggle and heartache a cancer diagnoses was at only 33 years of age with a wife, 3 small boys, and a career.
Jennifer
My mother, Jennifer, was diagnosed with breast cancer completely unexpectedly in 2015 and beat it a year later. Soon after, she was diagnosed with acute myeloid leukemia (AML). We were in complete shock. She is single and lives on our Indian Reservation in Eastern Oregon with no cancer hospitals, so my sister and I completely dropped our careers and lives in other states to take care of her as we were scared and knew she needed support.
Joe
My son Joe was 5 years old when he was diagnosed with T-cell leukemia just three days after the birth of his brother Cole – Joe was admitted to the ICU, and on Sunday, the next day, they did a spinal tap and a bone marrow biopsy. At midnight that night, he started his chemotherapy treatments.
In the first 30 days, his bone marrow had cleared to zero, and he was technically designated as a “low risk rapid responder.” All things being equal, he has done a phenomenal job through this.
He is in long-term maintenance and he finished his treatment on December 13, 2014.
Nandini
Everything was picture perfect in my life. A beautiful family with two beautiful daughters and husband. And then, in March 2009, I was diagnosed with acute myeloid leukemia (AML).
I had been recovering from aplastic anemia since 2002. However, AA progressed into AML. A transplant was the best cure available and a kind unrelated donor was found who gave a new lease to my life. After a painful bone marrow transplant recovery, I am now in remission. My older daughter just went to college and my younger daughter is in fourth grade.
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
Nikolette
I was truly honored to be a recipient of The Leukemia & Lymphoma Society (LLS) Scholarship for Blood Cancer Survivors. After fighting two different types of cancer, both forms of lymphoma and leukemia, I was unsure what my collegiate education would look like. I had to medically withdraw from my freshman year of college at Penn State University in the fall of 2018 when I received my second diagnosis. My family and I were completely devastated, but I was able to successfully undergo a bone marrow transplant and have been showing no evidence of disease (NED) for 3½ years now!
David
My dad, David, was diagnosed with acute lymphoblastic leukemia (ALL) on March 1, 1993, after looking at his blood under a microscope in college class. He started three years of intense chemotherapy on March 8, 1993, and finished it on January 26, 1996, while a third-year medical student. He was told that there was a 50% survival at five years and 30% survival at 10 years and that he would likely not be able to have children. During that time, he got married. Two years after finishing chemo, my oldest brother was born. I have three older brothers and an older sister.
Michelle
I'm Michelle, and I'm a childhood cancer survivor. I'm going to be 43 in a few days. I was 2½ when I had acute lymphoblastic leukemia (ALL) through age 5, going through it all. I received experimental chemos and radiations. I was two out of 45 children who lived. The rest died. I have relapsed over six or more times ― two leukemias, and the rest were all different cancers. I recently got tested genetically at O.H.S.U., and I have what they call a mutated gene.
Signs and Symptoms
Children who have juvenile myelomonocytic leukemia (JMML) may have the following signs and symptoms:
- Difficulty breathing and/or dry cough
- Enlarged lymph nodes
- Abdominal pain and loss of appetite caused by enlarged kidney, liver and/or spleen
- Bone and joint pain
- Fatigue and pale skin (from low level of red blood cells)
- Easy bruising and bleeding (from low level of platelets)
- Frequent infections (from low level of white blood cells)
Some children also have skin changes which can include
Signs and Symptoms
The signs and symptoms of hairy cell leukemia aren't specific and are common to other, less serious illnesses. However, if you're troubled by any of the following symptoms, see your doctor:
Adam
I am very blessed to be surrounded by supportive family and friends and of having persistent pressure to not ignore my health. Thank you!
Treatment Outcomes
All patients are advised to discuss survival information with their hematologist-oncologists. Keep in mind that outcome data can only show how other people with CMML responded to treatment, and cannot predict how any one person will respond.
Unfortunately, lasting remissions are not common. The expected survival time ranges from a few months to a few years after the initiation of treatment, depending on a variety of risk factors including the percentage of blasts in the blood and marrow, the white blood cell count, and the presence of certain gene mutations.
Jennifer
In 1985, 10-year-old Jennifer took to the stage to accept The Leukemia & Lymphoma Society’s (LLS) “Employee of the Year” award for her mother, Teresa McVay, who had lost her battle against chronic myelogenous leukemia earlier that year. That was Jennifer’s first time speaking on stage, but it would not be her last. Driven by her mother’s traumatic passing, Jennifer has been a public speaker on Adverse Childhood Events (ACEs), sharing her own experience with loss in order to bring awareness to the cause.
Ethar
Refugee Family Gives Back to LLS after Daughter Survives Leukemia
Sixteen-year-old Ethar and her family moved to the United States from Iraq in 2015. Just one year later, she was diagnosed with T-cell acute lymphoblastic leukemia.
“It all started when my lymph nodes began to swell and the pain became very intense,” said Ethar. “It was at this point, that I went to the emergency room with my father so we could try to make sense of what was happening to me.”
Charlene
Cancer. That is a word that is scary. So many of us have friends, family and co-workers that are impacted by some type of cancer, but you never think it will be you. The word conjures up fear. Fear of treatment, fear of death and fear of what will be expected of you to deal with and hopefully survive.