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Chronic Myelomonocytic Leukemia

• Is an uncommon blood cancer that has features of two other types of blood cancers. For this reason, the World Health Organization (WHO) classifies CMML as myelodysplastic/myeloproliferative neoplasms. There are about 1,100 cases each year. 
• Generally affects older adults.
• Is diagnosed in twice as many males than females.

Makenzie

My daughter Makenzie was diagnosed with chronic myeloid leukemia (CML) in January 2013, when she was just four years old. She had no signs or symptoms of leukemia. One day, Makenzie had a sore throat and we made an appointment with her pediatrician. Turns out she did have strep throat, but an exam also revealed her spleen was very enlarged. At that point, her pediatrician did bloodwork and learned that Makenzie's white cell count was through the roof. We were sent to Texas Children’s Hospital where later that evening she was diagnosed with CML.

Tessa

Tessa surprised our family when she came rockin' an extra chromosome. She spent 11 days in the NICU and left with oxygen but seemed in good health otherwise. When Tessa turned 18 months old, she became very sick. She had multiple infections that wouldn't go away, became lethargic, and wasn't her cheerful self anymore. After a blood test, her pediatrician suspected leukemia. More tests confirmed Tessa had acute lymphoblastic leukemia (ALL). She went through chemotherapy for two and a half years and finished treatment in May 2020.

Charlie

At two and a half years old, Charlie was diagnosed with acute lymphoblastic leukemia (ALL).

Soon after being diagnosed, she underwent surgery to insert a port-a-cath so she could receive chemotherapy treatments and make route blood work easier on her. Chemotherapy treatments were extremely hard on her little body and she refused to walk. She had neuropathy from the treatments.

Sherri

I have donated to The Leukemia & Lymphoma Society (LLS) for many years. This year I wanted to do more in honor and loving memory of my dad, Frederick. 

Chemotherapy and Drug Therapy

There are many different types of drugs used in the treatment of MDS.

Immunosuppressive Therapy. Drugs that suppress certain parts of the immune system can help some patients with lower-risk MDS. In some types of MDS, lymphocytes, a type of white blood cell, may attack the bone marrow, causing it to stop making enough healthy blood cells. Immunosuppressive therapy lowers the body’s immune response to allow bone marrow stem cells to grow and make new blood cells. The main immunosuppressive therapy drugs used to treat MDS are:

Jason T.

My name is Jason T. Quimby and I am the proud past caregiver of my wife and ALL survivor Susana Moro. In November 2016, my wife, was diagnosed ALL leukemia ph+ and admitted to the Miami Cancer Institute South Miami Campus to start her pediatric chemo protocol. Needless to say that for a forty-something mother of three teenage girls this was a huge personal and family challenge to overcome.

Deborah

I am a 54-year-old mother of two, the owner of a small business, Park Hill Yoga and have been married for 22 years. Being diagnosed with Hodgkin lymphoma in December 2015 came as the biggest surprise of my life.

Diagnosis

Having the correct diagnosis is important for getting the right treatment. Hodgkin lymphoma (HL) may be difficult to diagnosis. You may want to get a second medical opinion by an experienced hematopathologist before you begin treatment. A hematopathologist is a specialist who studies blood and bone marrow cells and other tissues to help diagnose diseases of the blood, bone marrow and lymph system.

Teri

I was first diagnosed with a myeloproliferative neoplasm (MPN) called polycythemia vera (PV) in 2012. I must admit, I was a bit overwhelmed when they said the “C” (cancer) word and then the “R” (rare) word. I have been living with a handful of rare diseases for some time and now a rare cancer. At that time, there was limited information. I started to research MPNs, attended some conferences, talked with a social worker (Amy is my hero) at The Leukemia & Lymphoma Society (LLS), and connected with the MPN Research Foundation and MPN Advocacy Foundation.

NHL Staging

Once your doctor confirms an NHL diagnosis, he or she will determine the extent of your disease's progression by staging. Staging helps your doctor predict the disease's progression and develop a treatment plan.

Imaging Tests

Your doctor conducts one or more imaging tests along with a physical exam, to evaluate:

Samantha

Hi, I’m Samantha, and I am a pre-B-cell acute lymphoblastic leukemia survivor (B-ALL)! I was diagnosed in October 2018, the beginning of my junior year in high school. Before being diagnosed, I missed about a month of school due to being sick. I was misdiagnosed three times before they found out I had B-ALL. When I was diagnosed, the doctors told my parents and me that if it had been undiagnosed for a day or two more, I wouldn’t have woken up, and my parents would’ve found me. I’m so lucky it was found before it was too late.

Dr. Rafael Bejar

I am a physician-scientist with a primary focus on treating and understanding blood cancers like MDS and AML. It's a job I love and one that has given a lot back to me over the years. However, it was also a very unlikely outcome for me. I was born in Montevideo, Uruguay where I lived until I was 5 years old. My parents were both recently minted physicians facing bleak job prospects in a hostile political environment at home who bravely sought out better opportunities abroad for themselves and their two children.

FDA Approves New Treatment for Children and Young Adults with Chronic Graft versus Host Disease

Diagnosis

An accurate diagnosis of the type of leukemia is important. The exact diagnosis helps the doctor estimate how the disease will progress and determine the appropriate treatment.

Diagnosing acute myeloid leukemia (AML) and the AML subtype usually involves a series of tests. Some of these tests may be repeated during and after therapy to measure the effects of treatment.

Allogeneic Stem Cell Transplantation

Allogeneic stem cell transplantation involves the use of stem cells from someone other than the patient. The donated stem cells can come from either a person related or not related to the patient. 

Tawilhua

My name is Tee, and I am a survivor of multiple myeloma (MM), a rare blood cancer. Before my diagnosis, I was an active principal at the school where I worked, was involved in my community, and lived a life of purpose. And then I was diagnosed with the “Big C.”

Today, I still have a purpose-filled life, it simply looks different than before. Telling my cancer story is a part of living a fulfilled life after a cancer diagnosis. So here is Tee’s story.

Diagnosis

While certain signs and symptoms may indicate that a person has MF, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to:

• Estimate how the disease will progress
• Determine the appropriate treatment

Some of these tests may be repeated both during and after treatment to evaluate the effectiveness of treatment.

Lab and Imaging Tests

Doctors use several different lab and imaging tests to help detect (diagnose) a blood cancer (leukemia, lymphoma, myeloma, myelodysplastic syndromes or myeloproliferative disease). You may need to undergo additional tests to confirm your diagnosis.

Once your diagnosis is confirmed, your doctor may need to test you for certain genetic, cellular or molecular characteristics that will help him or her treat your specific diagnosis.

Your doctor considers these test results along with information from your physical examination and detailed medical history to:

Grace

Volunteering for an organization was part of my senior capstone in the Spring of 2021. I wanted to volunteer for an organization that was for the long term and meaningful to me. One of my best friends, who is also my cousin, was diagnosed with acute myeloid leukemia (AML) in 2020. I felt so helpless and also didn't know anything about AML, so I turned to LLS to educate myself. LLS is an integral factor and I wanted to do my part. I became a story volunteer, where I had the opportunity to interview and speak with other volunteers and supporters.

Nandini

Everything was picture perfect in my life. A beautiful family with two beautiful daughters and husband. And then, in March 2009, I was diagnosed with acute myeloid leukemia (AML).

I had been recovering from aplastic anemia since 2002. However, AA progressed into AML. A transplant was the best cure available and a kind unrelated donor was found who gave a new lease to my life. After a painful bone marrow transplant recovery, I am now in remission. My older daughter just went to college and my younger daughter is in fourth grade.

Casey

At 31, I was diagnosed with acute lymphoblastic leukemia (ALL), a rare children’s cancer. Four months into treatment, I had a stroke and seizures and went into a medically induced coma for three days. I had to relearn how to use the entire left side of my body (yes, walk, talk, and function) while still going through treatment. My treatment protocol was 18 months long. Seven weeks after I finished, I relapsed. My body was no longer responding to chemotherapy, so we tried an immunotherapy that sent me into a cytokine release storm (your body starts to attack itself).

Elizabeth

I was diagnosed with multiple myeloma (MM) in 2016. I had a hip replacement, and a mass was found on my hip, so I was referred to a cancer doctor. But the strangest thing was, I had no symptoms, so I went to the doctor, and I went through all kinds of tests. The doctor told me, “You have MM,” and I am like what's that? She said it was a blood cancer. I asked what do I need to do about it, and she told me I needed a stem cell transplant. But that was after so many doctor visits and labs, at one point she would tell me I had it and the next visit that I didn't.

Bella

Looking back at when this journey started, it kind of feels unreal. Life can change in an instant. For us, that moment was on September 2, 2016. Bella had been having fevers on and off for two months with no other symptoms and medicine was barely keeping them down. We took her to the doctor's office and were told it was probably just a virus.

Paige

On September 8, 2020, my youngest baby Paige was diagnosed with high-risk B-cell acute lymphoblastic leukemia (HR B-cell ALL) at Children's National Medical Center in Washington D.C. This diagnosis came after two weeks of visually noticing a change in Paige's behavior. By that point, she had been suffering from a high fever (102-104°) for two weeks after being misdiagnosed by Patient First Urgent Care. She had extreme fatigue, complaints of sore muscles, and literally not wanting to do anything. But this discovery happened by chance.