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Holly
In 2016, I joined The Leukemia & Lymphoma Society (LLS) Tennessee Chapter as a supportive member of Team Addie. I had friends who became team members the previous year, walking in Nashville’s Light The Night Walk (LTN), and they encouraged me to get involved in the cause with LLS and LTN. Nashville is a city that my friends and I have gained so much love for through the years. I must admit I was hesitant to join at first because blood cancer specifically hadn’t affected my life or the people in it.
Kevin
In 2011, I was given two months to live after I was diagnosed with acute myeloid leukemia (AML).
I had to stay at the Bone Marrow Transplant Center at the Salt Lake City Hospital for a very long time and undergo a very hard fight.
My aortic valve failed this year from the chemo, but I had open heart surgery in May 2017 and I am grateful to be alive!
I live in honor to all that passed in our family and those who are still fighting blood cancer.
Steven
I have a rare blood cancer. It is Waldenstrom macroglobulinemia (WM), a type of non-Hodgkin lymphoma (NHL), but some doctors say it has the same characteristics as POEMS syndrome.
I have very painful neuropathy, and it affects my legs and feet to the point that some days I cannot walk.
I have a spinal cord stimulator with the battery implanted in my back.
I am thankful to The Leukemia & Lymphoma Society (LLS) for my grants and all the other assistance, especially through this COVID pandemic.
Judy
I was diagnosed with acute myelogenous leukemia (AML) on April 6, 1987, just four months after my 30th birthday.
My beautiful daughter had turned three in February. I loved being a mom, and a teacher. I was extremely active as many young parents are and was looking forward to spending more time outside "playing" as the weather improved in the great Canadian north. Life was good.
Disease- and Treatment-Related Pain
People with cancer can have pain caused by the cancer itself, its treatment, or both. They may also have pain caused by other health problems that are unrelated to cancer (like arthritis or diabetes).
Increased pain does not mean that the cancer is getting worse, but you should always tell your healthcare team if you have increased pain.
It’s important to remember that no matter what the cause, pain can be treated.
Kristy
On May 24, 2020, at 23 years old, I started getting dizzy out of nowhere. I thought maybe I needed to eat and sleep better, but it got worse. I went to the ER, and they said I was anemic and sent me home. I bought a bunch of food that’s supposed to help anemia, but I kept getting worse, to the point where I couldn’t get up to eat. I would throw up and get dizzy and almost pass out. I lost color, and my lips turned pale. I lost weight, and I pretty much looked like a zombie. Then one day I couldn’t get up, and I sat in the same spot for hours.
Maria
By the end of November 2008, I started feeling an overwhelming fatigue. I developed a fever and my physician sent me urgently to the emergency room. There I was found to be depleted of blood and needed a transfusion. It seemed so unreal.
After a couple of days and a bone marrow biopsy, I was diagnosed with acute myeloid leukemia (AML). I learned that if I had not sought help in the ER, I could had died.
Myrrah
Acute lymphoblastic leukemia survivor travels from India to receive LLS-funded treatment
When Myrrah was just six years old, she was diagnosed with acute lymphoblastic leukemia. Her family lived in India at the time, where she received a year of intense treatment. When her blood work showed no signs of cancer, her family celebrated with a vacation to Europe. Then, during a routine checkup they learned that Myrrah’s cancer had returned and the doctors said there was nothing more they could do.
Michael
In 1995, Michael’s daughter Carley was diagnosed with acute myeloid leukemia (AML), M-7 – a rare form of blood cancer – at just two and a half years old. For the following year, Michael and his wife, Liz, practically lived at Rady Children’s Hospital in San Diego while Carley underwent heavy chemotherapy treatment.
Rachel
Rachel was diagnosed with stage 4B Hodgkin lymphoma in February 2015. She was 26 years old. The moment when her oncologist first spoke the words “you have cancer” were surreal to her. She looked to her parents who exchanged the same look of disbelief and shock, then quickly looked away before fear and sadness settled across their faces. Her mind started to race, “How am I stage 4? I don’t feel that sick. This has to be a mistake, where did this even come from? What happens now?”
Barbara
While enjoying a 2021 spring vacation with my husband in Kentucky, I began to feel severe pain in my right arm. Over several hours, the pain increased, but I didn’t want to interrupt our vacation plans with a hospital visit. By late evening, my husband could tell that we must get to an emergency room PRONTO! But where in this large city can we find one? We finally stopped at a Home Depot store and asked for directions. After searching on darkened streets in a strange city, we found the emergency entrance to a hospital.
Yeah!
Flavio
On November 8, 2023, our world changed forever when my husband Flavio was diagnosed with B-cell acute lymphoblastic leukemia (B-ALL). What began as a normal recovery from Achilles tendon surgery quickly spiraled into something far more serious. It started with comments about how pale his skin had become, a sign we now realize was the first red flag. I also noticed unusual bruising on his back, but it was dismissed by the surgeon. After several more concerning moments where Flavio was left weak and exhausted from even simple tasks, we decided to get routine bloodwork done.
Graham
In the fall of 2008 my wife and I got married. Shortly after returning from our honeymoon, I began developing pains and weakness in my joints. This continued through the holidays and I sought medical attention when the pain in my shoulders and hips became unbearable. After inconclusive X-rays and unsuccessful Cortisone shots, I began developing a pain in my abdomen around Christmas. The joint pains I wrote off as working out too hard and the abdomen pain I concluded was an ulcer.
Leimomi
I was diagnosed with non-Hodgkin’s lymphoma in 1998 at the age of 38. My participation in a clinical trial included a stem cell transplant, five chemotherapy sessions, and full-body radiation treatments. I am an advocate for participation in clinical trials, which paves the way for new treatments or prevention methods. Although it was a rough experience, the responsibility of being a single mom kept me going. My inspiration for surviving was my son Brian who was 12 years old at the time. He was born with microcephaly (small brain) which made him totally dependent for all his needs.
Jeffrey
My name is Jeff Kurowski and I am 35 years old. I have lived with chronic myeloid leukemia (CML) for two years and Crohn's disease (CD) for 20 years. I have had three feet of my intestines removed. I now depend on daily bowel suppression medication, monthly B12 shots, biologic therapy for a quality of life, and a daily targeted chemotherapy pill to stay alive.
Kassandra
Exactly a month before my 24th birthday, I was diagnosed with acute lymphoblastic leukemia (ALL). As a young adult, hearing the words “you have cancer” come from a physician’s mouth was earth-shattering, to say the least.
Prior to my diagnosis, I had been working in clinical research and was enrolled in a Biomedical Science Master’s program with hopes of continuing to medical school and becoming a physician. However, my career aspirations were placed on hold when I received my diagnosis. Immediately, my dedicated student lifestyle turned into one of a full-time patient.
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
Types of Treatment
The factors that will determine your treatment regimen may include:
Margot
I lost my father at age 53 to acute myeloid leukemia (AML) after a hard 13-month battle. I want to get involved with The Leukemia & Lymphoma Society (LLS) to spread awareness around leukemia and other blood cancers, to hopefully help other patients and loved ones going through this. My brother, Jack Austin, has run 2 marathons under the team "Running for Rob" and has fundraised over $10K for LLS. I want to get involved and fundraise to not only spread awareness and support to those dealing with this dreadful disease.
Loriana
In January 2014, award-winning health and fitness journalist, Loriana Hernandez-Aldama was shocked to learn that she had acute myeloid leukemia (AML). She received the diagnosis from her fertility doctor, who she had seen just days before to do a precautionary blood test for an embryo transfer. Instead of planning for a new baby, Loriana had to begin treatment for cancer.
Shortly after her diagnosis, Loriana said goodbye to her two-year-old son and boarded a plane to another state to begin chemotherapy.
River
I was diagnosed in late February 2023 with T-cell acute lymphoblastic leukemia (T-ALL). I had 810,000 white blood cells that were all cancerous. I have made a recovery, but I’m still in the process of recovering. I’ve met amazing people along the way. I have around two years left of treatment at the Children’s Hospital of Michigan. I still think of this whole experience as amazing because of all the people I met and all the things I’ve gotten to do such as my Make-A-Wish trip to Nintendo World in Los Angeles.
Renee
I was a senior in high school preparing to graduate. I had summer plans to work at my youth group camp and endless ideas for my future. That all came crashing down on May 27, 2002, when I was diagnosed with acute myeloid leukemia (AML). AML is a rare and rapidly growing cancer of the bone marrow that destroys the production of normal blood cells, red blood cells, and platelets. At the time of my diagnosis, my family was given devastating odds that only a miracle could fix. I was so dangerously sick that I needed multiple transfusions immediately, and that was just the beginning.
Graysen
Graysen was born in March 2017. She was born the day before my birthday and we often say that she was the greatest birthday present ever. She was such an easy-going baby - happy, curious, and sweet with a magnetic personality. She was seemingly healthy, happy and 21 months old when we shockingly learned she had leukemia in November 2018. It was a diagnosis we never saw coming and one we were forced to simultaneously digest, navigate and hit head on.