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To provide education and support to patients and to encourage research into these rare cancers

• Provides disease, treatment and clinical trial information for the T-cell leukemias and lymphomas
• Organizes free educational forums
• Offers physician referrals, e-newsletter and links to helpful resources
• Supports scientific research on the T-cell leukemias and lymphomas.

Patients, caregivers, healthcare professionals, researchers

To realize the promise of science to eradicate lymphoma and serve the community touched by this disease.

• Provides Lymphoma Helpline and Clinical Trials Information Service
• Provides educational materials, conferences, webcasts
• Offers limited financial assistance to patients in active treatment
• Lymphoma Support Network is a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences
• Funds biomedical research focused on the origins, treatment and identification of a cure for lymphoma
• Raises public awareness of the disease.

Patients with lymphoma and their families, caregivers, health professionals

Why: A Memoir of Love and Lymphoma by John Melithoniotes
NFB Publishing, 2023, 278 Pages, Paperback or Kindle
ISBN: 9781953610485

There is no test of a couple’s bonds like the revelation that one of them has a life-threatening disease. One of them, a husband, wife, or partner, will become a patient who may need care from the other almost constantly. This is the story of John and Marilyn, whose love of nearly forty years encounters a diagnosis of Marilyn’s Non-Hodgkin’s lymphoma. John’s memoir describes the complexities of how they navigated their way through a large urban cancer hospital, their daily attempts to manage the side effects of chemotherapy, and their emotional struggle to cope with a worsening crisis. He revisits key scenes from their lives in the hope of understanding their actions and the surprises in store for both of them.

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Living with Lymphoma By Elizabeth M. Adler, Ph.D.
The John Hopkins University Press, 2nd Edition, 2016, 480 pages
ISBN: 9781421418100

A comprehensive resource for coping with medical, emotional and practical challenges. The author, who is a lymphoma survivor, thoroughly explains the disease, describing the many different kinds of Hodgkin and non-Hodgkin lymphomas, the wide range of symptoms and the various treatment options available.The new edition includes the latest information on lymphoma diagnosis, treatment, and incidence and describes the most recent update to the WHO system of lymphoma classification and staging. Adler discusses new targeted therapies like ibrutinib and idelalisib and describes how other treatments, including radiation therapy and stem cell transplants, have been modified while others have been discontinued. 

A Brave Kid’s Guide to Lymphoma by Nina Gonzalez, MD
Hello Brave Co, 2024, 49 Pages, Paperback
ISBN: 979-8990710511

Charlie is a curious kid facing a big challenge: lymphoma. With so many questions swirling in his mind, Charlie finds a friend in Cobi, the super smart Brave Buddy who helps kids understand their medical diagnoses. Together, they set off on a journey of understanding, and Charlie realizes just how Brave he is.

A Brave Kid's Guide to Lymphoma is designed to help children understand their lymphoma diagnosis. Created by Dr. Nina Gonzalez and the Hello Brave team, this book breaks down complex medical information into simple, clear language and illustrations. Through an engaging conversation between Cobi and Charlie, this book helps to dispel common misconceptions and provides comfort through a shared understanding of this challenging diagnosis. At the end of the book, you'll find a glossary of easy-to-understand terms, guides for adults on how to talk about tough diagnoses like lymphoma with kids, questions to ask your care team, and a Brave Kid Certificate to honor your child's bravery and strength. This book is a supportive tool for both patients and families dealing with lymphoma.

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