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LLS staff and advocates in Washington, D.C.

LLS, advocates celebrate major state policy wins for patients

While Congress meets year-round, state legislatures typically meet only in the first half of the year. The start of the summer generally marks the end of the state sessions. 

As LLS prepares for our 2024 state work, it’s important to celebrate the incredible wins we achieved at the state level in 2023. 

These policies are the culmination of years of work from volunteers and LLS staff from across the organization. We hope you’ll take a moment to learn about them – and share them with your own stakeholders. 

Vincristine

Vincristine is an FDA-approved chemotherapy agent that is used to treat some types of blood cancer as well as some noncancerous conditions. Vincristine may cause hair loss in some patients. After treatment with vincristine has ended, or sometimes even during treatment, normal hair growth should return.

Cisplatin

Cisplatin is FDA approved alone or in combination with other drugs to treat people who have certain types of cancer.

Cyclophosphamide

Cyclophosphamide is FDA approved to treat several types of cancer, including people who have Hodgkin lymphoma, non-Hodgkin lymphoma, acute and chronic lymphocytic leukemia, acute and chronic myeloid leukemia, myeloma, and mycosis fungoides. Cyclophosphamide is usually used in combination with other drugs.

Cyclophosphamide may cause a temporary loss of hair in some people. After treatment has ended, normal hair growth should return, although the new hair may be a slightly different color or texture.

Understanding Mutations to Treat MDS

Benjamin Ebert is researching what genetic mutations cause myelodysplastic syndromes (MDS), a group of disorders in which the bone marrow fails to produce sufficient blood cells, and how that information can be used to determine prognosis and therapy. MDS frequently progresses to an acute leukemia.

Corticosteroids

Dexamethasone, hydrocortisone, methylprednisolone and prednisone are FDA approved corticosteroids that are used to treat many medical problems, including some kinds of cancer.

10 Self-Care Tips to Cope with Isolation and Stress

Whether you are self-quarantining or practicing social distancing, we all are adjusting to a new normal amid the coronavirus disease (COVID-19) pandemic. Everyone reacts differently to stressful situations. As a patient or survivor, you might be experiencing feelings of isolation, uncertainty and anxiety. As a caregiver, you might be feeling overwhelmed with navigating your loved one’s care while looking after your own needs. And as a family member, you might be feeling unsure of how you can help. This is understandable, and you are not alone.