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DEVELOPING RELATIONSHIPS ON CAPITOL HILL
As the voice for all blood cancer patients, The Leukemia & Lymphoma Society (LLS) establishes and grows meaningful relationships with policymakers
The Leukemia & Lymphoma Society is committed to removing barriers to care for blood cancer patients, and works with federal and state legislators to advocate for policies to ensure patients have access to quality, affordable care and treatments they need.
Here’s an inside look at how we cultivate these key connections:
Five Reasons to Give Thanks
The Leukemia & Lymphoma Society (LLS) exists to find cures for blood cancers and improve the quality of life of patients and their families. The fervor with which experts, patients and supporters rally around this cause is impressive and it’s only because of that synergy that we’re able to make such significant progress in saving lives.
In the spirit of Thanksgiving, we wanted to share five reasons we are giving thanks this holiday season.
How to Save Lives through Virtual Fundraising Events
The adage, “We are all fighting the same storm, but we are not fighting it from the same boat,” is more relevant amidst today’s global pandemic than ever before. This resonates particularly true for cancer patients, who are at increased risk of getting sicker if they contract COVID-19.
BURLINGTON STORES RAISES RECORD-BREAKING $5.1 MILLION FOR LLS
Burlington Stores and The Leukemia & Lymphoma Society (LLS) joined forces for the 17th consecutive year to help save lives and bring smiles to those touched by blood cancer. From September 9 through December 1, Burlington’s more than 670 locations nationwide encouraged customers to donate $1 or more at checkout to support LLS’s goal to create a world without blood cancer. This campaign, combined with Burlington’s corporate associate fundraising efforts, raised a record smashing $5.1 million for LLS, helping the organization fund lifesaving research and treatments.
Born with leukemia, Eevie beats the odds and turns five!
After Eevie was born, she was diagnosed with a rare form of childhood blood cancer that affects 1 in 5 million newborns. Doctors gave her a 17 percent chance of surviving to age 2. This month, Eevie celebrates her fifth birthday. Each year her mother Brynne has shared her progress on this blog (you can read those stories here).
Volunteers: The Engine Powering LLS’s Mission
I was always aware that volunteers with The Leukemia & Lymphoma Society (LLS) drive impact for blood cancer patients and families. But it wasn’t until Thanksgiving Day 2007 that I discovered the full force of their power. My wife, Holly, had recently been diagnosed with follicular lymphoma and our family was still reeling from the news. She was feeling quite ill, and we were exhausted with worry and trying to keep life as normal as possible for our two young children.
World-Renowned Chef & Cancer Survivor Cooks for a Cure
Shortly before Steve McHugh and his wife moved to San Antonio in 2010, the rising star chef was diagnosed with non-Hodgkin lymphoma and spent a year undergoing eight rounds of chemotherapy.
“Chemotherapy was a real roller coaster – I experienced insomnia, constipation and dizzy spells. There were times I would not sleep for three to four days,” he said.
Meet the Researcher: Omar Abdel-Wahab, MD
This is part of a periodic series of Q&A’s with LLS-funded researchers. Dr. Abdel-Wahab of Memorial Sloan Kettering Cancer Center focuses on an area of research called epigenetics – chemical modifications that regulate (switch on and off) gene activity. He is studying how these processes drive the development of acute myeloid leukemia and other blood cancers. He currently holds a Career Development Program grant from LLS, a program that supports scientists earlier in their careers.
Q. What is the focus of your research and its primary goal?
A Special Delivery for Mom with Cancer
On April 8, 2016, I was diagnosed with acute promyelocytic leukemia (APL), a subtype of acute myeloid leukemia (AML). I was 23 weeks pregnant. For almost five years, my husband, Allan, and I battled unexplained infertility. After three failed fertility treatments, we finally found ourselves pregnant the “au natural” way!
Exercise for blood cancer patients
Table of contents:
A Hodgkin Lymphoma Survivor’s “New Normal”
My life with cancer began five days before my wedding when I was 25 years old. On August 2, 2004, I was at a family birthday party when I felt a lump protruding out of my neck. After the party, I rushed over to see my stepdad who is a doctor.
Although he knew that the position of the lump at my age was not a good sign, he calmed me down and gave me antibiotics. After months of planning for the wedding, he knew how important it was for me to walk down the aisle.
Born with Leukemia, Eevie is now age 3 – and Cancer Free!
After Eevie was born, she was diagnosed with a rare form of childhood blood cancer that affects 1 in 5 million newborns. She was given a 17 percent chance of surviving to age 2. This month, Eevie celebrated her third birthday. Her mother, Brynne, tells her story…
How Celebrating My 18th Birthday in the Hospital Changed My Perspective
Marlee’s story of courage, inspiration and giving back.
My name is Marlee Pincus and I have cancer. I never in a million years thought I would say those words. Growing up, I never had any medical issues nor a significant family history of cancer. In high school I loved to run, advocate for human rights, and learn Spanish. However, my greatest focus was always on my academics. I graduated Salutatorian of my class and was eager to begin my freshman year at Cornell University.
5 Ways to Support Blood Cancer Patients
Have you ever Googled, “what to do for someone with cancer”?
Have you felt helpless or frustrated when trying to think of something meaningful to offer them or do for them? You want them to know you’re ready to help, but don’t know how to help.
We’re often told to just ask the person what they need. But the truth is, they probably don’t know what they need. And figuring it out can be tough on top of all the new questions that come with their diagnosis.
So now what?
5 Reasons why I’m grateful for LLS Volunteers
It’s National Volunteer Week, and I want to thank all our LLS volunteers for the time, energy, and commitment you give to our organization in service of blood cancer patients and their families. Through your many acts of kindness, compassion, and generosity, you are helping patients live longer, better lives. All of us at LLS are so grateful for you—all year long.
