MPN Voice
Partner Link
https://www.mpnvoice.org.uk/
Partner Contact
Website or call 07934 689 354
Population Served
People diagnosed with myeloproliferative neoplasms and their families, caregivers, health professionals worldwide
Mission
To provide information, community and advocacy for patients diagnosed with a myeloproliferative neoplasm (such as essential thrombocythemia, polycythemia vera or myelofibrosis), families, caregivers and health professionals
- Based in the United Kingdom, this volunteer-run nonprofit provides disease and treatment information, tips for coping with everyday challenges, and information on clinical trials
- Support services including peer to peer matching, online support group/chat
- Offers newsletters, blog, publications and videos
- Sponsors several forums per year in London.