Fanconi Anemia Research Fund
Link
http:\\www.fanconi.org
Contact
888-326-2664
Population Served
Patients and families affected by Fanconi anemia
Mission
To find effective treatments and a cure for Fanconi anemia (FA) and to provide education and support services to affected families worldwide.
- Provides information on disease and treatment, including fact sheets and newsletter
- Offers information on clinical trials and testing centers internationally
- Manages online support groups and an international family support network
- Offers informational meetings and support services
- Sponsors research grants