ECD Global Alliance

http://erdheim-chester.org/

Website

Patients, family members, and caregivers affected by Erdheim-Chester Disease, health professionals, worldwide

Dedicated to awareness, support, education, and research related to Erdheim-Chester Disease, a rare multi-system histiocytic syndrome.

• Provides disease and clinical trial information, publications, referrals to physicians and care centers, patient registry, educational events, online supports
• Funds research exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease
• Advocates on behalf of Erdheim-Chester Disease patients