My name is Jeff Kurowski and I am 35 years old. I have lived with chronic myeloid leukemia (CML) for two years and Crohn's disease (CD) for 20 years. I have had three feet of my intestines removed. I now depend on daily bowel suppression medication, monthly B12 shots, biologic therapy for a quality of life, and a daily targeted chemotherapy pill to stay alive.
In January 2013, I was diagnosed with PH+ acute lymphoblastic leukemia (ALL). I had just turned 19 and finished my first semester at the University of Florida. I missed the rest of my freshman year but after eight months in and out of the hospital, I achieved remission and my doctors allowed me to go back to school for the fall.
My story begins on Christmas Eve 2008. My daughter was a 8th grader and was singing her first solo during Christmas Eve mass. I was sick!
In the summer of 2006 I received a letter in the mail much like what you get around the holidays telling of the adventures over the past year. My friend had recently moved to Tucson with her family. She shared pictures of their kids and told about the transition from the Seattle area to Tucson.
I’m a junior-ish chemistry major at Waynesburg University. The reason I say “junior-ish” is because on Mar 12, 2013, I was diagnosed with non-Hodgkin lymphoma, a blood cancer. Because of this, I had to withdraw for two semesters of school during spring break of my junior year.
I was diagnosed with stage 3B Hodgkin lymphoma in February 2013. I was having unusual things going on with my body such as itching, weight gain, swollen lymph nodes and heavy breathing. As these symptoms continued, it led me to go see my general practitioner, who misdiagnosed me with scabies (a form of bed bugs).
March 16, 2013. I will never forget the moment I first saw the bump. We went to the pediatrician that afternoon. Our doctor looked at Eli and said “Don’t worry. This is not cancer.”
I was the longest leukemia patient on G111 at the Cleveland Clinic. I spent 135 days on the floor fighting every day. I was there so long that when they could not find a way to get my numbers back up, we would call it Ground Hog Day. Every day for about a month, nothing would change.
My daughter is Madeline Conley. On January 7, 2014, three days after her 15th birthday, she was diagnosed with leukemia (AML/MDS). She was a high school cheerleader and cheer coach who was basically ripped out of her normal active life and immediately admitted to the hospital, where she spent the next five months. It was the scariest thing we've ever b
I was diagnosed with non-Hodgkin lymphoma in May of 2003. The diagnosis came after three or four months of tests attempting to diagnose a lump from my neck (which was ultimately removed). My wife and I were told that I had a disease that was considered treatable but not curable. My particular sub-type, follicular, has a tendency to reoccur. I was referred to MD